Heathermac started the topic Exercise and supplements. What do you think?. in the forum General 12 years, 3 months ago
Many thanks to those who posted replies to my newcomer post. I am starting to feel more positive again altho waiting for my next appt on Mon with some trepidation! I would like to do more exercise, and wondered what people have been doing. I walk as much as I can, slowly increasing my mileage, and do a gentle exercise class specifically for…[Read more]
Heathermac replied to the topic Remission? What remission? in the forum Treatment 12 years, 3 months ago
What a roller coaster ride this disease is! B…..y unfair too! I really hope, no, I am sure, that this is just another blip on that roller coaster and soon you will be on the up again. Appointments with the consultant are nerve racking, and am due my next one on Monday. So fingers crossed for us all!
Heather x
Heathermac replied to the topic REMISSION. in the forum General 12 years, 3 months ago
Am also new to the site, but I understand the battle. It took 15 months to get to SCT, but get there I did in July. Like Bridget I would say that the side effects take some getting over, but after about 14 weeks I began to feel human again, and now feel physicallybetter than I have done for ages. Planning return to work next month – but don't…[Read more]
Heathermac replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 12 years, 3 months ago
Hi Glenn
Altho all our situations are different, we all face similar problems. I find it hard to believe the difference a year has made to my level of walking and pain. Someone who I met recently didn't recognise me without my stick! Being fit previously will help a lot, as I wish I had been fitter, and am trying to increase my fitness now. I…[Read more]
Heathermac replied to the topic Another new kid in the forum Newcomers 12 years, 3 months ago
Thanks to you all for your messages. It is really good to hear your positive stories, and to know that the way I'm feeling is not just me! I am in discussion with work, and am planning a return doing office work initially, but really don't know whether I will cope with my 'proper' job again. Will have to play it by ear, but i have never done…[Read more]
Heathermac replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 12 years, 3 months ago
Hi Glen
As someone of similar age and presentation (tumour on spine caused spinal cord compression, and could hardly walk) abou 18 months ago, I thought you might like to know that I am now 6 months post SCT and felling much better. Walking several miles easily and without pain or sticks. Radiotherapy helped no end. Was on ctd for some time, and…[Read more]
Heathermac replied to the topic WORST DAY YET in the forum Newcomers 12 years, 3 months ago
It sounds as if you are both having a really tough time at the moment. There is not much to say other than to stay strong and that I am thinking of you. Urinary retention is a common side effect of severe constipation as the full sigmoid colon presses on the bladder outlet, hence the need for a catheter. Morphine is notorious for causing…[Read more]
Heathermac started the topic Another new kid. in the forum Newcomers 12 years, 4 months ago
Hello! Diagnosed with myeloma in May 2010, after finding myself in spinal cord compression. A big shock, as I am a nurse, and had not even considered myeloma as a cause of my problems. Mind you, neither did my GP! Have been through CDT and high dose chemo and am now 6 months past SCT. So am feeling not bad physically altho worried about return…[Read more]
