Hi Meike
My husband had a balloon kyphoplasty on Friday last, this is the second time he has had one but on this occasion he is suffering from more 'discomfort' mostly in his ribs but he says its muscle pain.
Probably from being thrown well not exactly thrown but you know what I mean! over from his back to his tummy for the op.
When we were…[Read more]

Dear Dai you have had the rottenest luck with Velcade , no wonder its getting you down! I d hope your leg and ankle continue to shrink being unable to get about as you normally do is so frustrating Over the last 5 years and countless treatments there have been several times when I had thought a problem was solved following logical thought…[Read more]

Hi Craig,
I am just a carer of a MM sufferer who in 2 short years has undergone CDT therapy followed by a stem cell transplant and more recently a relapse with velcade and revlamid therapies.
Not being the patient I don't feel qualified, but i think there are a good many people who would love to hear more and have more input and indeed…[Read more]

Hi Roz wow the garden is lovely you must be very pleased with it The bench is so unusual did you have it made? You will be able to enjoy sitting out there and I am sure Micahael will be right there with you Hope you are doing okay love Bridget x

Hi Roz
It all looks superb, someone has put a lot of hard work in and you have obviously put a lot of thought into it.
Low maintenance in order to manage it. Bring on the Birds
I love your garden bench, Michael will be watching you sitting there, and possibly sitting beside you silently.
Love MIn

HiHelen good luck with your sct tomorrow . It is definitely worth doing and hopefully you will get a long period of remission and no heavy treatment ( thats the best part!!) I am sure you are well organised but just a thought take your own cup or mug with you When you are feeling a bit queasy tea in a plastic cup just makes it worse !! I hope you…[Read more]

Hi So pleased to hear Peter is doing ok. How are you? I think every hospital should have a bed for cares, after my experience with hospital this week, a couple of hours to destress, have a sandwich cup of tea (or whatever)and a nap. Then we would be refreshed to start all over again!

Good luck for Monday
Suex

Hi All Thank you allfor your kind replys. Michael still in hospital but the antibiotics seem to be working, they seem to think its because they caught the infection in its early stages. After a chest x ray the problem seems to be with a shadow on one of his lungs.

Thanks again
Sue x

Dear Gaye How lovely it is to hear from you. I am sorry to hear you have been having such a bad time. I always talk to Michael about you ,and your post has moved us both. We both respect your decision to stop treatment, it takes a very brave lady to do that.
God Bless you Gaye and thank you for all the love and support you have shown to myself…[Read more]

Hi Ted welcome to the crazy gang!!Seriously you couldnt find a better place for support, advice or just a place to vent your worst fears There are lots of lovely people who are at various stages of the myeloma journey Its brilliant to hear you havent needed any treatment yet whilst we all get anxious on clinic days just try and enjoy these…[Read more]

Dear Gaye you have been in my thoughts a lot lately and it is lovely to hear from you Not so lovely to hear you have had a rough time though. I can understand your decision to stop treatment completely Initially we are all for fighting the fight but these treatments that give us extra time take their toll, mentally and physically. I realised a…[Read more]

Nice one Helen, Mine will be bacon and tomato! See u monday
Peter is sore but sleeping, Im off to the shops for some treats.
Min

I bet Stephen is relieved to be able to move about in bed again. Hopefully this is just the start of another new beginning for you both. Can you escape to France now?
peter is following on behind you Stephen. Again.
When I joined this site you were writing his SCT blog and I was in awe of what was to come, but found it very useful as a means…[Read more]

Dear Susanah,
A very worrying time for you, and tiring too.
I hope Michael is back in his home with you very soon and feeling much better.
Love Min

Dear Gaye,
A very difficult choice to make but I respect your decision and feel very humble that you can share your thoughts with us.
I am pleased to be able to hear from you again as I was concerned as to how you are.
Thank you for all the wise moments you have shared with us.
I visited a hospice last week for the first time and was…[Read more]

BRILLIANT. very well done.
Min

Hi Gina your poor mum is really having a tough time lately it doesnt seem fair. I hope they get the answers they need from the tests very soon and they can then give her the treatment she needs. She is bound to feel down but hopefully her mood will pick up soon , she seems like a very strong minded lady and I cant imagine she will stay down for…[Read more]

Hi Just thought Id update you on Michael, he was admitted to hospital today, I rang the trial team at 9 am this morning as he had a temp of 39 and was shaking, they told us to report to the day centre which we did. After a very long day they found him a bed at 6pm i returned home at 8.30 this evening Michael is neutrpenic and has an infection…[Read more]

Wow what great photos it would have been such a shame if they had remained unseen you are so very talented!!Thankyou for sharing them with us and I am sure the exhibition will be a huge success best wishes Bridget x