I will let you in on my secret Bridget giving up smoking was something I kept promising myself when Peter was diagnosed. I watched him stuggle thru his transplant and decided then if he could put up with that I could give up smoking. humph. to help me I enlisted the help of an electronic cigerette. Looked like a real ciggy, produced vapour instead…[Read more]

Hi Amelie.
I dont think you can take chances with this disease and flu, I think John should see a Dr and get some Tamiflu, and or Aciclivor anything else he may recommend. He still has a very immature immune system which will need some help.
I dont have myeloma my husband does, but I did have flu about two months ago for the first time in my…[Read more]

Dear Enormous Nettie (bet you arent really!!) If I had to endure snow and cold for as long as you have this year I would be eating even more so I think you definitely have the best reason . I am sure our Wills will be back at the first sign of the spring ( suitably tanned and trim of course!!) I am afraid to take the covers off the mirrors and…[Read more]

Hi Min those pesky chocolates are a pain when they sit there tempting us , so its really not our fault Like you I havent had to worry about dieting for a long while because I am a smoker, still !! Thats a chllenge for another day for me but your will power is impressive . I suppose half the country is feeling stuffed to the gills too so I am going…[Read more]

I think I am going mad bridget I remember typing an ansa to you and now cannot find it.. so excuse me if I appear crazy. Excuse me if I have posted it somewhere wrong. I have obviously overdosed on luxury chocolates that have been telling me to eat them for two weeks now! n order that I could no longer be tempted by them. apart from feeling…[Read more]

Dear Sean You must be gutted by the news about your transplant. I know how upset Peter was with just 5months with no meds
Peter gets the full disability allowance including car. The price 4 crushed vertebra a life on pain killers and kidney problems, and of course myeloma. He had never previously claimed any allowances in 43yrs as a worker.…[Read more]

Hi David great news its always good to hear things have worked out well There will be no stopping you now —Tour de France??? Dont overdo it though rest when your body tells you to love Bridget x

Hi Sean sorry to hear you have to have more treatment so soon after your sct. I agree information gathering is probably the best step to take I would find out who your local Macmillan Benefits Advisor is through the hospital They are brilliant at negotiating all the forms etc and would be able to advise you about registering as disabled It really…[Read more]

HI KIETH AND GILL.
Peter is well into his velcade now and so far the only side effects have been. Hiccups…and DVTs but todays appointment with a brand new registrar (who's English left much to be desired, and clothing looked like it was from a charity shop) hit him with bombshell the bad news that his numbers have gone thru the roof since…[Read more]

Dear Gaye sorry you have been having a horrible time , like you I had forgotten how bad the back pain can be , I hope you get your RT soon Great news about the Pomalidomide hers hoping it will blast the lousy mm to smithereens so you wont have to worry about treatment for a long time Happy new year Gaye love Bridget x

Hi Ron thats really interesting and I wonder if others have been warned of possible risk , it was never mentioned to me.Sorry to hear Pauline has been having a hard time and I hope she continues to feel better so you can both get back to your golf when the weather improves . I feel better than I did but I must admit the pain in my back is…[Read more]

Hi Keith thankyou that really helps to get a picture of the process I would have been expecting immediate pain relief too , at least now I wont be impatient.I am sure it wont be too long before a more specific therapy emerges.I have just read a piece on cancer treatment origins and I amazed that the first treatment wasnt till 1942 and came about…[Read more]

Sorry to hear your news, its a bummer. Shame you had to join the relapse group But on the plus side you know the drill, and new treatments are better than old and hopefully longer lasting too.
Min

H Sharon I hope you are back home now and all went well .I have my appointment with radiologist this week and cant wait for my radiotherapy . Although I know a lot about it I am still a bit nervous about having radiotherapy so I would love to hear how you found the experience When will you find out about having velcade? Keep smiling your beautiful…[Read more]

Hi Gill I agree with Sarah , there must be something in the sct process which makes the desire for a dog a necessity !! In my case I dream of a little dachsund but I reall cant expect Jeff to do the walking etc so I am stuck with the furry grandson Looking forward to seeing pics of the puppy when it arrives love Bridget x ps maybe the…[Read more]

Hi Sarah your comment about feeliong selfish for working jumped out at me You are most definitely not being selfish and I am sure Gordon doesnt think so either !!In some ways its reassuring when my other haif goes off and does his own thing , it makes life seem more normal if that makes sense On the other hand if you feel the time is right to stop…[Read more]

Hi Gill sorry but as others have already said dex was a part of my recent velcade treatment Mind you it was a fairly low dose taken only 2 days a week so not as bad Stock up on ear plugs , buy yourself an i-pod even and pretend you cant hear for those dex days !!Heres hoping your peace loving hubby wont suffer from too much dexatude though love Bridget x

Hi Amelie great news about Johns remission ,long may it last The only advice I can add regarding infections is to have the pneumonia vaccine which lasts ten years .I had this vaccine 2 years ago and although I did have pneumonia last year it is likely to have been more severe if I hadnt been vaccinated love Bridget x

Dear Roz I am sure it must be very tough for you at the moment .Try and take it one day at a time . What a brilliant amount of money for myeloma uk , you should feel very proud that people who knew Michael felt able to donate love Bridget x