LizMaywood replied to the topic Keith's funeral arrangements in the forum End of Life and Grief 10 years, 11 months ago
Thanks Andy
please pass on my condolences to his family- he was such a great supporter to many on this site.
Liz Maywood
LizMaywood replied to the topic Long haul travel in the forum General 10 years, 12 months ago
Many thanks for all suggestions- actually I made a typo- SCT was Oct2011- how time has flown! I see consultant on 17th so will be checking what vaccinations etc I should have. Fingers and toes crossed bloods still ok!
Liz
LizMaywood started the topic Long haul travel. in the forum General 10 years, 12 months ago
I'm currently in remission following CDT and STC Oct 2012. I know some people have ventured long distances- Helen and Wendy spring to mind! I am hoping to go to Vietnam and Cambodia late Sept/Oct, I've paid the deposit so it all seems rather real now!
Any tips on surviving the flights and any general health tips would be great- did your…[Read more]
LizMaywood replied to the topic Keith Hindmarch in the forum General 11 years ago
My thoughts are with you both at this difficult time,
best wishes
Liz Maywood
LizMaywood replied to the topic Stem Cell Treatment in the forum Treatment 11 years, 5 months ago
Dear Sarah
as Helen says- it is a totally personal decision. For me I felt it would give me the best option for a long remission. Your Mum needs to talk to her consultant about the options based on her health and responsiveness to treatment so far. Your Mum can wait til CDT treatment is over before finally deciding which route to follow- the…[Read more]
LizMaywood replied to the topic Been Home for for about 3 weeks, in the forum Treatment 11 years, 5 months ago
Dear Tina
dont be too hard on yourself! My transplant nurse said dont compare how you feel day to day, but week to week- which actually was really good advice.
As for eating I lived on tinned custard for a few weeks!! I found after 6 weeks I could actualy do things- I made my 1st Xmas cake! Do things at your pace- but just make sure you…[Read more]
LizMaywood replied to the topic Stem Cell Treatment in the forum Treatment 11 years, 5 months ago
Dear Sarah
I had my SCT last Oct- in hospital about 3 weeks and now back at work full time- only on monthly zometa infusions. I too am on my own (I'm 53 now) and my Mum came to look after me for the 1st week, then I had friends popping in to do shopping for me and drop off cooked meals! One wonderful neighbour used to come in every morning for…[Read more]
LizMaywood replied to the topic Sad news in the forum Under 50s 11 years, 6 months ago
Dear Rachel
I am so sorry to hear your sad news, take care, Liz
LizMaywood replied to the topic What to take in the forum General 11 years, 6 months ago
Dear Tina
I am 1 year on from my STC (on Monday) and back at work full time now. I would recommend getting dressed every day- if you feel able- as I think it makes you feel better and more in control. For me plenty of pairs of pyjamas were necessary for when the side effects of mephalan kicked in! I took a computer and iphone- with radio as…[Read more]
LizMaywood replied to the topic Hospitals in the forum Treatment 11 years, 10 months ago
Dear Rachael
I too am new to the forum- although was diagnosed finally in April last year and (spinal cord compression at T3 and lytic lesions in sacrum and iliac crest) had CTD then STC in Oct 2011. I am being treated at Addenbrookes, the treatment has been great but sometimes I find it difficult to speak to anyone about my concerns.
Love LIz
