Hi Kathleen,
I know exactly what you mean.
I have found myself sitting watching the tv with clenched teeth and the muscles in my neck going into spasm. The annoying thing is its not even a programme to get uptight about. Just cannot relax. More recently realise a glass of the hard stuff helps but cant be doing that all day every day so will…[Read more]

Hi Bridget, He had a cough last month when we were on holiday and does do a bit of it when on the 'week off' But all the other side effects which on there own are manageable but when pushed together become a 'bore' Lots of cramp if not enough fluid intake, feeling sick often. Daihhoria frequently with no understanding what has caused it food wise.…[Read more]

Hi Kathlean and Jean no wonder you are tired and on edge I really do think its easier being the one with mm , husbands and wives are the ones who shoulder the burden .I am about to make a sexist remark so all males please close your eyes!! I think as wives and mothers we are used to being in control of our loved illnesses I am sure you know what…[Read more]

Hi Min yes I agree Revlimid makes life very unpredictable doesnt it !!. I cant say its the easiest of drugs to live with and initially I thought it would be less evil than the others. Has Peter got a cough? I think its all the extra musus being produce rather than infection biut it is turning into a really nasty cough which has me gasping for…[Read more]

Bridget I think its the Revlamid…….
There are rarely two days alike for Peter. There is no rhyme or reason as to what he will feel like or when.
Used to be able to know it was a certain stage of his medication but that is no longer the case. Some days he is full of energy and then he goes downhill fast and has to spent the day in bed. No…[Read more]

Morning Dai how true tis is !!There is nothing better than listyening to Howling Wolf or Muddy Water when you are fed up and realise we aint got it so bad!! As for Leonard Cohen thats for the seriously depressed and works just as well love Bridget

Hi Angelina poor John is really having a rotten time but as you say he is in the best place at the moment. I didnt have any diarrhoea when on Velcade , my problem was severe constipation. It was explained to me that velcade affects the nerve endings in the bowel and intestines in the same way it affects fingers and toes, it sounds as if John has…[Read more]

Hi Angelina thankyou for your caring words. I phoned my nurse today and she is going to make sure the mri report is seen this week and will phone me on Friday bless her!! She has also suggested Fentanyl patches for the pain. But its very strange I have had no back ache this afternoon and evening , thank god,all I can think is the weekly steroid…[Read more]

Thankyou everyone your support means such a lot. Wobbly moment over but I am definitely going to ring my nurse tomorrow as this pain is more than can be blamed on dusting unfotunately !! lots of love Bridget x

Hi Dai good luck for tomorrow . I didnt find velcade too bad at all really , no sickness or nausea but constipation was a bit of a problem, best to take laxatives early on love Bridget x

Hi Eve
I hope today had been a little better for you and slim. I am thinking of you both
Min

Hi Dai
When Peter was on velcade in October last year, he was well enough to go to work daily. Only for 3hrs per day but it was more about the social contact. He had no sickness or tiredness, BUT after his 1st injection he became breathlss. It took several weeks to discover that he had developed pulminary embolisms caused by velcade. He had 4…[Read more]

Hi Angelina,
I do believe in the' mumbo jumbo' do you know a number or whatever for stress anxiety.
I am not being patronising, but if there is an equivalent 'Angel Charm" for the terrific amount of stress I am putting myself under I would love to learn more.
Thanks
Min

Dear Gaye yes housework is a perilous business , perhaps its best avoided if only sunshine didnt show all the dust up!! I am less panicked this morning but will definitely ring and tell them to check my mri results sooner rather than later, the pain is exactly like the original which led to diagnosis so I need to know . I am so sorry to hear you…[Read more]

Hi Min good morning the laptop decided to go to sleep last night so I didnt see your reply You are right morning things dont seem so scary but I do need to ring tomorrow as this pain is deinitely more than strain, not much point today Thankyou Min for being there just what I needed someone to point outthe obvious which you cant see yourself in…[Read more]

Hi Bridget
Im awake, sleepless and ready to listen Thats what happens when your retired and don't have to get up for work in the morning……… You know how it is in the middle of the night and everything looks bad? After a good nights sleep everything looks better.
I think you have seriously overdone it with the housework and your body is…[Read more]

DAI
I only just worked out how to play it……….duh. I had several unsuccessful attempts and gave up but when I saw other posts I realised it must work.
It sounds extremely professional and you look incredibly healthy in that profile photo.
Big well done
ps bought Adele 21 today its brill first CD I have bought in years!
Min

Hi Roz you need to click on your name where it comes up on your post thenclick edit profile , this lets you change your e-mail It is such a shame your daughter doesnt visit perhaps she finds it hard not to see her dad in the house Could you suggest meeting her elsewhere perhaps , it might be easier for both of you Hope you have a good weekend…[Read more]

Dear Eve
I feel for you and the frustrating and annoying situation you find yourself in.
1st things 1st go and find the pals (patient liason) department and jump up and down. Make very loud noises and make sure a lot of people are listening.
Make your voice heard in the ward when you see some of the major problems dont worry if the other…[Read more]