GillSeaward

  • brocho replied to the topic Big hello one and all in the forum General 14 years, 9 months ago

    Hi Roz lovely to hear from you love Bridget x

  • Hi Tanya glad to hear your dad isnt doing too bad Low platelets and blood counts are typical with these drugs and easily remedied so dont worry .I am so shocked they havent given him proper pain relief nobody should have to put up with painWhen I see my doctors pain relief is the first thing they ask about and others have the same treatment so…[Read more]

  • Min replied to the topic Treatment, at last in the forum Treatment 14 years, 9 months ago

    Hi Clarabell,
    From experience of my husband having the same treatment I think that you will find your dad is going to be 'measured up' so to speak. For that you don't need to attend.
    They will look at the scans and mark his body with a sort of 'tattoo (it washes away in time)
    He will be given a further appointment where they will use the tattoo…[Read more]

  • Hi David you have started something with this game!! My husband is now a total addict who is dtermined to get the maximum score !If only I had paid attention in geography lessons I might have a chance of beating him love Bridget x

  • brocho replied to the topic Treatment, at last in the forum Treatment 14 years, 9 months ago

    Hi Clara I am so glad things have got off to a good start and I hope your dad continues to feel fighting fit for a long time . As long as he doesnt feel he has to keep going through the tired times and rests when he needs to he should do fine It must be a relief for you to see him doing so well love Bridget x

  • Hi Jet interesting topic I must admit its not something I am prepared to take a risk with Nothing I have read so far has convinced me that using herbal remedies alone could deal with cancer , if that were the case it would have been proved beyond doubt a long time ago . Vitamin supplements to deal with by-products of cancer have been useful for…[Read more]

  • brocho replied to the topic Myeloma Infoday in the forum Off topic 14 years, 9 months ago

    Hi Min congratulations you must be walking on air!! I have had to give a few presentations in my work so I know how scary it is , you should be very proud of yourself . I hope to get to an info day soon I could use some inspiration at the moment !!My neutrophils are rock bottom too and I have a blood test Monday to determine whether I can take…[Read more]

  • Min started the topic Myeloma Infoday. in the forum Off topic 14 years, 9 months ago

    Hi Friends
    I went to the Newcastle infoday today and ………………don't know how I managed to do it but I stood up and gave a talk from a carers perspective.
    It was the scariest thing I have ever done. A room full of 80 patients and carers plus professionals.
    I had the worst heart palpitations and dryest mouth ever. I was asked some…[Read more]

  • Jet
    He had very good blood results, no sickness, no mouth problems, and we only lived 20minutes away from the hospital.
    You stay in hospital because, if you have problems they need to ensure that they respond quickly to high temperatures infections etc. But often being in hospital means you can catch hospital acquired infections. Not least of…[Read more]

  • Dear Gaye I am glad you have finished your rt now I hope you start to feel the benefit very soon . I have been feeling a bit blue myself lately and I am hoping the lighter days and spring weather will make us both feel happier . I hope you have a lovely pain free weekend love Bridget x

  • brocho replied to the topic Velcade in the forum Side-effects 14 years, 9 months ago

    Hi Sandra thanks for making me giggle today !!From another oompah-loompah who also has the round face , awful pot belly and stumpy legs !! Shame we dont all live closer we could put on a very authentic production of the show !! Seriously I hope its not getting you down too much sometimes it depresses me more than others( usually when I try to…[Read more]

  • Min replied to the topic Hereditary link???? in the forum General 14 years, 9 months ago

    My husband has myeloma, and his mother had myeloma.
    His mother died before he was diagnosed.
    I know what I think. and given the fact that this is a rare cancer how rare does it then become for mother/ son to suffer the same.
    Both my children have pondered this problem and decided they don't want to find out after talking to their…[Read more]

  • My husband took curcumin as advised by an asian friend following his stem cell transplant. The same friend recommended a tv channel with yoga to follow. He said that people from his country rarely suffer from MM. He did strong exercises instead to get back his lost muscle tone.
    Within 5 months he relapsed.
    I have never been sure if this was…[Read more]

  • Min replied to the topic myeloma X1 trial in the forum General 14 years, 9 months ago

    Hi Eve at the outset of his diagnosis Peter was on a similar quantity of tablets, due to chronic kidney failure, actually called nephrotic syndrome. In addition to all that he had had a heart bypass when he was 52 due to a congenital defect. The massive doses of morphine too for the crushed vertebrae meant he had to have two pill boxes and I had…[Read more]

  • Hi Debs

    My husband Michael takes his Revlimid about 5pm, when he first started he used to take it in the mornings and he was asleep most of the day, hes still very tired but not quite as bad.

    Hi Gaye funny you should mention the Thalidomide and the effect it had on unborn babies, we were in clinic a few months ago and this guy came in with…[Read more]

  • Hi girls this is certainly a hot topic and I agree bras are a painBut now that I am the size of a house it is actually just as uncomfortable to go without, oh for the days when my nickname was ironing-board!! It has added to the image of militant mmers marching in protest –bra-less and hobbling !! love Bridget x

  • Hi and welcome sorry you have had to join us but you have found the right place for info and support It sounds as if you have a good medical team looking after you which helps a lot if you have confidence in them It does get easier as begin treatment and get to know the ins and outs of various treatments but I remember how confused I was initially…[Read more]

  • Hi Ladies,
    I was getting a little worried about you Gaye when you went quiet for a while. I hope your getting on well with your exciting new drug. How is your back pain now?
    How is the puppy Gill.
    Cant add anything to your bra adventures but I would like to dispose of mine and sure will once I finish work. But I wish I could find a liberty…[Read more]

  • Hi Eve I am glad you find this site helpful ,I know its a lifeline for me .You didnt say how long your partner has been diagnosed but if it wasnt long ago you are bound to still be in shock and trying to come to terms with such a life changing illness But it does get better , life may be different than before but nothing stays the same forever. It…[Read more]

  • Wonderful news Nikki
    I recall the dark days you had at the outset of this 'journey' and I am so pleased with the positive outcome for you both.
    Now, get on with the rest of your lives and enjoy. Good Luck for the future.
    MIn

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