Hi Jean congratultions your new grandaughter is so beautiful and Madelyn is a lovely name . I hope you get to see her very soon I didnt really understand how special the relationship with your grandchildren is until the eldest was born and I was just as excited when the other 3 arrived . love Bridget x

Dear Gill now you have given me a massive fit of the giggles at the thought of your poor dog waddling back in !!Those evil Wills have a lot to answer for !!The real test for me will be tomorrow when my grandson is here as we normally cook lots of very fattenig goodies it will be a miracle if I can stop myself eating them , but not my fault if Will…[Read more]

Hi Lorraine blimey I will never moan about how long it takes for our benefits to go through again after reading your post Thank goodness you were granted it at the higher rate. Is the form more specific do you think ? Here the DLA questions stick to a limited criteria and dont always allow for illnesses that dont fit them My daughter has cystic…[Read more]

Dear Gaye and Sharon thankyou for putting my mind at rest Gaye I will have everything crossed for you to get your rt very soon . I was lucky in that I had a recent mri for them to go on which speeded things up Mind you I have always found UCH to be excellent at organising vital treatment It occured to me tonight that I am prepared to put up with…[Read more]

Hi I got one too and also assumed it was a site I joined ages ago .I havent responded nor will I Blooming nuisance why cant these people get a life!! Michelle I do hope your sons problem gets sorted very soon it must be so stressful for all of you love Bridget x

Hi Dai,
I got the same e mail, and at the same time I got an e mail from Gill,with no content,signed webteam that I had sent her a few weeks ago! something is going on. Though the similar e mail refers to the myelomaforums.com which I may have registered at a long time ago. the Gill one refered to this site.
Time to do a virus check me…[Read more]

Hi Keith no I did mean the second dose or second injection three days after the 1st.
It took some weeks before it got really bad enough to complain in loud voice and be heard. But as he had managed to break his hand that seamed to be a bigger priority.
And it did work for a while; at first there was no response; then a few cycles later his…[Read more]

Hi Joanna My husband has been on Revlimid for some time now. The last time we saw his consultant she did discuss options with us as we were concerned Michael is running out of them, like yourself he has had 2SCTs Thalidomide twice and Velcade. she said that there are other options availiable and would discuss them with us as and when. So have a…[Read more]

Well Kieth by now you will have had the 1st of your velcade and dex and will know all about the routine. Or lack of it, Peters first velcade was quite disorganised. He has his last one today, and mostly felt quite good and looks really healthy, belied by the fact that the velcade no longer works effectively!
The problem he had was after the…[Read more]

Dear Min thankyou I must admit to being a little nervous for no good reason . I think your point about the tumour throwing out myeloma cells is spot on especially as they areon our spine. Unfortunately I will have to travel to London each day , although its only 30 miles it can be a pain on the motorway, but I would rather come home each day than…[Read more]

Hi Bridget,
Im pleased to here they are moving apace with your RT. Peter had just one massive blast when he had it, at the outset of his diagnosis. It left him feeling like he wanted to throw up, and he had a red mark where they gave him a temporary tatoo, to they could hit the right spot. The red mark was a little like sunburn and after/sun took…[Read more]

Hi Michelle I am surprised this has not been offered to your mum before given that she has a lot of bone damage .I was on Parmidronate for over 3 years and it certainly helped with bone pain , I always knew when it was due The infusion is ok just means spending a couple of hours on a drip once a month , sometimes it can be a little painful for…[Read more]

Hi sorry you are having to go through this its an awful time but things do get easier as you all learn to cope with myeloma and its treatment. There were times in the beginning when I refused to give in to tiredness etc and pushed myself to the limit I was trying to hang on to old life , as perhaps your brother is too , but eventually you learn to…[Read more]

Hi Keith I was on velcade recently and my platelets did drop quite significantly Its monitored via the pre-chemo blood test and if its too low you will need to be given platelets through your line It is normally given on the ward with dex on the day of treatment and the day after . I was recently changed to Zometa after having Prmidronate for over…[Read more]

Shirls,
I wish you all the best for the future. I hope by now your back into the routine of home and family after your sojourn in hospital. Dont rush it take you time and enjoy yourself. Keep Well
Min

Sorry Gaye but now you have set me off giggling too !! The thought of prancing sylph like through the fields ( in Luton ???) is just too much to bear I will give up all thoughts of Wills as he is so fickle as to marry a young , beautiful ,rich girl ( cant think what he sees in her ) I now have a new plan to feed Jeff all the goodies then I can…[Read more]

Hi Tina so sorry to hear Patrick has had to come off Bendamustine .Heres hoping Pomalidomide does the trick for him and Gaye too , they are the trailblazers Love to you both and heres hoping this will be a good year for you both Bridget x

Hi Min thats brilliant those devices work really well for a lot of people My trouble is that apart from when I had pneumonia a couple of times I still enjoy smoking!! Having said that Jeff gave up last year and surprised even himself so I am sure there will be a day when I say enough is enough as I do often think about it . The thought of…[Read more]

Hi Shirley I am so glad you are home it feels great after a long spell in hospital Just take it easy and it wont be too long before you are able to dance the night away If you fancy one of my hats just e-mail me your address on bridget.rochfort@btinternet.com. I never had a wig , because I am so untidy it would have been wonky more often than…[Read more]