Hi Laura,
You must feel abandoned not hearing from us, sorry I missed your post.
As a few days have passed since you posted I imagine your Dad has passed the first hurdle with his medication and the dex effect has settled down a bit.
It takes a while when you 1st start Thalidomide to reach a comfortable level and as your Dad responds to All…[Read more]

Morning Ivan,
As a wife of an mm sufferer I can tell you how it feels to be on the other side of this mm problem. It may help put it into some perspective
Initially [u]Irrational[/u] shock, Fear, horror. Anger. The fear was of being left alone, horror that I had little or no knowledge of MM or indeed cancer. Anger that no one had found a…[Read more]

Hi Keith good to hear that the first part is out of the way without any problems. I bet it is good to be home , even if you do have to go back . I am sure you will sail through the next stage too and be home again very soon Take it easy and good luck love Bridget

Welcome aboard Lesley,
I hope you will find yourself popping in from time to time, your post went almost unnoticed, but let me take the opportunity to welcome you to the best place on the webb for mm sufferers in the UK.
Hopefully we can lend an ear to you from time to time or listen while you have a rant.. Dex makes you do that, even when you…[Read more]

Dear Gina,
I am sorry I am not familiar with you Mums problems and hope she can begin to feel well soon. She obviously has many health concerns and it goes without saying that you must be worried about her.
This weather hot and humid is not good for anyone with a heart problem, and the sooner it cools down a little the better for those who…[Read more]

Hi Dear friends I too have got so much support from joining this site It took me ages to look it up because I always said I wasnt a joiner-in, but it was the best thing I could have done My lovely cyber friends give me advice , support and make me giggle ( which is just as important!) So I think of you all as my alternate family , I admire your…[Read more]

Blyth power stacks in the background, ,but the only beach you an walk a dog or in our case 3!
Will have to ask Catherine for an introduction. Hope you get the lovely Scottish Dr Susan? for your cannula, she is an expert, other one UGH UGH, blood everywhere.
Before we met her a few weeks ago, Peter was going to sneak into the day unit and…[Read more]

Hi Helen,
We spent Tuesday at the Freeman and the RVI Peter had his workup for SCT yesterday at the Freeman. And it will be on the 15th(I Take it the Newcastle you refer to is on Tyne not under Lyme!)
Before that he is in the RVI for his Kyphoplasty (12th)
He was told that the protocol has changed a little since his 1st SCT but again he was…[Read more]

Hi David
The advice Peter got from the kidney specialist he was under before his MM diagnosis was any fluid was better than non.
A little while ago I watched one of those Doctors on the TV Michaell Mosley. think it was a one show item
The item was about the drink x amount of water a day theory. He divided a group of people and tested them…[Read more]

Hi Helen I am glad your mum phoned the ward , I used to hesitate about phoning for advice but then I quickly realised there is no point suffering when there is usually a solution to be had . I was diagnosed 5 years ago after a year of awful back pain. Eventually I was diagnosed and by that time 3 vertebrae were destroyed, I then had a spinal…[Read more]

Hi Eve and whoever else is out there in cyberspace.
Its rather sad that it has taken a dreadful disease to bring us all together, but without it, we would be blissfully unaware that there is always someone out there who can chivvy us along when we are down, sympathise when things are not going as you would like them to, or just lend an ear for…[Read more]

Hi Helen sorry to hear your mum is having a tough time , hopefully things will improve soon , it can take a few weeks on Revlimid before things get easier You are probably right about Dex causing the shakes , it might be worth talking to the doctor about spreading the dose out , I now take mine every Monday for 4 weeks rather than for 4…[Read more]

Dear Sarah my heart is breaking for you , life is just s–t sometimes. Gordon must be pleased to going home and spending time with you all , he must be sick of hospital. You will find the strength you need Sarah you are an amazing woman Sending hugs and love but I wish there was something more to send love Bridget x

Oooh Dai thats so exciting I cant wait to hear how you get on !! I have looked at those ads longingly before but I couldnt find out if they were suitable for people with varicose veins ? I hope it gives you some relief soon , its worth every penny if it does Looking forward to the next instalment love Bridget x

Thank you all for lovely replies .Min if I could send Peter a bit of my weight I would gladly do so but I am sure with you in charge he will get his stregth back before too long!! Sarah I hope Gordon has had another good day , still got fingers crossed for you . Mavis I have to confess I did have a peek at a couple of my favourite dresses tonight…[Read more]

Hi Ozzy just to add to Jos point about being careful re any persistent leg or hip pain and high doses of steroids In my case I had to have a hip replacement a few months after my sct as the steroids had completely destroyed the joint in just a few months So if your hips or legs get worse make sure your doctor knows about it and they can check with…[Read more]

Hi Helen,
He is fine thank you and looking forward to getting the next bit of this journey over and done with.
I know how it is with food that has been prepared with love and then rejected.
Once your mum has some anti sickness medication she will be able to eat. but suggest your dad asks her what she wants… then serves it on a tea plate.…[Read more]

Sarah
I am so sorry, what can I say ? you are absolutely correct life is so bludy unfair. I am lost for words but wish you the strength to deal with whatever trials the coming days hold for you and your family.
The important thing is Gordon is going to be surrounded by love and in familar surroundings. Praying for a miracle for you
Love Min

Hi Helen
When my husband was on Revlamid he had the shakes and poor appetite and s and d.
She needs to tell the trial staff of these things and they can give her medication for the s and d and perhaps reduce the dose of the Rev for a while. Whilst these things are know side effects that does not mean you have to SUFFER them there is medication…[Read more]