brocho replied to the topic check up in the forum Treatment 14 years, 10 months ago
Hi Sarah great news what a reief for you both . I hope you have wonderful day out for your birthday and even more good news on the mm front Who knows the weather may even be better love Bridget x
brocho replied to the topic Leg Cramps & Bar of soap! in the forum Side-effects 14 years, 10 months ago
Hi Min I will keep this suggestion in mind should I get cramp but at least my feet would smell nice!If you were really a witch it would have been frogs legs or worse!! That I couldnt handle love Bridget x
brocho replied to the topic Radiotherapy in the forum Treatment 14 years, 10 months ago
Hi Gavin thank you . I had my first dose of rt today and it was fine if a little chilly in the room , apparently the machines have to kept cool . Mind you the pain in my back is pretty unbearable tonight so I hope it does work quickly . How are you doing hope you are as well as can be love Bridget x
brocho replied to the topic dad decided to withdraw from all treatment in the forum Treatment 14 years, 10 months ago
Dear Jenny I can only imagine what you must be feeling. I think if we were being honest most of us have considered refusing treatment when its particularly tough but I do hope he thinks it over and changes his mind. My thoughts are with you and we are all here to support you through this awful time love Bridget x
Min replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Sorry to hear of your Dexastrous up chucking! I cant imagine having to take that many pills at once. Why cant they make it into a strawberry syrup?
I cant believe those NIMBYS. But I would be inclined to say that they should be blacklisted. They may not need a hospice today, and only time will tell if they will. But in view of there…[Read more]
brocho replied to the topic Alive and gigging…. in the forum General 14 years, 10 months ago
Haha Srah you have just brought back some memories for me !! I used to work in a factory years ago with a lady whose dad made home-made wine from the veg on his allotment To be honest some of it was awful , potato and carrot peelings yuk!! Pocheen was a good one though and there were a few nights no work got done because we were a little tipsy to…[Read more]
brocho replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Dear Gaye not a good start to your day , those blooming dex cause mayhem whenever they can !!I was so shocked to read that people could write nasty letters about a hospice!! They must live such selfish lives only thinking about their property As you said I hope they never have need of such a service I am sure your response will make at least some…[Read more]
brocho replied to the topic Alive and gigging…. in the forum General 14 years, 10 months ago
The band would have to called The Rocking Cucumbers !Teehee can just see the headlines now brilliant!!
brocho replied to the topic LOST!!!!!!!!!!!!!!!!!! in the forum Off topic 14 years, 10 months ago
Hi Ron I am so glad Pauline is feeling better, mind you those annoying coughs can get you down too A holiday sounds a good idea for you bothIf I were you I would pack a couple of cases and then wait before looking for a last minute deal comes up , less choice maybe but fewer decisions !!love Bridget x
brocho replied to the topic Alive and gigging…. in the forum General 14 years, 10 months ago
Hi Phil I have the feeling nothing will stop you and certainly not mm!!Keep on twanging and giggling but dont forget to giggle too love Bridgetx
brocho replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Dear Gaye good luck for tomorrow , I hope you dont have to wait a long time for your meds , its so frustrating the first day of any new treatment!! Have you got a date for your mri yet? I had my first appointment at radiotherapy today and was suitably marked for life !!So now I can be known as the ciggy-smoking ,whale with a tattoo from Luton Phew…[Read more]
brocho replied to the topic dad diagnosed on Xmas eve in the forum Newcomers 14 years, 10 months ago
Hi Jenny its good to hear your dad is a bit better It does take a while for things to settle when you first begin any treatment and I think dialysis must be exhausting . I hope you get rid of your cold soon , theres nothing more miserable !You are certainly not being selfish wanting your dad home , I am sure thats what he really wants as well…[Read more]
Min started the topic Leg Cramps & Bar of soap!. in the forum Side-effects 14 years, 10 months ago
I feel sure that many patients undergoing treatments must have leg cramps from time to time. Peter has had them for a while now and tried the Q19 something or other tablets but they don't last long enough thru the night. Been reading up on it doing the dreaded research as its obviously a thing that prevents him from getting a good nights sleep,…[Read more]
Min replied to the topic dad diagnosed on Xmas eve in the forum Newcomers 14 years, 10 months ago
Hi Jenny
Its nice to hear your dad is taking little steps towards getting better. You cant rush this thing, and particularly so given his age and his new health problems.
I read you original post and was alarmed at the comments of the nurse who spoke to you. Myeloma is one of the rare cancers, and its difficult to know what she knows of it, was…[Read more]
Min replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Dear Gaye
You are an inspiration to all of us, and I do hope the new drug, works for you. Why do they have to give them such long names?
Let us know what Poma…die! is tablet or infusion?
I am curious to know, what drugs if any that you have been through have not worked on you? and what happened next so to speak. Do you have bone damage? or…[Read more]
susannah replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Hi Gaye and Tina Just wanted to wish you Gaye and Patrick all the best I have always followed your posts closely,as we know only to well that we could soon be in the same boat. Pomalidomide is this a thalidomide based drug, ive not heard of this one? Michael and I are back at the hospital tomorrow his monthly visit for Revlimid (we…[Read more]
brocho replied to the topic Radiotherapy in the forum Treatment 14 years, 10 months ago
Thankyou all for your good wishes they are very much appreciated. Sharon I can see why it was better for you to stay in as seven year olds cant get their heads around mummy not being able to do what she normally does and I think its hard for us mums to switch off too mums . I hope you get some relief soon and I can understand how frustrated you…[Read more]
brocho replied to the topic LOST!!!!!!!!!!!!!!!!!! in the forum Off topic 14 years, 10 months ago
Hi Ron thankyou for your kind words.How is Puline now? I hope she is feeling better please give her my best wishes love Bridget x
Min replied to the topic New arrival in the forum Off topic 14 years, 10 months ago
Oh I do love a bit of good news, congratulations granny.
I am right now lying in bed with my grandaughter who as I type is breaking out in more spots……Just discovered she has chicken pox. Poor sould. I think I should be worried. but I am more worried about her. Peter is home so hope I dont take it home to him. He is on acyclavore so possibly…[Read more]
Min replied to the topic Pomalidomide in the forum General 14 years, 10 months ago
Good heavens Kieth you do have to do some travelling for your treatments. Jane Conn did peters harvest and transplant and we see her most visits to ward 36, she is truly lovely woman as are all the staff. Peter had his Bypass done in RVI and they were great too. How long did you stay in after transplant. Peter wa:-| s out the same day and lately I…[Read more]