Hi Gill
Peter is in the middle of his 4th cycle of velcade. Im afraid the dreaded dex is taken throughout the courses.
I read all the information regarding the lowering of doses etc and under the skin instead of iv. Initialy I thought oh that ineresting as it means he can give himself them, as he does with the heparin he has to inject daily…[Read more]

I recommended them to my brothers neighbour who has a 12yr old border collie and she just sent me a message of thanks to say they have made a big difference to her dog too.

Hi Sarah
I know what you mean. I wanted to give up work when Peter was diagnosed and decided the human contact at work was going to keep me sane. More recently I received a letter from M& S where I worked 20yrs ago to tell me they are gong to pay my pension next month when I reach 60. I decided then that once the mortgage was finished the M and…[Read more]

Hi John I would like to add my welcome too , this lovely group of people are the best support you can get . Best wishes Bridget x

Hi Jenny I am sorry to have missed your post until now but you have been given lots of good advice already Would it be possible to take your step mum for lunch or something and try and talk to her on neutral ground. her fears are probably so overwhelming she cant see how you all can help .I hope your dad is continuing to improve , as lots of us…[Read more]

Hi Min I have crossed my fingers and toes too and really hope you get accepted You certainly deserve to do the things you have always wanted too love Bridget x

Hi Michelle I wont tell on you I promise !!! love Bridget x Its the sort of thing my girls would do so now I am off to check their fb just in case there are pics of me in the land of nod ! love Bridget x

Hi Keith I am sorry that you are now relapsed , its a real pig when you hear those wordsBut having heard them myself a few times now take strenghth from the fact that active treatment can get cracking and knock it back again love Bridget x

Jenny
The booklets you would like to see can be found and downloaded they are to left of this page near to the top under the Title 'Myeloma Library' Hope this will help you to understand better.
Min

Hi David Just wanted to add Michael and I used MIA 2 years ago he was on Velcade at the time we paid £30 and that included flying me home if there were any problems
Regards
Sue

PS We only went as far as Southern Spain
to see my brother

H Keith So sorry to hear of your relapse, just wanted to wish you all the very best for Monday. Ive always appreciated your kind words over the months,and now its my turn from Michael and myself good luck

Regards
Sue

Dear Roz thinking of you today love Bridget x

Hi Michelle terrific news!! Revlimid certainly seems to be doing the trick for your mumAs for the pain relief I know what you mean . my morphine has just been upped again and I take Severodol for breakthrough but its not that great at the momentHas your mum had radiotherapy? I have an appointment next week with a Professor no less!!!Well I am…[Read more]

Roz
You are very much in all our thoughts at this time, I am sure we will all be thinking of you tomorrow.
God give you strength to get through this evening, and to deal with tomorrow too. If it snows it will be like a blanket, making the world look clean and fresh. Its not an omen its nature. At its best and worst. Hugs are sent in abundance…[Read more]

Hi Jenny
Your poor dad is going through the mill. Im sorry he is having so many problems but hopefully they will get his kidneys responding to treatment and the fear for your step mum will go when she realises he is responding to there care.
I would say don't let him go home until he is responding well or he will be back again before you know…[Read more]

Dai
My oldest dog Ben had got to the point that he could not get up off his bed to go for a walk he was so stiff, he dragged his feet on all our walks and the two younger dogs were not at all pleased that we went everywhere with him bringing up the rear so to speak. I got to believe he was not long for this life. That was about 4-5 moths ago.…[Read more]

Hi Lyndsey,
You describe exactly what my husband suffers from as a result of 4 crushed vertebra. His problems of pain are mostly to do with the ribs sitting on the pelvis or hip bone due to the new short torso. Big tummy and bent back looking like a hump. Smaller appetite… frequent toilet visits as all his organs are crammed into a smaller…[Read more]

You can forgive him for this dexatude Gill, we have three labradors, and they are what gets Peter out of bed in the mornings and at his worst and lowest point in the past the dogs have always been there to lend an ear.
For both of us. What better way to get out in worst of weathers, and the best of weathers.
I moan like mad when its raining as…[Read more]

Hi Sarah I am glad you have got your admission date now , you will be at the top of the tower great views of London!! I have got quite a few appointments coming up for my radiotherapy so if I can I will pop up and see you Good luck and just remember it really is worth it and you will be home before you know it My recommendation for the boredom is…[Read more]