Dear Eve its heartbreaking reading your post and the last thing you need when Slim is so ill is having to worry about his basic care. Although Slim is on a general ward surely his own consultant must be responsible for his care!! What sort of response have you had from the consultant or specialist nurse? I found out many years ago that when a…[Read more]

Hi Eve
How is married life now your an old married woman?
I do hope slim is on the mend and out of the 'deep water'. I cant imagine how you have been able to deal with his recent hospital stay.
I am just hoping you too are ok. Its so stressful when your loved ones laid up in hospital, Im sure he is in good hands and or on his way home soon.…[Read more]

Dear Roz lovely to hear from you. Sounds as if you have been busy with yoiur new kitchen etc , I bet its great now its finished. The council are fitting me a new kitchen and bathroom soon , trouble is they are doing both at the same time so the mess will be double!! I hope tomorrow is a day full of lovely memories for you Take care of yourself…[Read more]

Hi Dai thankyou your words are so poignant and moving love Bridget x

Hi Angelina roller coaster it certainly is , I suppose it stops life being boring though!! Like John I lost 3 vertebrae and had surgical reconstruction , walking is difficult some days worse than others As for the pain you just learn to live with a certain level of pain controlling it as best you can. It must be very hard for you with your…[Read more]

Hi Angelina what a tough time you are both going through but reading your post its obvious that you and John are fighters to have got through such a hard time in the beginning Although your husband has mm I am sure your strength has helped him to get back on top and hopefully it wont be long before he is home !It is definitely better to be on…[Read more]

Hi Sharon good luck but you will be well looked after on trial I am sure Try and put it all out of your mind for a few days and do something nice and luxurious! love Bridget x

Hi Liz great to hear Kev is doing well and normality is just around the corner!! Make sure he is careful to cover up in the sun though love Bridget x

Thankyou Amie its very humbling to see the effort all those lovely people go to raise funds , especially the children Bridget

Hi Min yes weird in many ways and probably always have been !! They seem to think the rise in klight chains is significant but to be honest I think they are fuessing really , who knows! What a shame Peter had a few bad days when you were so looking forward to the grandchildren coming. I agree thought the unpredictability is hard to live with , if…[Read more]

Hi Bridget
Weird aye, does that mean your a one off or one of many weirdo's. Just having mm consignes mm sufferers to weird as no body knows what the heck it is!
Im sorry to hear of your rise in light chains; but is that significant if you don't have Light chains? Oh its all so complicated, and don't know if I want to break the public…[Read more]

Dear Eve congratulations to you on your marriage and to Slim for turning a corner!! I hope he makes it out of itu soon . As you say it will take time to get his strength back and he will need that if he restarts chemo . How are you? You must be exhausted I hope someone is giving you some tlc even if its only a nice cuppa when you need it. Onwards…[Read more]

Dear Mary thankyou for your post you really are an amazing woman , full of compassion for others I am so sorry your dad has gone but reading your post helped me understand how important it is to be with loved ones and to hear he was pain free and comfortable and able to talk to you all made me think thats about as good as it gets Sending lots of…[Read more]

Hi Kay yes I think you are right about a new name , that will keep me amused for awhile !!Perhaps others would like to add their suggestions . Kay I am really sorry I havent posted your hat yet , I have the memory of a goldfish , I will post it on Tuesday promise How are you feeling ? Hope you are enjoying the mini summer love Bridget x

very Funny

Hi Min good to hear Peter is feeling better and great that his back pain has eased up too Theres a lot to be said for sunshine, recently I read about a couple who moved to Italy just to get the relief the warmth gave them from their bone pain Not sure I would do so though , far better to take lots of holidays in the sun, I am not so tired all the…[Read more]

Hi Bridget,
Hows it going with Revlamid? Peter is 'feeling ' really good on second week of 4th course. 1st week still washes him out a bit. But once its over he picks up really well. Still very 'snotty' especially at mealtimes and if he hits any cold air. Have to keep him out of the freezer aisle. HIs back has been really good since he…[Read more]

Hi Chris I am so glad to hear you have got the all clear at last!! Bet it was driving you crazy especially with the weather being so nice My chest infection did go but I think there may be another on the way , possibly something to do with loads of mucus and I blame Revlimid Still I dont feel too bad adter the first week of the course now and…[Read more]

Hi I am not sure I can offer any useful advice really but a count of 12 pp is not too high .I am sure your mil doctors will be looking at the right time to offer more treatment, they were probably waiting till after the radiotherapy As far as I know radiotherapy does not affect the paraprotein levels . It might put your minds at rest if you ring…[Read more]