Hi Cathy,
I am a carer too, never said this before but I have two years experience of it! I know I would rather not be here, but I wish I had dipped my toe in the water earlier so to speak as the isolation of having a husband with one of the rarer cancers is mind numbing.
Our nurse specialist was the only person we could refer to at the outset,…[Read more]

Hi Annette its good to hear from you and no you were not at all boring Great results from your treatment plan and it certainly sounds as if its made a big improvement in your life I think the fatigue is hard to avoid , it either comes with mm or with the drugs we take , I know I have become a champion cat napper Heres to you staying well for many…[Read more]

Hi Sue thats wonderful to hear you are still in remission 2.5 years on and for many more years yet hopefully. I know what you mean about living with the uncertainty of myeloma but I suppose all we can do is live each day to the full and enjoy every moment As you say never give up Heres to staying well love Bridget x

Eve
During one of our heart to hearts, Peter asked me if I was ill?
Whilst I am not I am extremely tired and had made an appintment with one of the older female GPs in our practice no appointments unitl 1st week in september !!!!!!!as I am reaching the point where I need some pills to pop so to speak, feeling tearful and dreading the…[Read more]

Hi Susan thankyou for your kind words.I have stopped ranting now, and feel much better for it, and waiting for my clinic appointment to know what the plan of action is How are you feeling? Are you still in remission? love Bridgetx

Hi Cathy welcome to our merry band of people from all walks of life! I am the pateint and my partner is Jeff, I dont like using the word carer, we are in this myeloma journey together There are so many lovely people on here who can help when you need it and the helpline is brilliant too. I was diagnosed 5 years ago and I can remember the fear and…[Read more]

I went to a leaving do last week. For an old workmate who had met at Training school in 1970
There were equal numbers of old and retired and new and serving colleagues.
Without exception all the 'old' people asked how Peter was, One young person asked too and another said Im sorry MIn Im frightened to ask how peter is in case it upsets you or…[Read more]

Hi Eve I may be able to answer part of your query Blood tests give overall readings but bone marrow can form little pockets or cumps of myeloma. If the sample is taken slightly to the left or right for instance the result could be much lower In the beginning my paraprotein readings seemed to accurately reflect what was going on butafter a short…[Read more]

Got to have my two penorth as Peter has Kappa light chain too
This is getting complicated but I may be able to shed some light on the figures.
Only because I dug out some results form the time Peter was 1st diagnosed. and was awaiting his transplant and They are from Birmingham University too.
1column Kappa MG/L…[Read more]

Hi Eve
Peter did 5 or 6 cycles of Velcade. Getting two DVT s as a result after the second injection.
Once he was on Tinsaparin. (clot buster) he was in no danger from the velcade as the drug is taken for 6months as a prophylactic to prevent any further clots that the velcade caused. His lungs were never checked again other than with a…[Read more]

Thankyou so much Debs and Lorraine it never ceases to amaze me just how lovely you all are When this bloody illness throws c**p at us a message on here can make so much difference lots of love Bridget x

Hi Min as awful as it is for Peter to be away from home , and you I am sure you are right about him needing to be there I do understand how he feels about not being in control and its always worse when you are feeling c**p Hopefully this depression will allow him to be more honest with the professionals and let him build a better relationship with…[Read more]

the day certainly ended better than it began at 2am.
He is esconsed in his single room with en suite so Score 1 point
He is responding to the iv anti biotics Score 2 points
He had a long talk and cry with the lead nurse Score 3 points
She is arranging for a professional to talk to him about his concerns more points
He…[Read more]

Haha Mavis no hard stuff for me I am afraid , today I just decided life is too short to be gloomy all the time and have been in a very silly mood all day! I hope you have had a good day too love Bridgetx

Hi Dai your answer gave me a good laugh thanks, Of course the simple answer is I am just barking mad!!Tee-hee Mind you morphine is the stuff of dreams or so they said love Bridget x

As it happens events overtook us, Peter started with a temp at 2 am and at 4 he would not let me ring the hospital. at 6am it was 39.3 and we had a blazing row, followed by me walking the dog.During which I rang the ward came back gave him paracetamol.
We attended early for his appointment and he was told he was staying in had a hissy fit but…[Read more]

Hi CN thankyou for this it certainly sounds promising and shows you shouldnt ignore things just because of their previous application Heres hoping it doesnt take as long 10 years to reach patients . Take care love Bridget x

Good Morning Gaye if you are popping in this might make you smile ! Last night I had a restless night full of strange and very vivid dreams Guess what you turned up in one! I dreamt that you were looking out onto a lovely garden from your room But each shrub and tree wasblossoming with bras of all shapes sizes and colours !! You and I then had a…[Read more]

Hi Eve thanks for that made me chuckle ! That woman probably didnt even realise what she had said!! As long as we can keep laughing we will be ok love Bridget x