Hi Team Myeloma!

Well, I have had the news I have been waiting for – the consultant has said that I can go home tomorrow, as long as nothing drastic happens overnight of course! 😀

My neutro's are up to 0.35, not quite 0.5, but I am otherwise well, and feeling good.

At Musgrove they haven't given me GCSF after the transplant as they…[Read more]

HI Vicky,
Good news about Colin, I had the rash too on my back which drove me mad for a while, but much better now. Good luck with the sickness, it's the worst thing.
The race is on then to see who can get out first!!! 🙂 On your marks…..
Best wishes from us both,

Chris and Lena x

HI All,

Thanks for the post Vicky, and for the update on Colin, great to hear that his readings are on the up, and I am sure his tummy will recover soon.

I had a resting day today, and felt a bit off, but my bloods are improving except my neutrophils which remain stubbornly static at 0.015. At this rate I will still be here at…[Read more]

Ooops 0.12 n phils. Chemobrain.
Hope more tomorrow……
Cheers everone!
Chris

HI Tina, glad to hear that you have managed to get home again, well done!
I am waiting for my release, but am longing to be at home with my own 'stuff'!
I am really fussy about my food at present, but I would say stick with the things you fancy, a bit at a time. I love coke which seems to help the sickness, I can't taste much else, and I used…[Read more]

Hi Vicky,
I hope that Colin in feeling better.
I am much better now, Day 19, and my neutrophils and blood levels are rising fast! I am on 1.2 np now after 0.01 lowest, so pretty hot! Also my infection is gone so I am off the antibiotics which may help the tummy.
I am aiming for home after 0.5, but likely to be end of the week yet, but…[Read more]

HI Vicky,
Sorry that Colin is so rough, as Tom says, it is so hard when we go in feeling fine and fit, but quickly become so rough, but we have to focus on the larger picture, and it will be worth it to have a normal life again.
Every little step is a positive, whether a small meal, or a shower, or a visitor, and I am just tackling one day at…[Read more]

Hello everyone from Ward 9. I am soldiering on, and making slow progress, but steadily feeling better which will be encouraging to Colin.
The old runs are set in to stay, but under control really – running shoes not necessary! I am waiting for the pp's to pickup, and havn't had them today, yesterday still on 0.03.
On the whole I am ok, and…[Read more]

HI Vicky and Colin, and everyone.
I hope your day has been ok.
I am on a lot of antibiotics now, every few hours, and the old temperature is under control at the moment – good thing – but seems to have triggered the 'trots', although that may be the chemo.
Another good thing, the 'north and south' is much better (google rhyming slang for…[Read more]

Well Tom, I have to bow to your greater experience! Large stack of loo rolls in fringe and rapidly being employed, running shoes on feet….! :-S
By the way, was your 16 days from Chemo day, or tubes and prep?
Chris

HI All!!
Feeling ok today despite a spiked temp yeaterday, and I slept hours, then up half the night reading the Casual Vacancy!
Had enough antibiotics to knock over a donkey, so I am sure you're right Tom, one hand on the bog roll!
Apart from losing weight and having a bad mouth, I have been good this weekend and have seen lots of visitors…[Read more]

HI Peggy,
I think you have found the answer, you have to have the GCSF which makes the cells come out of the bone marrow into the blood, otherwise the whole principle of the thing doesn't work.
I had the week of injections like you, but they didn't make it clear that you are supposed to take them in the evening, as the effect is at it's max 12…[Read more]

HI Vicky, we are so sorry you are having a rough time, but it's not surprising you are feeling down after so many weeks of pressure, there is no relief from it I know.
Can you have any time off work,or can anyone else sit with him? Colin will need you to be fit and well so look after yourself!
The week after the stem cells is absolute s**t,…[Read more]

Hi Everyone in the 'real world', and particularly Vicky and Colin for the message today.
I am probably at my lowest point now according to the doctors, being 10 days after the Melphalan, and I am beginning to feel a bit better. The main problem is that I write one e-mail then sleep for about 2 hours, so things happen very slowly!
The main side…[Read more]

Well done both of you, sounds like you are doing well so far. The procedure is the same as me, keep drinking lots, and wait for the chemo to work. My neurophils are 0.3 now, so pretty low after 6 days.
Keep us posted, and keep smiling Guys! Chris x 🙂

Big Hi to everyone reading this! Sorry I've been quiet for a few days, but I have found it takes a big effort to plan to do anything much other than gaze at the TV, which isn't all bad I guess, a chance for a rest.
It is now a week tomorrow since I had the Melfalan, and my mouth is like the bottom of the proverbial parrot cage/badger sett! I am…[Read more]

HI Vicky and Colin, we must have been writing at the same time!
Very best of luck for Monday, I am right behind you (or in front I s'pose :-/ ).
I don't remember any prison visits in the old Dallas, but the fighting is much the same! Enjoy!
Chris x

HI All out there in the real world, all I can see are the pidgeons and robin out of the window! Looks grey out there though.
It was the big day today, and my stem cells were shipped down from Bristol at the end of the morning, and the procedure was explained to me. I had a pre-med of Piriton against the preservatives in the cells which have a…[Read more]

Oops! Sorry Jean, didn't want to spoil your viewing, should have thought of that, but enjoy! Old JR definately wins the 'mean'prize for me! >:-)
Thanks, I'll keep going and looking forward to getting home again,
Chris

Thanks Phil, I've been warned obout the sweetcorn! Cheers, Chris