Hi Liz,
I concur with Jet and the professionals are always the place to go for pain.
As an afterthought. If hubby has had further injections of GCSF after his SCT.I know Peter had several to get some 'numbers' raised and had forgotten the pain that the injections bring about; could it be the same pain that he got when he had the GCSF for his…[Read more]

Hi again Ali,
You just concentrate on yourselves for the moment and when your not quite so stressed Im sure you will be able to contribute in the same way all of us were when we were in your position.
When they get to the cause of the problems with Guys movements and mobility they will do whatever is needed to make him as comfortable and…[Read more]

Hi Gina the fact that there is no sign of anything in your mums bm is great , I think this is a more important marker than pp levels which can fluctuate Chest infections can leave you exhausted for ages and I think the power failures is very apt, I can now fall asleep at the drop of a hat during the day!! If the docs arent too worried at this…[Read more]

Hi Ali sorry to hear Guy is having such a tough time but hang in there There are various treatments to help with the bone damage, I have extensive bone damage everywhere except my left arm and left thigh They may give uy a drug called Parmidronate or Zometa which helps strengthen the bones and relieve pain , this can have an amazing effect quite…[Read more]

Dear Dai,
You have a gift ……………………knowing exactly what to say……………………………………. and exactly when to say it and I for one am very grateful that you have said what I would have liked to say but didn't know how.
MIn:-)

Dai as always you have found the beautiful words to say what so many of us would like to . I hereby nominate you as our resident wordsmith, I would have said poet laureate but I think someone else got that gig love Bridget x

Hi Eve brilliant news I am so glad Slim is home where he belongs . Now he can start to get better and you can relax knowing he is safe with you looking after him Dont wear yourself out though , make time for you as well love Bridget x

Absolutly flipping brilliant news.
Brightened my day after reading the distressing news from some of our friends. Just what was needed Dai
love Min.
PS lambton worm pronounced warm in Geordie land

Brilliant News Bridget.
What a relief. I am so pleased for you.
Those worries in the middle of a dark night always frighten you half to death.
Sunshine in the morning is a great leveller. Perhaps when you get some new pain killers you can carry on where you left off with the spring cleaning.LOL Just don't do more than your body tells you.…[Read more]

Hi Everyone just thought I would share my good news After discussing me and reviewing my mri images my nurse rang to tell me there is no evidence of any new activity or lesions !! I must admit that is a huge reief I had been very anxious the beast was on the way back!! So now they are referring me to the palliative care team to change my pain…[Read more]

Hi Dai I am so glad you showed that critter who is boss!!! Its amazing how quickly these things leave when faced with a nice dose of poison !! You could always buy a chest wig Dai haha love Bridget x

Hi Ali welcome to you and Guy as others have said we are all here for each other so if you need answers ask and if you just need to offload when things get too much this is the place to do it! It really will get easier as Guys treatment gets underway and you will get some normality back in your life before too long .I hope Guy gets home soon love Bridget x

A very warm welcome to you Sally and of course Guy. Please feel comfortable in our unique little 'club'
Its very comforting to chat -even if it is on line to someone who understands how you feel.
Especial in the small hours, but mornings make things look soooo much better.
I hope Guy does not have to spend too long in hospital, and when he…[Read more]

Dear Susan Sorry to hear about Kevin, my husband Michael and i followed his posts on the old sight, he was such a brave man

God Bless You
Sue

Dear Tina I was so sorry to here about Patrick, you must feel totally empty and lost, i really cant imagine what you are going through my heart goes out to you . Cherish the good times Tina even MM cant take them away

Thinking of you
All my love
Susannah (Sue)

Would have posted sooner but could not access the sightx

Great News David,
NOW get on with you life and enjoy it. I know how every little symptom worries the he**l out of us. But just living a normal life while you have the opportunity has to be the answer.
I have a pain in the neck too…. Its called Peter!
Vasbyte
MIn

Good Morning David what brilliant news to start the week !! You must be so relieved to have got the all clear, now you can relax . I hope the niggle in your neck is just that love Bridget x

Hi Debs.
Dont despair, it was explained to me that when you start on a drug and it works well its because the 'load' is greater for it to deal with. When the 'load' is smaller there is less of a need to Punch it so to speak, so the results slow down. If the result is little and often that is what matters. Think positive thoughts. The beast is…[Read more]

Dear Susan,
Kevin was an inspiration to us all and he spoke often of his fight with the type of transplant he was able to have. I read his story in the Myeloma Matters booklet and he was incredibly brave to have fought so hard for so long. I know you will have many happy memories of your lives together which will bring you the strength to…[Read more]