brocho replied to the topic SCT in the forum Treatment 13 years, 7 months ago
Hi Kay Gills post just made me giggle cos when I am on bloody dex I do get a beard ( only a teent one !!) Just thought of an sct advantage of sct thought —- you dont need to deal with hairty legs or anything for months, its brilliant love Bridget x
brocho replied to the topic 30 year engagement in the forum Off topic 13 years, 7 months ago
Hi Eve wow that may well be one of the longest engagements ever!!Congratulations on setting the date, the sun will be shinig and I am sure your daughters wouldnt miss it for the world After all what could be more important than your parents wedding!! Enjoy the planning and all the retail therapy that goes with it too! love Bridget x
brocho replied to the topic London Marathon in the forum General 13 years, 7 months ago
Thanks for the link Jet and a big thankyou to your friend too Wishing him lots of luck and no blisters!!!!! love Bridget x
brocho replied to the topic SCT in the forum Treatment 13 years, 7 months ago
Hi Kay I think my pps were about 14 ,but I am not certain they might have been higher Unfortunately melphalan will definitely cause your hair to go so it would be a good idea to ask for a referral for a wig now If you have a good hairdresser they can style it as you want. I didnt have a wig because I am such an untidy person and I just knew it…[Read more]
brocho replied to the topic One embarrassed daughter in the forum Off topic 13 years, 7 months ago
Hi Gill I understand why It really is a small world though and thank goodness there are lovely people in it !! love Bridget x
brocho replied to the topic One embarrassed daughter in the forum Off topic 13 years, 7 months ago
Good Girl!! She must be very persuasive and what a lovely man too!! love Bridget x
brocho replied to the topic Quick update on kev in the forum Newcomers 13 years, 7 months ago
Hi Liz I hope Kev gets to come home soon it sounds as if he is over the worst so the only way is up now!! Just a word of warning though its not a good idea to sit out in sunshine after an sct , a lot of the drugs they give us advise against it, so make sure Kev covers up in the garden We bought my father-in-law a gazebo so that he was protected…[Read more]
brocho replied to the topic Treatment at Ist relapse in the forum Treatment 13 years, 7 months ago
Hi Tony well you certainly didnt have to rush into treatment which can only be good ! I was on the Myeloma X Trial last year and on the Cyclo arm It was ok , the usual side-effects but manageable However within 3 months I had relapsed again so needed more aggressive treatment and came off it Have you checked out the Myeloma XI Trial , there are a…[Read more]
brocho replied to the topic Vigam IVIG in the forum Treatment 13 years, 7 months ago
Hi Min thankyou for the info and I hope it keeps those bugs at bay love
brocho replied to the topic All going to Plan in the forum Treatment 13 years, 7 months ago
Hi Keith good to hear things are still going well for you. As for the sct well at least it wont be as scary as last time! It does seem as if people are not having to spend so lo long in hospital post transplant these days so thats a bonus!!Keep on keeping on Keith ! love Bridget x
Min replied to the topic Vigam IVIG in the forum Treatment 13 years, 7 months ago
Its human immunogloblulin. Peter was having a few infections tummy bugs etc and taking a long time to shake them off.
We asked if we could go on holiday for or 40th wedding anniversary and the 'man' (consultant) arranged this so we could go away and he not be at risk of infection. I believe its basically a bit of several persons immune system.…[Read more]
brocho replied to the topic Finally Lost The Plot! in the forum Off topic 13 years, 7 months ago
Hi Sarah crikey 230 lambs!That sounds exhausting, I am so impressed .It must be very rewarding though How long have you been farming? I have always admired the hard work it takes to look after livestock but could never see myself managing even before mm , too lazy! I hope Gordon feels better soon love Bridget x
brocho replied to the topic Vigam IVIG in the forum Treatment 13 years, 7 months ago
Hi Min sorry I cant help but I have never heard of it ,what is it for? love Bridgetx
brocho replied to the topic Just got the diagnosis in the forum General 13 years, 7 months ago
Hi Mark hang in there and hopefully they will pump lots of anti-biotics into your dad to get rid of his chest infection. I really hope you get some good news soon As Min said try and stay positive and dont forget we are all here for you Bridget
Min replied to the topic new to discussion in the forum Newcomers 13 years, 7 months ago
Hi Liz and welcome to our unique little club, shame that all of us wish we weren't in this club, but you are amongs friends.
Apart from diagnosis, I think sct time for those of us left to worry about a sufferer of mm is the worst and most worrying. We worry before during and after. Sometimes its not necessary, other times its soooo distressing.…[Read more]
Min started the topic Vigam IVIG. in the forum Treatment 13 years, 7 months ago
Has anyone had bottles of vigam iv? Peter had three bottles on Wednesday, and last night we were almost afloat in bed he sweated that much. Is this normal?
Min replied to the topic Finally Lost The Plot! in the forum Off topic 13 years, 7 months ago
Oh Bridget so like me, I used underarm spray on my hair and went from blonde to white
Min replied to the topic Velcade in the forum Side-effects 13 years, 7 months ago
Dear Gill
I had to laugh because Steven sounds just like Peter, he did the same with his anti sickness tablets. Waits till he is sick then takes them!! so I had a good laugh at your frustration. Don't worry its an attention thing, my man was sweating so much in bed last night I thought we were going to float off, when I woke him to check his…[Read more]
brocho started the topic Finally Lost The Plot!. in the forum Off topic 13 years, 7 months ago
Good Morning on a lovely sunny day! Well mornings are not good for me but I have now surpassed myself for stupidity Because the sun is
shining I am trying to have an extra clean everywhere and today thought the cooker needed tackling After half an hour of scrubbing , which seemed like very hard work I went to put the spray bottle away and…[Read more]
brocho replied to the topic new to discussion in the forum Newcomers 13 years, 7 months ago
Hi Dizzyliz ( love the name!) welcome I am glad you found us. It must be very hard watching someone you love go through a procedure which makes you feel so ill no wonder it has got to you From this point though things do get better , once the blood counts start to rise he will begin to feel better , although it can seem ages before that happens…[Read more]