Hi Debs I hope you get a quick refferal to Macmillan , it wikk be such a relief for you My nurse came round this week and the first thing she arranged was for the District nurses to come out to give me a painkilling injection of morphine if my usual doses fail to ease the pain Tat in itself was such a godsend as this week I have been desperate ,…[Read more]

Hi Ameloe what a wonderful achievement for both of you You are right to feel proud of yourselves!! I am sure it helped Johns recovery enormously!! Treasure those memories of your wonderful acheievement Shame you couldnt have recorded it for us to hear Which instruments do you play? I have always envied people with musical talent , I could just…[Read more]

Dear dear Min its so hard to believe that Peter has gone and if its hard for me it must be doubly hard for My heat goes out to you Min You shared a love that was special and without your sour support Peter would have been lost Although you didnt have time to prepare Peter knew and he will always be with you, even if its to jinx your computer Like…[Read more]

Hi Paul I am Revomod too and I have always taken it late evening , usually aor a lttle afrer about 10 pm and there have been no problems , so Would take it when it suiys you . I do get hot sweats quiye often and I think that is due to Revlimid too but you should mention it , and any other side-effects tooo, when you nwxt go to hospital.It made…[Read more]

Dear Eve I am so sorry if I upset you and made you cry . Yrs I know I am being a dunce about going into the hospice but I just cant get my head around it yet If I am honest the news about Gaye going whilst in the hospice is still to frsh in my mind .But I have said I will go after radiotherapy if I need to The pain will or should reduce quite…[Read more]

Hi everyone perfect timing by the BBC, they are running a series on BBC4 called The Story of British Pathe showing lots of the pathe nwes films and outlining some of the background Perfect for bringing back all sorts of memories for us oldies!! love Bridget x

Well think I have got it now–eventually ! I will follow Gills word with —-fireman. So man is the next lot Bridget x

Hi Paul Im Sue carer for my husband Michael, hes had MM for 15years 45 when diagnosed, hes now on a clinical trial for Bendamustine.
We have always taken one day at a time, and that seems to have worked for us

Good Luck with the trial

Sue

Hi Min so sorry Peter is still in the wars, hope they find out what it is soon. Sounds a bit like C-dif.
Michael picked that up last time he was in hospital

Best Wishes
Sue x

Hi Liz good to hear Kevin is doing well after his sct . It sounds as if Lady Luck gave a helping hand along the way , especially as they werent considering mm whilst looking for anaemia Heres to lots of luck and a very long remission love Bridget x

Dear Dai and Janet have a wonderful holiday If anyone deservrs it you do Hope the red stuff does the trick nd keeps any nasty bugs away love Bridget x

Today, I had a phone call from Peter to rush in with some clean PJs he has dreadfull diarrhoea and is permanently atteached to a drip of some kind. He has a temperature which fluctuates between 39.6 and 38.1.
Poor little pixie is on oxeygen and going to the loo is such a performance dragging that bleeding drip behind him after unplugging it and…[Read more]

FIZZ FIZZ FIZZ
Are these people absolutely stupid. don't they realise the reason slim is attending hospital is because he is unwell
Time to throw in the hand grenade methinks.
couldnt organise a Pee up in a Brewery comes to mind.
I think you need to take the camper van and park on double yellows for 3 hours in protest eve
Cant you persuade…[Read more]

Hi Chelle So sorry youre hubby is having such a bad time,I know how helpless you must feel

Big hugs to you both

Sue

Hi Debs so sorry to hear about Velcade, Michael had a terrible time with Velcade only had 3 cycles as it caused terrible PN in his feet and lower legs. He stared on gabopentin but the pain clinic have put him on high dose pregablin he also takes codene 3 times a day. He says some days are better than others but at night finds it unbearable. He has…[Read more]

Hi Gina So sorry to hear Velcade has not worked for your mum, it is the only treatment Michael has had that didnt work for him, and also caused him lots of problems including PN. He took Revlimd after that with a good result

Best Wishes Sue

Time for an update everyone it is nice to read items that are not depressing so a little light relief and please feel free to edit your self if it is out of date