Hi Sylvia reading your posts it seems like our cases may be very different . I wasnt bent over at all before my op , other than stooping because of the pain As for the pain it didnt seem many weeks , perhaps 4 to recover from the surgery , however I have had continuous pain my back since I am not sure how much of this is due to the metalwork and…[Read more]

You were right. He is back to 'normal' whatever that is. Sleeping better and dexing as normal. >:-( last day tomorrow. Eating me out of house and home. (Never put any weight on while on velcade and dex) but never had any munchies with it either.
The sciatica is getting better having used a Tens machine… Could get addicted to that.>:-)…[Read more]

Its true we women do love our shoes .Sharon I am crosssing fingers and toes you will be in the sexiest pair of heels you can find for the wedding!! Jo up until 2 years ago when I had my hip replacement I would never wear flat shoes !!Alas now I have no choice , but I do still manage wedges occasionally and its worth the pain !! Sarah I was told…[Read more]

Hi Sandie how lovely to hear that your mums doctors really listened and responded so well to your request . I agree with you that being direct and telling them you expect no pain is a good approach Unfortunately some doctors are better than others in this procedure and if you get a duff one its awful Heres hoping its good news when your mum sees…[Read more]

Hi Sylvia sorry you have had a relapse after a short time , but lots of people have had great results with velcade ,hopefully it will be the same for you When I was diagnosed 4 years ago, after a year of agonising back pain, it was discovered 2 vertebrae had been destroyed and a third was also damaged .Before I could begin treatment for myeloma I…[Read more]

Hi Sharon you must be so frustrated I do hope your leg gets back to normal soon You have done well on oromorph I could only take it for a few days after my surgery as it made me fall asleep all the time , sometimes in mid-sentence! Just a thought have you applied for DLA? You would certainly be entitled with your mobility so compromised and if…[Read more]

Hi Gill that was priceless !!As someone who cant queue without scowling when I am on the lovely dex it strikes a chord!! Perhaps Stephen should wear a hat and glasses for a while in case he is on a wanted list !! Thankyou for starting my day with a smile love to you both Bridget x

It took me a few goes to post my reply to Ron because of inappropriate content!! Eventually realised it was the very hot place some bad people go to when they die !!Haha how much more succinct a four letter word is !Bridget

Hi Ron sorry but Dexatude is a made up word to describe the awful creatures we become sometimes when we are on dex!! It can make you very short tempered at times and impatient ,not very nice for the people around us Hopefully your wife wont have these side -effects though In my case the higher the dose the more likely it is I will be not very…[Read more]

Hi Kay I am glad your doc didnt keep you waiting all day Hopefully you wont have any problems I start Revlimid in a couple of weeks so you wont be alone love Bridgetx

Hi Keith thats a strange one ! I didnt have anything like that on velcade , mind you I wasnt on it as long. I always find dex is the main culprit for taste changes but I would have expected that to be from the outset . Hope someone else can help love Bridget x

Dear Jenny what a terrible time for you all I am glad your dad is in the hospice where he and you will get the best possible care . I hope you do take up the counselling when you are ready to it will help you come to terms with your dads decision I am sure My thoughts are with you love Bridget x

Thank you everyone your support makes everything more bearable. The pain hasnt gone yet but I have had a few hours respite over the last 3 days. I wasnt expecting an instant cure so I am not disappointed Gaye your journey to Barts must be exhausting I could have Zometa at my local hospital bit to be honest its been a long while since I had any…[Read more]

Hi Min sorry to hear Peter hasnt had a good start to his treatment , fingers crossed tomorrow will be better. I hope your sciatica is gone for good , I had it many years ago and it is terrible love Bridget x

Thanks Sarah,
My son came round today and did something sort of remarkable. 1st of all he made me lie on the floor, then he taught me a Pilates exercise for my back and leg pain. and it worked. so far so good. All of a sudden I was transported to that moment when your children start to give you advise. Not that he is a child at 34yr old. But the…[Read more]

Hi Bridget,
Now that the RT is over you can either relax and recharge your batteries or have a party. If it were me I would be relaxing.
Hope its not too long before the effects of all your travels and traumas take effect and your pain free.
Peter RT was effective after about 4-5 weeks but everyone is different so may be sooner for you.…[Read more]

Well first things first, peter slept well until 4-30am when he woke up with violent diar—-trots. cant spell it! Then he got up to go to work, only does 3 hours but has not been feeling up to up for 5 days now . At 8am he crawled back into bed having just taken a sicky tablet as he wanted to throw up. Altogether not a good start. He is sleeping…[Read more]

Hi Jo lovely to see you at last !!! Doesnt it feel great when you conquer technology? Dont worry about the moon face it irons out the wrinkles !! love Bridget x

Hi everyone well thats my radiotherapy finished !! I have been zapped for five days and it was only on the third that I found a button-through dress to spare my dignity !! As some of you warned I am exhausted , this morning was the hardest I just sat still for hours when I should have been getting ready , so tomorrow morning is a pj one !!In a…[Read more]

Hi Min hope Peter does well on Revlimid and will be watching out for your posts as I start mine in a couple of weeks too It would be nice if they only send me to sleep at night my little power naps are taking over my days as it is so if Revlimid makes me any more dozy I might not even manage to drink a cuppa!! Lucky Peter I am going to be on 20…[Read more]