Eve I know what you mean,
We had a five hour marathon at hospital yesterday, Peter was going for his first ever immunoglobulin IV. Being given so we could go on holiday, I thought it would be like zometa, half an hour tops. Following which I was going to book a holiday
How wrong was I and although it was all arranged and in the fridge had to…[Read more]

Hi Fiona lovely to hear things are going well for your mum Its amazing how things can change in just a short space of time Good luck with your running , I am in awe as even before myeloma I have never been able to run!! Do let us know how you get on and I will look out for you on tv Best wishes to you and your mum love Bridget x

Hi Eve I am glad you feel better after getting that off your chest and thats one of the things thats so good about this site!! I do get frustrated by all the waiting around, the worst time is when you are waiting to go home from hospital and have to wait hours for drugs!! But now I try not to get too annoyed as it just makes me feel worse and…[Read more]

I Clara
I recognise all of those side effects, brought it all back to me, how Peter was when he was on CDT.
Im so pleased to hear your dad is still going to work with all that is going on and not exhausted
The drinking one was the one that did and still does prove the worst one. You can do things to help the other side effects like wear a…[Read more]

I am so sorry for your loss, and understand your anger. I was similarly angry when my husband who had been under a renal consultant, with kidney failure hypercalceimia, crushed vertebra and mega protein in his urine was not diagnosed with MM for over 4months.
She told him to stop drinking milk to prevent hypercalceimia!!!!!! and said if he…[Read more]

Jet,
I would confirm what Debs has said, you figures must be light chains. Ask you specialist if you have Bence Jones MM. Its a slightly different form of MM. Quite a few people including my husband have it. He went from over 8000 down to just indoor 2000 on his first packet of 25mg Revlamid. Second dose was reduced f to 15 due to low blood…[Read more]

Hi Mike and welcome , sounds like you were lucky being picked during tests for diabetes , so many of us have to wait a long time Good luck on the trial , you will be very well looked after just dont hesitate to let them know your side-effects if you get any, doses can always be altered to suit you Heres to your fiftieth , its the new 40 you know…[Read more]

Hi Dai,
I went on the 5th of March to Newcastle one, and had been invited to give a talk from a carers perspective( I hate the term carer I call myself a worrier cos I worry about him) To the 80 guests who attended. I was terrified!
It was an excellent day and well worth attending. The morning is given over to talks by health professionals,…[Read more]

Hi Eve I believe you are right in thinking the dose is determined by our doctors , based on individual circumstances. When I was diagnosed I had a massive tumour from my spine into my ribs therefore I was on 80mg dex twice a day for 3 weeks to reduce the tumour, thankfully I have not neede such large doses since However in both my relapses I…[Read more]

Hi Jet the taste thing happened to me when I first had it Ihad been in hospital for 6 weeks and after my back surgery was on massive doses of dex, 80 mg twice daily, needless to say this made me very greedy!! Some friends were begged to bring me something savourywhich they did bless em!! Well I ate a whole bag of baby bells before they had sat…[Read more]

Poor Lamb,
That means your left to do the house training for the poo pee.
I hope you can get him something to help him feel well soon. These toxic drugs are archaic, if only they could find something kinder to treat the dreaded beast, not Steven Gill, but MM.
Sadly because it is doing combat with a belligerent host it needs to come out…[Read more]

Now Gill
You have me thinking that I might have to try that, being newly retired. Hee Hee
MIn

Hi Jet I am glad you find dex so exhillirating , unfortunately I am the polar opposite Apart from the insomnia I retain fluid and although I was on the same dose as you Ido have a hamster face The last few months being on Rev and Dex have been awful for the first 5 days of the cycle My whole body was painful and tender for days so now I am going…[Read more]

Hi Gill poor Stephen what a bummer!( oops soory bad pun!!). What about anti-sickness injections , might make it a little more bearable love Bridget x

Hi Shirls
Really pleased its all going so well. so I imagine you will be having an additional Birthday now, for the new you! You deserve some fun now but stay out of the big market when you come to Newcastle.
All the best for the new phase of your life and long may it last
luvmin

Hi Gaye you are right I think but its a lot easier to live with it if you arent in pain, I do hope they come up with something soon for you . No you arent alone we have the volume up too , all adds to the atmosphere love Bridget x

Thankyou Gill its good to know somebody else has the same hobby as me !! Tee-Hee love Bridgetx

Hi Bluebird the there are quite a lot of people who had to wait months for a dignosis.In my case it was about a year , during which time 3 vertebrae were destroyed and it was only major reconstructio surgery that prevented me from being paralysed. The trouble is myeloma is a rare cancer and few doctors such as gps and junior hospital doctors will…[Read more]

I am so sorry to hear about your brothers, it must be very hard to accept they arent there. Hang onto all those good memories you have which will be with forever and just take it a day at a time love Bridget

Hi Sarah the last episode is on bbc i-player for a bit yet The new gets good reviews too Roll on autumn love Bridget x