Hi Gina sorry to hear your mum is still poorly but its amazing sometimes the difference a few days can make Paraproteins are coming down nicely and this should continue even if they halve the Velcade. I too thought anti-inflammatories were not good for us. Good luck and hope your mum feels better this week love Bridget x

Hi Pam so sorry to hear your dad has passed away . A peaceful end is all we want best wishes Bridget

Hi Mary lovely to hear from you How brave you are to do a sky-dive I cant even stand on some steps!! Good luck with it I bet your dad would be very proud of you Have a wonderful tile in Ireland and although wont be there physially he will be there in your hearts and memories so raise that glass for him love Bridget x

Hi Dai what a nuisance but thank goodness they did identify it in the end. I really dont envy you the stocking and injection routine , just remember not to rub your belly when it stings cos thats what makes it bruise I only found out after several days and my stomach was one big bruise!! love Bridget x ps it will save Janet going to the gym too as…[Read more]

Dear Pam I am sorry your dad did not have longer with you, but as Eve said he was spared having to go through treatment which would have been hard for him . He will always be with youso treasure your memories Take care Bridget

Dai,
I find it quite interesting that you have seen a variety of Dr's from the time you 1st decided that you needed something done about a potential DVT, but not one of them has sufficient clout or nouse or ahem superiority, to insist that the scan is done NOW . Peter had proceedure cant remember what it was, may have been an xray which showed…[Read more]

Hi Helen I hope your mums doctors will help you feel less anxious after her appointment today Unfortunately once myeloma appears it does change things , especially in the beginning when everything is new and scary. I promise you it really does get easier as you see your mum coping with various drugs and you start to know the names of all the…[Read more]

This such a great idea to ask for our input on technical services .I am not up to it though mores the pity , the number of catnips I need during the day at the moment would be bound to see me fall asleep mid sentence !! I hope someone more able can do it love Bridget aka Nodding Nelly

Hello Craig
I would like to see more regular testing to prevent some patients embarking and continuing on drug therapies that are not working but they are being continued just in case!
the present culture of one size fits all is obviously not the way. there are too many types of MM for everyone respond to the drugs that nice tell us we are…[Read more]

Hi Helen I am not sure I am going to be much help on this one What I do know though is that the very toxic medicines we take as treatment can be harmful to liver and kidneys as they try to flush it out It may be your mum needs a short break to give her liver time to recover , I would imagine they are being very cautious and doing a scan will…[Read more]

Dear Sarah Another waste of a life to this B—– illness my heart goes out to you and your family

All my love
Sue

Dear Sarah

Those we love don?t go away, They walk beside us every day, Unseen, unheard, but always near, Still loved, still missed and very dear.

My heartfelt sympathy for this very sad time, for you and your family
Love Min xx

Dear Sarah there are no words to express how sad I am to hear Gordon has lost the battle against this bloody awful illness . Both of you faced myeloma with such positivity , strength and humour it just doesnt seem fair .I am sure you will use those qualities to get through the dark days ahead . I hope you will feel able to post from time to time…[Read more]

Hi Dai it still shocks me just how long you have been kept waiting for a potentially life-saving procedure that takes minutes to do !! I think Eve may have a point about publicity if only to highlight a very serious problem in the dire lack of resources in this area On the other hand as you said until now you have not had any complaints about…[Read more]

Krikey Keith,
That was quick, I thought I was going to be popping in to see you in FRH. Does this mean if you become ill, you will now go to Stockton? not Freeman?
Whatever I hope its pretty uneventful, though inevitably you will be feeling proper poorly at some point.
Let us know how your doing if you can get your head up off the pillow…[Read more]

Hi Keith So pleased everything is going well

Good Luck
Sue

Hi Sarah Not posted for a while, I am so sorry to read Gordon is so poorly
you must feel numb, my heart goes out to you.

Take care of yourself
Thinking of you both
Sue

Hi Jet good to hear things are going well , I never doubted your positivity would get you through it without too many problems!! Debs is home , feeling rough but at least she is with her family which helps a lot . Remember to try not to overdo it and give in when your body needs a rest love Bridget

Dear Sarah and Gordon thinking of you both love Bridget x

Hi Peggy good to hear things are going well , long may it continue ! love Bridget