Hi
You have every right to think that your life will never be the same again, it wont be the same BUT that does not mean it is the end of life. Your life will be very different but you will come to accept all the changes over time and life will still be good. Like you I was diagnosed with mm and mutiple fractures of the spine, 9 in total and a…[Read more]

appologies for repetition in post it seemed to keep diasappearing as I was typing

Hi
I too had a high initial parraprotein level of 67 at diagnosis and after 6 months of treatment with cdt it came down to 8. I was 58 at diagnosis with several fractures in my spine and
kidneyproblems. I had to have operations to stabalise my neck and a tumour removed. I was stage 3. I could not decide whether to go for. the transplant or not.…[Read more]

Hi Maureen
I don’t post on here very often,but always read posts and am so pleased to hear that Ian has at last got his date for SCT. I hope all goes well for him and he gets that longed for drug free remission. I had my stc just over 3 years ago and am still in drug free remisssion, after inital 6 months cdt. I had kidney failure at diagnosis…[Read more]

Hi Heso42

In reply to your question re screw stabilistion, I had this performed on me approximately 3 years ago, just after diagnosis, as a tumour had eaten into the top of my spine making my head and neck becoming dangerously detached. So I had radiotherapy to shrink the tumour and then an operation to remove the remainder and then screws and…[Read more]

Signed !

Hi
Sorry to hear about your Mum, like your Mum I was diagnosed out of the blue with renal failure and a tumour on my neck, which if left any longer would have left me paralysed. So I had an emergency operation to stabalize my neck, head and spine with metal plates, which means my head is in a fixed postion, can't move it from side to side or up…[Read more]

I am now a year post my sct and in that time I have had 4 haircuts because my hair came through very tight and curly and very course and dull. It is now just a bit wavey but still very course and dull. It is also darker in colour. On my hairdressers advice I purchased some morrocan oil to try to soften the texture and add a bit of shine. It does…[Read more]