Hi Angelheart so sorry your post got lost , thank goodness for Dais eagle eyes!! You must be overwhelmed after being given the diagnosis and it is terrible that there was no-one for you to talk to Have you tried phoning thehelp-line on this site , they are wonderful and will be able to answer a lot of your questions I am sure Good luck and please…[Read more]

Hello Jo,
It comes from having been a policewoman and writing statements! Old habits die hard.
As for Peter he is sleeping a lot, as eve suggests probably has acid reflux. Feels like sh*** lost loads of weight. Weak as a kitten …. Cant interest him in most food due to the indigestion thing, although he is hungry. He had no adverse side…[Read more]

Hi Heath,
I was really interested in your post, and it has left me needing to ask more questions of the healthcare professionals. Before my husband started the treatment he is currently on we were called in by the consultant who told us Peter had plasma cells in his blood. I did not understand what this meant and when asked I was told it was…[Read more]

Hi Jane and welcome,
Im a carer for Peter who is currently taking Thalidomide for the second time after break for a transplant and velcade and revlamide. It worked wonderfully the 1st time he was on it as a 1st line treatment along with dex.At that time it was discovered that he had crushed vertebrae too causing the hunched back or kyphosis as…[Read more]

Eve when all else fails, buy some suppositories from the chemist. If they fail too see the Dr!
They are just glycerin and something or other but they worked on Peter after a mammoth 4 days and lots of pain.
Love MIn

Hi Norman
Try this one… http://www.insurancewith.com
. I used it in April and got a quote down to £130 for both of us to Cyprus from nearly two thousand with other companies. Peter was on Revlamid at the time. They call it a Maintenance therapy drug for insurance purposes!
The woman who established the company had breast cancer and wanted a…[Read more]

You have been busy Dai, what a shame and how did you cope with the embarrassment.
Nothing like a good clear out to give you an appetite.
Peter was the exact opposite on Velcade and had the runs constantly needed to take tablets for it it was so bad.
Just re enforces the fact that your all different in how you react to the drugs. But now…[Read more]

Ok Today
Two pints of blood please. Don't mind if I do. (Says Peter) Actualy it was two units not pints
He was feeling lousy today had clinic…. light chains from last wednesday Five thousand and something. Didn't hear the rest just happy with that. that was 9-30am we actualy got seen quick for a change. The day ward now that was different…[Read more]

Haha Long Live Movicol !! It is a lesson I learnt fairly early on Dai as I am on large doses of morphine as well But oh the joy of success is a wonderful feeling and to have working taste buds too!! You must be in seventh heaven long may it last!!! love Bridget x

We were at the day unit today at 9-30am.
He has a mild infection of some kind, don't know yet what it is but they sent bloods off for a culture.
His WBC is down to 0.47 neutrophils 0.01 platelets 5. He was given a bag of platelets a new kind of GCSF injection and a box of strong anti biotics. He fought of the suggestion to give him two bags of…[Read more]

Hi Min I hope Peter is not feeling so rough today . I can understand Peter wanting to be at home , especially when he is feeling lousy, but he must know by now that you know where is the best place to get better Silly boy !! He must have forgotten who is boss love Bridget x

Sunday was not a good day, he had a long lie in and woke up with a pain in his tummy, now thinks he has a peptic ulcer, lots of belching and heartburn and indigestion..
Following which he had lots of nose bleeds but stopped when he lay down.Yesterday he had swollen legs ( not today though) Very very tired, felt very cold and had an ever so…[Read more]

So sorry Bridget,
My thoughts are with you and your family at this sad time
Love Min.

Thankyou everyone your hugs and kind thoughts are very much appreciated. My lovely father-in-law slipped away in the early hours of this morning whilst sleeping He didnt make it home sadly but at least his wife was able to be with him all the time and children and grandchildren were able to say goodbye too My in-laws met when they were 15 and I…[Read more]

Thankyou everyone it helps a lot not to feel alone The good news this morning is he is awake and talking and has even had a cup of tea!! I know this may not mean any change in the long run but just shows how strong a character he is My mother-in-law stayed with him last night but as he was so much better this morning she has felt able to pop home…[Read more]

Good Find Jet, very very interesting. Thanks for that. How are you doing these days…Must be getting near to transplant time? Hope its all going in the right direction for you
Min

Hi Renee'
It is an awful shock to get an MM diagnosis. Particularly when they accompany the diagnosis with the fact they cant cure it. BUT they an treat it and there are lots of things to be taken to get it under control. Don't worry about the quantity of tablets they all work in synergy with one another to do what is needed to knock the cancer…[Read more]

Hi Jet thankyou its good to see whats happening out there ! love Bridget x

Hi Dai I think its a brilliant idea and thankyou for running with it Yes you are worth it and as you say THINK BIG and baby steps will get the job done love Bridget x ps I have no artistic talent but I could be a cloakroom chic !!