Im very pleased we have all arrived safely, now put your thinking caps on for others who we may have left behind. I thinks its time for a party, red wine cucumbers etc. Or as its nearly Christmas, crackers? Seven weeks to go folks.
This time last year was our lowest point, and therefore I for one am looking forward to Christmas this year, even…[Read more]

Hi ( sorry you didnt put your name ) trouble is myeloma is so individual its hard to compare treatments In my case my doctors take the whole package into account before suggesting treatment , which means scan results , bone marrow biopsy as well as paraprotein levels.If you feel comfortable with the consultant the perhaps asking the question…[Read more]

Hi Michelle great to hear mum is feeling a bit better My fingers and toes crossed for her to get to disney on ice love Bridget x

Hi Gill Iam so glad you made it !!This site wouldnt be the same without you love Bridget x

The Silent Treatment
A man and his wife were having some problems at home and were giving each
Other the silent treatment. Suddenly, the man realized that the next day,
He would need his wife to wake him at 5:00 AM for an early morning business flight..
Not wanting to be the first to break the silence (and LOSE), he wrote on a piece of…[Read more]

Roz
I think I would want to know if he has done anything of this nature before;
I would also want to know if he was the one who did the first operation, why it went so badly wrong, and if he is the one who is going to attempt to do it again what assurances he can give that the second op will be more successful than the one before. Is he for…[Read more]

As a bystander I don't get to know what dexitude feels like , But I do know Peter had just gone back on it, His 1st day the velcade did not turn up until 4pm and the dex had to be taken with food when we got home at 5.30pm. As you all know it should be taken early morning to wear off by bed time. Imagine what he was like the next morning having…[Read more]

I love the new word Gaye ! Dexitudinous is definitely how I am feeling today so thankyou There is also Dex -cleaning for those times in the middle of the night when you are compelled to get busy cleaning something or anything!!x

Hi Gaye this tickled my fancy too when I saw it in the paperMind you it took a few seconds before I saw the word !!Bet there were a few blushes in the studio that day love Bridget x

Maybe a catch all title that is not mm related but which binds us all together wether we are accompanying a loved one through there journey with mm, suffering in silence alone without loved ones or just needing the support of others who understand where we are in life. Maybe it could be a just the ability to knock on the door of the new site…[Read more]

HI DAVID
Peter gets this rash and thinks its off the elastic in his socks, or the nylon content of his socks or the washing powder used to wash his sock! Whatever it is he has a cream from the Dr for it and it works. I Even bought him socks with comfort tops (no elastic) to see if it stops.. It didn't. Changed the washing powder bought 100%cotton…[Read more]

Hi Mari I know what you mean about the use of carer ,I have said it too , but its not right My husband is my partner and for most of us it is our partner ,husband or wife Partner to me means he is my partner in the myeloma process without whom I would not cope .It will be interesting to see hat others think but I do agree a seperate category is a…[Read more]

Hi David sorry I havent had anything like that but if it doesnt itch and isnt spreading its probably ok A few people have posted about rashes that began when they started treatment but theirs sounded more widespread.When you think about it its not surprising really as our poor bodies are bombarded with all these poisonous toxins all at once .Hope…[Read more]

Roz no wonder you and Michael feel down I agree with Michelle now is the time to go through PALS and complain !!Write it all down before you contact them to help you remember .It sounds hopeful as Michelles complaint at the same hospital was dealt with quickly Good luck but dont wait do it today that way you might have some peace of mind love Bridget x

Nice to see you to see you nice.
Go get Gill now web team

Good morning great to see this site developing before our eyes .Would it be possible to have a category for people who are in hospital to post their news,updates etc It would make it very easy to find and reply quickly which can mean a lot when you are suck on your own for weeks at a time Thankyou again Bridget

Morning Roz sorry to hear you had a bad night I think we all need our partners reassurance before anything scary so no wonder Michaels nervous If you hadnt finished your conversation perhaps you could ring the nurses station and ask if they could let you speak to Michael? x

Hi Sarah good luck to you both just think you are nearly there, now in a free from treatment time it will be worth it .I am due to have my second sct in the new year , it will be my last as I cant produce any more cells ( they are using the ones frozen last year) As for retail therapy sounds good to me and any strange presents you buy cant be as…[Read more]

Yippee I was getting worried you were going to disappear into the world wide web thank goodness the web team sorted it ! love Bridget x

Thankyou Roz what stunningly beautiful photos !! The giggling baby elephant has made my night Hope all goes well with Michaels transfer tomorrow ,try not to worry too much and get some rest love Bridget x