Hi Ron sorry your wife is feeling rotten ,once the treatment starts to kick in she will feel better Anaemia is very common in myeloma, especially when first diagnosed.I didnt have any negative reaction to the transfusions and it certainly made me feel better. Its all so confusing in the beginning so you have come to the right place to ask…[Read more]

Hi Shirley great to hear you are doing so well not long now till you are home . I know whatyou mean about losing curls though I was upset when mine went last year and when it came back with no curls!! But life would be very boring if our hair stayed the same !! love Bridget x

Dear Roz as David has said you are more than welcome here, you are one of us after all , you have been through every step with Michael. I am sure your experience will be invaluable if you feel able to continue sharing . Celebrate Michaels life and the love you shared on Friday and remember when things get tough he is always with you .love Bridget x

Hi Gill as you know I am also anti-Dex it is a horrible drug ,by far the worst !!So I am glad you have your Stephen back and long may it last!! I am enjoying not being on dex too ,now I just want my body to return to its normal shape Hope you had a good xmas and heres to a very happy and healthy new year love Bridget x

Hi David I know exactly what you mean My tractor moment was doing the washing believe it or not !!It gave me so much pleasure to do an ordinary task myself and the I knew I was home love Bridget x

Dear Roz the poem is so beautiful and moved me to tears too You will do Michael proud My thoughts are with you and Rachel and Lauren love Bridget x

Hi Jonny,
I can empathise with you, as I always felt Peters consultant had no bedside manner from the day he told him what he had and how long he had!
Its now over 16month since we first met and I know now he does his very best for Peter, and gets the results we want to hear. Not always delivered with warmth or feeling, but we have gotten to…[Read more]

The breathlessness may just be part of the anxiety. I tried to give up smoking ( am now a non smoker) and in doing so used an alternative to nicotine which gave me palpitations and made me breathless) The anxiety of being breathless made me more anxious and more breathless. As the fear got worse I gave up smoking without any further help!!!!!!!!!…[Read more]

Hi Ron
Like you I am married to a MM sufferer. At diagnosis I found it very difficult to to bring Peter out of his withdrawn state. For quite some time he became rather insular and difficult to talk to about his illness. Eventualy he had a long chat with our Macmillan nurse and the myeloma nurse specialist. But it was not until he could see from…[Read more]

Hi Gill
Peter was having velcade on Christmas Eve which meant, Dex then and on Christmas Day too. so I know exactly where your coming from. We now have a sort of understanding where I say' Peter that is not you talking its Dex"
He usually replies "I did not ask for Dex" but for a short while we can agree that Dex is here uninvited.
Dex…[Read more]

Happry New Year David and all of you great people whom I count as friends May 2011 be a good one for us all love Bridget x

Whatever is ahead of you, may you find strength, calm and love to help you through. And may the New Year bring you hope.
Warm wishes to all
Min

Hi Joanna Im sorry to hear of your problems with Revlimid.My husband has had his dose reduced from 25mg to 10mg with no steriods and thats a bonus for both of us! and things do seem better. He was on Revlimid for a couple of cycles before it settled down any, apart from the rashes and tiredness he had a couple of nasty infections but fingers…[Read more]

Hi Gavin I missed your post originally but I see you have made your decision now Good luck with the chemo and trial In my experience the care you recieve when taking part in trials is excellentAs for your age being a factor David( Perkymite) has just had his sct at 68 and is doing very well so theres no reason to think age alone would mean…[Read more]

Hi Georgina I met Prof Tobias last year and was due to have radiotherapy then , but as I was taking part in the Myeloma X Trial and radiotherapy would have inhibited sem cell collection, it was postponed. Jane the specialist nurse is brilliant and I could have seen the Prof the day before xmas eve, I chose to wait as I had just come out of…[Read more]

Hi Jo my when my husband first went on Revlimid he to had a rather lumpy red rash on his face and neck, his consultant gave him a fungal treatment which helped. After a few weeks it did go. He started taking Revlimid agagin just a few weeks ago and the same thing has happened but not as severe.

Regards
Sue

Hi Sarah good luck with your sct and I hope you get a very long remission too .I am also under UCH London and they are brilliant especially Dr Yong who is a very formidable woman but boy does she get things done !!love Bridget x

Hi Keith,
I think that you suspect what the problem is but cant wait for the bmb and blood tests to prove it. Peter was similar in that he had lots of pains in lots of places just before his relapse.
I think the thing for you now is not to suffer with the pain but to get some pain relief until you get to your next appointment. No one should…[Read more]

Thankyou so much Vicky and Georgina , it really helps a lot to have the support of my on-line friends. I have an appointment to meet Prof Tobias on the 12th Jan to discuss radiotherapy , at UCH, hopefully it wont be too long after that as it is very painful, Georgina please give your mum my best wishesand Vicky I hope you are taking it easy and…[Read more]

Dear Roz I am so glad you you and your daughter and grandaughter have each other , it will help each of you get tjrogh the next few days love Bridget x