Dear DeeDee
As Min says, here is the place for sensible help. 10 weeks is not long to get used to the life changing effect of this disease on someone you care about, you will still be reeling.
I was on Revlimid on myeloma xi and it is not easy, I can't stress the importance of him taking his temperature daily and when feeling more hot or cold, it is a good way to pick up on infection early – as with a compromised immune system and all the drugs, infection can be masked for a while and then become very difficult to treat. I had a chest infection off and on for several months and had lots of antibiotics. The other thing to remember is to drink 3 litres of fluid a day to keep the kidney function up to scratch. (this will help with UTI too, but the hospital folk will have told you all this)
You should have an emergency phone number to get help from the hospital any time you like or need it as there is so much to remember and it is a scary situation to be in. Don't be afraid to use it you aren't wasting their time. The helpline here is very good I believe though, I've not used it myself.
The info guides on this site are really informative too, but you need to just take it a day at a time for now and read them when you feel ready for them.
I have asked several questions on the site and find that replies and support from others in the same boat are extremely comforting, often when you are feeling very fed up and lonely and when you don't want to worry your nearest and dearest- again!
🙂
Helen
