[HelenParticipant]

Dear Min
Thinking of you and your family today
Love Helen

[HelenParticipant]

Dear Min
This is truly awful, I know from our very brief encounter just how much you and you family were praying for Peter to pull through this. There are too few words to express how we feel.

' that fragile cup in which our dreams are held, is cracked and all has flowed away'

If you feel like keeping in touch please do, I had hoped for longer
Love Helen

[HelenParticipant]

Hi min
I'm out back Friday and Sunday too tired to do anything now
Helen

[HelenParticipant]

Sally what a predicament- you need to ask all the questions, take notes or record clinic conversations to find out what is the plan, your mum will presumably continue to do her own thing and you dad probably won't want to let go either and normal routine, however odd might be best only time will tell, perhaps you could speak to a MH nurse via your GP.
Keep posting
Helen

[HelenParticipant]

If you are still around I'm in 34- no beds on 33

[HelenParticipant]

Hello Min
I know you were coming in, did it all go well, I'm in too waiting for stem cells later today
Helen

[HelenParticipant]

Oh Dai
Your leg problem may be unrelated but it will have sapped what energy you would have anyway as it tries to resolve it's self and heal, take care and keep going, enjoy your holiday in Pembroke
Helen

[HelenParticipant]

Thank you both, I have made my ice cubes, all different flavours, White wine not good taste so will stick with blackcurant and orange! Hey ho it was a thought,
Glad to se you are now home and hope it continues to go well
Helen

[HelenParticipant]

Carol
Another thought about the revlimid, which also dropped my levels to zero, I had 5 weeks from finishing it before I felt it was fully out of my system, so it seems to have a very long after effect,
Helen

[HelenParticipant]

Hi Carol and Bridget
Will take ice and mug! All tips very welcome:-) thanks for your contact only hope they have beds!
Helen

[HelenParticipant]

Hi Carol
I have sct next week
Helen

[HelenParticipant]

Hello Ted
I feel a bit impertinent as a relative newcomer to this site too, to be the first to reply to you, but anyway welcome. I have not experienced mm in the same way as yourself but know a chap who has, he too finds 'observation only' a bit of a trial but I think that if they say you don't need treatment, take this as a fantastic reprieve for as long as possible. The uncertainty is awful but the treatment is terribly stressful too.
Good luck
Helen

[HelenParticipant]

Hi Min
Let me know I'll bring sandwiches!
Helen

[HelenParticipant]

Dear Carol
I was on the revlimid as induction ( RCD) in the trial and was stiff as a board for 3 months then I seemed to loosen up though still felt very sick and weak in the 4 th month. I had several chest infections, if the cough keeps up perhaps you should report it? I found the stem cell collection and the zometa all cause me lots of pain and stiffness even my fingers too but wore off when I walked last week. I don't think it is as bad as it was before the treatment started, but I will let you know as time goes on:-)
Helen, bridget and eve I still head for sct on Monday 15th i hope, have been to France for a few days while I can and will be having as much fun as possible over the weekend, someone else will have to do the cleaning, because even though we mums are tough( as old boots in my case) I am leaving it and will get back to it in the future……….maybe!
Helen

[HelenParticipant]

Dear Sarah
As Gill says a cyber friend whom I shall never meet but has given support unknowingly
Blessed be
Helen

[Author]

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