Yippee ! There is nothing like a good day at clinic to lift your spirits Even better when you manage to get out of there in record time!! Your post made me smile becauseI think we are all probably the same in being cheered up by something as simple as not hanging around clinic for hours on end !! Enjoy the breakand by the time the next cycle…[Read more]

Hi Min how crazy to expect Pter to make an arduous journey like that let alone the risk of others bugs etc Having only recently seen how much authority the Macmillan nurses have I agree they probably have more chance of finding a solution thats best for Peter It does seem unfair that those who shout loudest get the best care but thank goodness…[Read more]

Dear Sarah it shows how many people cared about Gordon to have such a good turnout , it must be a help for you to know that . I bet Gordon would be pleased his red tractor is sitting idleand I am sure he watches over your son. What a wonderful family you have Sarah , to raise such a fantastic amount of money , especially as it must have been a…[Read more]

Hello Sarah,
Its so nice to hear from you, I know its the DS who will do the work but I just felt I needed the Macmillan to stick the boot in and make it happen.
They seem to have so much clout and can shout and be heard where we would go round the houses and get nowhere.
She was excellent at getting what we wanted 2 years ago when Peter…[Read more]

Hi Gina good to hear your mum is feeling better It is so frustrating to be stuck in hospital when you start to feel better but I am sure she realises hospital is the best place for now .I hope the results were good its about time your mum had some good news love to you both Bridget x

Hi Nettie, Jo and Dai I dont know for sure what comes next as clinic isnt until next week , hopefully I will have had the ct scan by then . Jo its funny but I had completely forgotten about Thalidomide and as I havent had it before it may well be my next treatment either on its own or with something else . I am assuming that as Revlimid hasnt…[Read more]

Thankyou what would I do without my lovely cyber friends to keep me going Sarah thank you so much for your post I have been thinking of you this week . Dai it is definitely a myeloma tumour , the mri showed an increase in myeloma apart from the tumour . I think the plan may be radiotherapy , hence the ct scan to get precise measurements, possibly…[Read more]

Oh Bridget
Im so sorry to hear this news what a bug ger . and the rest.
Apparently its a little knows scientific fact that swearing is effective. what at i cant remember due to altziemers !
No one knows your body better than you and your instincts are correct so make sure you always listen to them.
i dont know what the plan will be for…[Read more]

Hi Helen
Picked him up as 1-30pm he has been asleep in bed since, having had no sleep in there so dont expect him to apear much before am tommorow. Back on Friday for bloods and GCSF at 36 and again on Sunday to ward 33 so if you still in then will call on you.Hope its going well.
Min

Great news Jet !! There really is no place like home and a spell in hospital certainly makes you appreciate it all the more . I hope your throat heals quickly , it is horrible when you cant eat or drink Dont forget take it slow when you get home ! love Bridget x

Hi Dai,
Whilst I wait for the phone call to go collect Peter, I remembered that when he had his back op last week he had to wear the compression socks( delightful) and the nurses gave him a plastic bag to put on his foot and ankle which allowed the socks to slip on quite easily.
Hope the swelling is still receeding and the velcade side effects…[Read more]

Hi Min I hope everything is going ok so far How disappointing that they dont have an isolation room for Peter , I would have thought that was the highest priority for sct patients I agree with Mavis its a good job Peter has you to watch out for him , but it saddens me that you should have that extra burden at a time when all you want is to help…[Read more]

Hi Eve I just read your post and am now hopping mad , alright I am on a dex comedown too!! How can a nurse come out with such a c**p comment about the PICC line and really what is her opinionin the scheme of things!!! I thank goodness the team at UCH look at my overall welfare first and foremost , whether it is side-effects or the extreme…[Read more]

Hi Eve just a quick one.
Get him to take the Dex 1st thing in the morning before he goes to the unit, It might have worn off by bed time!
love
MIn

Hi Helen
He is in 33, gets his stem cells back at about 9-30am should be going home by 11 ! my daughter and he have both asked for him to stay in but he is in a 4 man room with emergency leukemia admisssions so it is probably safer for him to be at home. Not at all happy about having to return to 36 for bloods as there are often a lot of sick…[Read more]

Hi Eve well at least you have a plan now and the waiting is over I always find waiting makes me more anxious Velcade is a great drug and works well for a lot of people The first time I was on it constipation was a big problem but the dose was lowered and I took 3 forms of laxative every day Unfortunately the second time I was on Velcade it was…[Read more]

Good morning Ted I hope you have a wonderful birthday celebrating !! I think it doesnt matter how old we are we all want to have the best we can out of life! The trouble with myeloma is very few doctors who havent treated myeloma patients will have come across it and they read up on the bare facts without realising all the different elements to…[Read more]

Hi Keith good to hear you are home where you belong and you conquered another obstacle with style!! Your wife and family must be pleased and relieved to see you getting better too Enjoy the lovely sea air just dont overdo things this is one time in your life when it is better to ignore any chores or things you have been putting off , they will…[Read more]