Ann Its possible that they will also give him GCSF injections rather than an transplant as they will force his body to produce extra new immature cells to replace the ones killed with the melphalan. The body makes its own but help is useful.
min

Hi Nigel,
When Peter was on velcade, his bloods were done in house so to speakThe machine and equipment were in the day ward. (State of the art new hospital) and depending on the results depended on what dose if any he got on any given day. He had days when he got half a dose and other days when his platelets were too low for any velcade at all.…[Read more]

Hi Tracey.
Im the one who's husband had/has the nephrotic syndrome before diagnosis with MM. I was concerned to read of fluid restrictions in your post, as Peter has had to drink more than the average in order to get the light chains out of the kidneys. Its the light chains that alters the glomular filtration rate and stops them working making…[Read more]

Dear Gaye that sounds hopeful I cant remember where Mr Malloy works but he is a specialist in myeloma fractures , I think it may be the Royal London though. Apparently when he looked at my x-ray there was a lot of head shaking .He couldnt believe how little of my spine was left!!So surgery would be too dangerous for me but I really hope they can…[Read more]

Dear Gaye it seems so unfair that you are still suffering an unbearable amount of pain despite the rt .I suppose it would be risky repeating the rt but has anyone suggested any other options ? Is surgery possible ? There must be something they can do and I hope they dont keep you hanging on too long Its a good job you are a tough old bird like…[Read more]

Hi Keith Really good news to here that Velcade is working for you

Best Wishes
Sue

Hi Henry My husband was diagnosed at 45years old, that was 15years ago, Hes had 2 SCTs the first lasted 8 years the second about 4

Good Luck
Sue

Hi I too confess to reading the mail but I will say in my defence it is only because its the only free one now!! It was a good story though love Bridget x

Hi Jean that was a good start to my day thankyou As the daughter of an irish woman I have grown up well used to irish humour ! love Bridgetx

A young lady to be very proud of Gill.
I think she deserves a very special hug from her Pop
LuvMIn

Jean have a wonderful time on your holiday, don't worry…… if Frank is not exhausted he must be reasonably well.
Peter used to use diazepam for muscular pain too so hope it makes him comfortable enough to enjoy his holidays. He sounds like a very determined chap and as long as he feels well, don't panic. Enjoy and come back and tell us how…[Read more]

Hi Anne
Sorry to hear your husband is having such a bad time. But I am pleased you found your way to the place where we can offer you support of whatever kind you need. Its a shame that he was not able to respond to anti histamines for the rash, but did he respond well to the Revlamid otherwise? My husband is on his third line treatment too,…[Read more]

Hi Mark sorry to hear your dad is going through a togh time As others have said ringing the myeloma helpline will be helpful for you , they are very knowledgeable should be able to answer your questions The survival rate is a difficult one as we all react diffrently to our illness but I read recently that 4 to 5 years is now expected but of…[Read more]

Hi Gill what a lovely , caring girl your grandaughter is , you must be so proud of her Thankyou for telling us about her sometimes we do need reminding that not all kids are like the ones featured in the daily mail!!love Bridget x

Hi Ozzy welcome to the best support group there is .You have certainly had a very eventful year!Its hrad to say how long before you feel normal again as we are all different In my case it took almost 6 months but I think that was because I had major surgery a few months before my sct What I would advise is not to overdo it , your body will let you…[Read more]

Hi Shirley absoultely brilliant news!!!Long may it last Wont be long before you can put myeloma to the back of your mind and just enjoy life love Bridget x

Hi Ian I was told that any remission after the first one is always shorter. I dont think it makes any difference if you have complete or partial remission. There was a trial going on last year,sorry cant remember what it was called, to look at using velcade before the sct in the hope of getting a longer second remission.I will try and remember to…[Read more]

Hi Eva thank you so much for sharing your wonderful photos, they are lovely Mind you I am also green with envy as China was one of my dreams , still theres time yet just got to win the lottery!! love Bridget x

Eva
You are sooooo lucky, Peters ambition or bucket list is to visit the 'great wall' I would just like to visit China.
I am so envious and your photos are amazing. We once visited schools in Kenya where the children wrote in the sand and they had no paper or pens until they were proficient at the alphabet, we can count ourselves very lucky in…[Read more]