[GillParticipant]

BLIMEY

You are hot off the press Eve

MEY next

[GillParticipant]

Dear Min

I am so pleased that Peter's service went well (silly thing to say but I hope you know what I mean).

Please don't be silent on this site. I, for one, feel that I have made friends on here and if you drop out it will be like a friend not being there with a friendly word.

Much love Gill xxxx

[GillParticipant]

Hi Ali

I know that I have looked at a number of American sites and it seems that they carry out far more Allos than here. They do seem very successful if they are a strong match. (Stephen is an only child so no chance there)

He is on his second auto. As far as I can understand (and believe me, although not stupid, I do find it hard to get my head around mm) When given an auto the stem cells are removed and cleaned but cannot be cleaned completely as they would be killed off for good. When put back the stem cells still contain some mm. So the stem cells left in your body are all killed off with chemo(no more mm)but when put back your own stem cells still have some mm left in them.

I am sure that if I am very wrong someone on here will put me right.

If you have a good allo SCT. Only clean (non mm contaminated) cells are given. Then the huge risk is GVHD

BUT if it works you can be given a completely clean bill of health and may be classed as "cured" How marvelous is that!!

I am sure that huge advances are being made in the study of mm and know that one of Stephen's consultants told us that mm is considered very "sexy" at the moment regarding working on a cure.

Good luck with whatever you and your medical team decide on. Do stay in touch

All the best Gillxx

[GillParticipant]

Dear Min

I thought long and hard before posting the link. I would have hated to have caused you more pain on top of what you are going through.

It was Stephen (after I showed him the video clip)that said I should post it and he believed that you, Min (even if you had had no idea about NS beforehand) would be glad to make sure that others are aware.

Do keep in touch.

You are soooo right regarding saying those words. Not one of us knows when we may have to say goodbye. After all the bus that can knock any of us down is just around the corner

It is finding balance I think. The balance to be aware that the person you are closest to in the whole world has a limited life span and all those words that you were going to say one day should be said now, but still be able to berate each other over the usual mundane stuff. Will Stephen EVER rinse the soap off his hands properly before drying them on our white towels:-/

I do hope you are feeling able to at least get by at the moment

Much love Gill xxx

[GillParticipant]

OK one for all of us regardlesss of our age we should all sometimes behave like a

YOUNGSTER

TER anybody?

[GillParticipant]

Dear Min

I do hope everything went well. What a lovely picture of Peter you have put up. I realise that it may be a while before you look at this forum again or, indeed, you may not want to come back to it but I am sure I am not alone in saying I hope you keep in touch.

Much love Gill xxx

[GillParticipant]

How on earth did you manage to spell that Dai? I have heard it said before but the pronunciation is not lodged in my mind. Any chance of you spelling it phonetically for us so we can all have a go at saying it?

Anyway I digress

HOCKEY is now the next word

(how I hated it at school. Never very sporty I was always put in goal, got my stick thin legs wacked with hockey sticks and froze into the bargain. Oh happy school days sometimes not 🙂 )

[GillParticipant]

Not lazy Cheeky Chops:-)

I will NOTIFY you that I hadn't got round to it yet

IFY up for grabs.

PS years ago a friend at work sent us all a "roundtuit" it was a piece of paper cut into a circle explaining that it was our very own "roundtuit"

It listed a great many of the excuses/reasons for not yet having got round to it and informed us that now we had our own "roundtuit" We had no reason to use the lack of one as an excuse for not getting round to everything we should have done.

We laminated them and used them as coffee cup mats

[GillParticipant]

Dear Sarah

Maybe you and your son should take up "debating chairs" 2 people sit opposite each other and take a completely opposing stance on a subject.

Never personal, deeply religious or deeply political but usualy loud. It could be anything I am just glancing around now and know that my daughter and I could vociferously debate what's better PC or laptop, the merits of allowing dogs to do this or that or if her younger brother was realy allowed to get away with more than her (too personal but she'd try it on!). Our family have always done this (if more than 2 of us you have to have the talking spoon to speak to avoid overshouting each other).

It may sound flipant but it is a way where both of you can shout and row but not [u]with[/u] each other.

I hope you don't think I am being crass or jokey I don't mean to be either.

Love from Gill xxxx

[GillParticipant]

Hi Alison

Sorry to see you here (in the nicest possible way)I think this is a site that we are all very grateful for but all we wish that we had never had to even look for it let alone join.

It is my husband who has mm diagnosed in 2008 when he was 53. He has had 2 STCs but is not doing so well with this second one (much slower recovery.

I hope you stay feeling well for a long time to come

All the best Gill

[GillParticipant]

Short one for you all

STINK

Anybody want to "INK" in the rest 😎

[GillParticipant]

I am so sorry that you are having such a rough time and all on top of losing Gordon.

I have no cure for your shouting M I L, well one or two but nothing legal:-) Shouting back would probably not help. You could try keeping a crossword by the phone and just make sympathetic clucky noises down the phone whilst filling out the crossword.

I have done this myself in the past with clients at work and it certainly keeps one calm and sane.

Have you thought about talking to a bereavement councelor. They are trained to encourage you to rage about everything that has happened and help you to allow yourself to grieve.

I had a colleague that did this sort of work as a volunteer, and she really was not the type of person that was dour and miserable just a very nice and most times smiley person that cared about others.

Do talk to someone if you can. Family are wonderful but they are all dealing with their own grief as well as trying to support you and each other.

Much love Gillxxx

[GillParticipant]

Hi Bridget

Good luck with your RT Hope it zaps that pain right out of the window.

Stephen saw the radiology oncologist today and he is to be zapped next week. Like you he cannot wait as he is in a great deal of pain at the moment. His scan has shown that he has a tumour that is, as the doctor put it, nipping his spine and that is what is causing the pain. They are hoping to knock it out completely or at least shrink it into behaving itself.

Fingers crossed for you both that it does the trick

Love from Gillxxx

[GillParticipant]

Jean it is not you I posted a word and a chat and then realised that the word I had chosen did not have all 3 last letters so I quickly deleted it 🙁

It is me with senior moments as I cannot even remember what the word was:-/

My message to Bridget was that I would not even remember if we had the same 3 letters twice but I think we would all get a bit bored if we kept using the same ending over and over as in talking changed to walking to ending to looking etc.

As for Tom teaching Eve to cuss. He is very naughty:-)

LIASON is now my word

So after you SON

[GillParticipant]

Before I suggest my word I will tell you that my heart sunk when I saw that the webteam had replied to to my first try of getting this game up and running. I thought that they were going to say it was a too frivolous subject.:-/

My word is going to be

ESSENCE

Anybody want to grab NCE?

[Author]

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