Yes Keith we got good news today, HGB13.3 wbc 4014 plts171 neut still low at 1.67 but double last months. More important a 75% reduction on light chain numbers. Anyone know what MONO is? or does it matter?
I hope your lower dose helps you to cope with the damn treatment, Peters lower dose of Revlamid last time has been beneficial as he is…[Read more]

Had a clinic today 1st one in 4 weeks so finally got the results of the four weeks after 1st packet..
Peters light chains had dropped almost 75% in the 1st month. They are now down to 1918.from over 8000. the neutrophils are still low, but his dosage has gone back up to 25mg after the last lot going down to 15mg.

The bad side effects of…[Read more]

Im sorry your having a tough time Keith, that velcade is just so toxic. Get yourself some good wholesome foods and fruits to counteract the toxicity and drink drink drink drink. to washout the chemo.
Swollen baggy eyes was the first sign of Peters MM which attacked his kidneys 1st
My hubby likes water but just gets sick of it, so I get him…[Read more]

HI and welcome too,
I think the longer your Mum can put off treatment the better for her, the medication for this condition can be quite toxic and the side effects are not always good. But everyone is different
If your mum is fit and well, and enjoying life then putting off medication is the best thing.
Because once she is on the treadmill…[Read more]

Hi Amanda just want to add my welcome to you and your sister , and your mum too of course . I think its brilliant that you and your sister are keen to support your mum ,( I dont like the word carer either!), and I bet she is as proud as punh of both of you . I think Debs made a good point about this time without treatment will give you all time…[Read more]

Hi Min they certainly did!! Mind you doesnt seem that long ago I was out partying till the small hours Hope you have a lovely hang-over free weekend love Bridget x

Happy Hic

Well my 3 daughters got home at 5 am so I yhink its safe to assume they enjoyed Paddys day in the manner of the Irish !!( no offense) x

Hi Gill
One of my girls I was trying to call her by her sex….. Bit*h and it was deemed inappropriate language!lol was a devil to house train and I do sympathise, now the weather is getting better at least you will be able to leave the door open for her!
MIn

Oh Dear Gay,
Don't worry the RT will start working soon, Peter's dose took about 6 weeks to be effective.
Now he takes 50mg of tramadol and 20mg of mst when he needs it. This is for new fractures and has to wait for his Kyphoplasty for a while.
But he is able to function and drive and work(albeit for 3hrs a day) though he is unable to at the…[Read more]

Thankyou Dai that is beautiful , I am totally in awe of your talent love Bridget x

Hi Kath thankyou its good to know it does get better Mind you the painful tenderness lasted the best part of a week this month so fingers crossed next month is better !! love Bridget x

Dear Gaye no wonder you are cheesed off you have been in agony for such a long while now. I do hope the rt starts to relieve it soon . I agree with you about pain relief though it seems to be hit and miss in some areasIn the days fo;;owing my op I was on Oromorph but I wont take that again as I couldnt stay awake longer than 5 mins I have found…[Read more]

Hi Tracy welcome to our world ! I do agree with Min about the information found on some sites , I know on this site the info is relevant and accurate.Have you checked the under 50s as well , there is also another forum for people under 5o which if you are interested there is a link for either Phil or Scotty if you e-mail them they can invite you…[Read more]

Hi Tracy,
Welcome to the MM club, lots of people on here with lots of info or advise if you should need it.
I can well understand your shock, no one is able to receive that kind of diagnosis and not have a million questions. As they have no idea what causes mm you can stop beating yourself up that its something you may have been able to…[Read more]

Hi
As I understand it as explained by my husbands consultant. Revlamid is a drug that you stay on if it works on you. It is not a drug you stop per sae simply because it has worked. It is also a maintenance therapy and as long as it is beneficial your husband will remain on it perhaps in lower doses or in company with another medication like…[Read more]

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x