GillSeaward

  • brocho replied to the topic Pomalidomide in the forum General 14 years, 10 months ago

    Dear Gaye I am glad you got week one out of the way without any problems apart from those pesky dex!! The foot massage sounds wonderful too a bit of pampering is just the thing when you feel lousy . I hope they get that back pain sorted very soon and you can dance the night away or run the marathon if you want !! love Bridget x

  • Dear Gaye how beautifully put Thankyou for sharing with us To a certain extent I am still in denial for a lot of the time too . It was over a year before I even looked at this site In the beginning , like you , I coped by dealing with it on a daily basis and trying to organise everyone else in the family ,as usual. As time has gone on I have…[Read more]

  • Gaye
    That was very moving, and in a way helps me to understand how my husband has been dealing with his mm.
    he is very private and at the outset did not want me to tell anyone what was wrong with him.
    I on the other hand am an open book. If its out its not festering inside me.
    I remember when he was diagnosed. I went home in distress more…[Read more]

  • Hi Everyone,
    Peter got his Revlamid at clinic today. along with dreaded dex. But only ten tablets for 4 days this time,Revlemid is taken for 21 days then 7 days off all meds so he is very pleased about that.
    Bit frightening to learn that his blood test from two weeks ago came out at 8750(light chains) I thought that amount would kill you. But we…[Read more]

  • NIce to see you Joe, I am pleased you did it, the moon face is familiar to me as Peter has it at the moment.
    According to the Dr Peters kidneys are ok, or at least the figures show that, in truth he has puffy eyes on almost a daily basis,(great big bags under them) its like pulling a pint with regards to froth. And the oil slick left after…[Read more]

  • brocho replied to the topic ANTICIPATING THE NEWS in the forum General 14 years, 10 months ago

    Hi Kay ouch!! there is nothing worse than a painful bmb.Do you have sedation? I would never have a biopsy done without sedation and it should be available to you Good luck with your results love Bridget

  • Hi Laura,
    Im so sorry you find yourself joining our little group. But I am glad you found your way here. You sound like an amazing young person who has your Mum at heart. For that reason I hope that she reaches the end of her treatment with your help, and you can both get on with living your lives again.
    Laura do you have any support from a…[Read more]

  • brocho replied to the topic Catch Up in the forum General 14 years, 10 months ago

    Hi Kathleen thank you lovely to have you back I hope you are keeping well love Bridget x

  • Hi Laura sorry you and your mum are having to go through this but joining this forum was the right thing to do , there are lots of lovely people who can support and advise you There are quite a few of us who were diagnosed around the same age as your mum and a growing number of people under 50 as well It does take time to get over the shock when…[Read more]

  • brocho replied to the topic Velcade+Dex Update in the forum General 14 years, 10 months ago

    Hi Keith great to hear everything is going well . Dex is a monster but it generally does the trick and its wonderful when the pain goes away . Fingers crossed your remaining cycles go as smoothly . love Bridget

  • JOe
    You need to go to the newcommers button and press the link for how to change your picture you must be signed in to the site to be able to do it.
    Print it off to make it easy on yourself. Or get a clever relative or neighbour to do it for you.
    Min

  • Min replied to the topic Back Pain in the forum General 14 years, 10 months ago

    Gaye
    Not on the same scale as you but my sciatica pain was not responding to anything you can buy across the counter, the Dr gave me 30mg of codeine. to be taken with 2across the counter paracetamol and 2 cross the counter ibuprofen. The pain relief of all these things together is wonderful. Taking all them is not so good but whatever it takes…[Read more]

  • brocho replied to the topic Back Pain in the forum General 14 years, 10 months ago

    Dear Gaye I really feel for you , there is nothing worse. At the moment I take Severodol for breakthrough pain , although morphine based it doesnt knock you out . I also use the heated pads which do help. Hopefully your rt will happen quickly once they have seen your mri results love Bridget x

  • OK Jo
    lets see if I can help you here. Sign in Press your name which will take you to an edit profile page. Press the profie picture, drag it in to the centre square and press the scale arrows on bottom left of your photo, until it fits into that square. Finaly press the save button bottom right hand side of your picture. Fingers crossed that…[Read more]

  • Hi Jean
    Well that sounds interesting, dont know if I can do that. The closing date was 10Jan for applications, and of the 450 they wanted they got 395.
    The package is enhanced in as much as I will get 3times the normal redundancy payout, and my pension, (like you 20yrs) would have been penalised for going before I am 65yrs will not now be. I…[Read more]

  • Oh Crikey Ron your will -power is probably off on his holiday with mine !! Blooming typical just when you need them love Bridget x

  • TOM
    You know I thought I was going loopy the other day when I posted and it got lost in the ether. Im kinda pleased to hear its not me going gaga and its happening to others too. My Mum used to do her false knashers in bleach too.
    With regards to zometa, Peters been having for a year past August. But only every 6weeks. His Dr has had 2 patients…[Read more]

  • Hi Tom I am glad its not me going mad cos I posted a little while ago and its disappeared too !! Blooming gremlins are at it gain !!love Bridget x

  • Found a bar of proper soap in the holiday bag, (Pears do you remember the pears advert) and can confirm it did NOT work. Picture this. Me with acute sciatica, and Peter with leg cramps. Up and down all night In fact he got worse if anything. so rang up and got a prescription for quinine off his GP. Will let you know if it works.
    Min

  • brocho replied to the topic Radiotherapy in the forum Treatment 14 years, 10 months ago

    Hi Sarah thenkyou for your good wishes The pain isnt like the rest of my bone pain its like a really awful toothache in my back ( if that makes any sense!) so I am now taking quite a lot more severadol as well as the mst morphine They told me today not to expect any major relief for several weeks so I will just have to be patient The rt was fine…[Read more]

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