[LizMaywoodParticipant]

I am so saddened by this news- Dai was such a wonderful support to so many on this site and will be sorely missed. His postings were so informative, insightful and genuine with added wit when required.

My condolences to Janet and all his family.

Rest in peace,

Liz x

[LizMaywoodParticipant]

Dear Eve

good for you! I too have started putting up some decorations, and it definitely makes me feel better.

Take care, Liz

[LizMaywoodParticipant]

Hi Anne

I was told the SCT could add 12-18 months beyond what I might expect if I didn't have the SCT. Hope that helps,

Cheer, Liz

[LizMaywoodParticipant]

Dear Dai

I often follow your valuable and supportive comments to so many on this site- you so deserve this good news-long may it last.

Take care,
LIz

[LizMaywoodParticipant]

Dear Wendy

Am in awe of your fitness levels and commitment despite relapsing! I did an 11 mile bike ride this morning, first time I've done this sort of distance and I enjoyed myself, aching a little now! I shall get on and sponsor you.

Keep up the great work!

liz

[LizMaywoodParticipant]

Dear Tom

dont let his thoughlessness upset you- easy to write I know, but with your age, fitness- and a very good yield of stem cells (which must indicate your marrow is in a pretty good state?) you should be in for a long remission. I had my transplant Oct 2011 and still going strong and intending to for many more years.

Take care

liz

[LizMaywoodParticipant]

Thanks Andy

please pass on my condolences to his family- he was such a great supporter to many on this site.

Liz Maywood

[LizMaywoodParticipant]

Many thanks for all suggestions- actually I made a typo- SCT was Oct2011- how time has flown! I see consultant on 17th so will be checking what vaccinations etc I should have. Fingers and toes crossed bloods still ok!

Liz

[LizMaywoodParticipant]

My thoughts are with you both at this difficult time,
best wishes
Liz Maywood

[LizMaywoodParticipant]

Dear Sarah

as Helen says- it is a totally personal decision. For me I felt it would give me the best option for a long remission. Your Mum needs to talk to her consultant about the options based on her health and responsiveness to treatment so far. Your Mum can wait til CDT treatment is over before finally deciding which route to follow- the dex is certainly responsible for big mood swings. The treatment (SCT) is tough- but I would do it again if necessary.
Is there anything you can do to get other members of family to rally round? Knowing she has the support of family and friends will make any decision so much easier.

Take care, LIz

[LizMaywoodParticipant]

Dear Tina

dont be too hard on yourself! My transplant nurse said dont compare how you feel day to day, but week to week- which actually was really good advice.

As for eating I lived on tinned custard for a few weeks!! I found after 6 weeks I could actualy do things- I made my 1st Xmas cake! Do things at your pace- but just make sure you have lots of nice things in your diary to look forward to, coffee with a friend etc. You will find you suddenly feel stronger and better, this will happen when your body is ready. Sleep is good.
Take care, Liz

[LizMaywoodParticipant]

Dear Sarah

I had my SCT last Oct- in hospital about 3 weeks and now back at work full time- only on monthly zometa infusions. I too am on my own (I'm 53 now) and my Mum came to look after me for the 1st week, then I had friends popping in to do shopping for me and drop off cooked meals! One wonderful neighbour used to come in every morning for the first 2-3 weeks and bring me a cup of tea in bed!! The 1st 4-6 weeks you do need to be really careful and so having someone help and making sure you are fed and watered properly is important especially if you live alone.

Good luck!

Liz

[LizMaywoodParticipant]

Dear Rachel

I am so sorry to hear your sad news, take care, Liz

[LizMaywoodParticipant]

Dear Tina

I am 1 year on from my STC (on Monday) and back at work full time now. I would recommend getting dressed every day- if you feel able- as I think it makes you feel better and more in control. For me plenty of pairs of pyjamas were necessary for when the side effects of mephalan kicked in! I took a computer and iphone- with radio as hospital radio not great! I took some books but never had the energy or desire to read, magazines were my limit! Take care and I hope it all goes as smoothly as possible for you,

Love Liz

[LizMaywoodParticipant]

Dear Rachael

I too am new to the forum- although was diagnosed finally in April last year and (spinal cord compression at T3 and lytic lesions in sacrum and iliac crest) had CTD then STC in Oct 2011. I am being treated at Addenbrookes, the treatment has been great but sometimes I find it difficult to speak to anyone about my concerns.

Love LIz

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