[LynnieParticipant]

Hello Gaye
Thank you so much for your kind words and thoughts.
It is very hard. Today John was told that his kidneys are unlikely to repair themselves. He took this news badly, of course and phoned me at work, very down. I managed to leave early to visit him, give him a big hug and a good talking to. I told him that plenty of people go on for years on dialysis and that he should try and think of all the future hospital visits for dialysis as a part time job – something you have to do even though you'd rather be doing something else. I told him how much I and the family love him and that we wanted him home with us. I hope I said the right things and that he feels a bit brighter tomorrow.

Thanks again Gaye and wishing you the very best of luck with your treatments. Thinking of you too.

Lynne x

[LynnieParticipant]

Hello Roz

I'll be thinking about you on Thursday and hoping you get some answers. Wishing for some better news for you.

Lynne x

[LynnieParticipant]

Hello Roz

I'm so sorry I haven't been in touch lately but as you can see, John has been very ill since I last emailed you. I'm so sorry to see that Michael is still very poorly.

Thank you so much for taking the time to reply to my plea for help. You are quite right about taking one day at a time – you should know all about that.

All this came out of the blue with John. He was so excited to have his hip replaced with the possibility of walking without his crutches – it's been years. Then suddenly all this happened with the kidney failure and the Myeloma back again. I think I just panicked but feel a little better today.

I really hope you get some good news soon about Michael. It would be such a nice Christmas present for you both if he could be home with you. I'm wishing that for you.

Thanks again Roz

Lynne x

[LynnieParticipant]

Hello Bridget
You are sooo kind. I've always read your posts and you are always there when people need you.

John had a kidney biopsy yesterday to see how much damage the Myeloma has done. Some results will come back fairly quickly but others will take some time,I'm told. John was a bit down yesterday after the doctors did their rounds – I think it's just dawning on him how ill he's been. I think they are preparing for him to come home as they can do no more for him at the moment as he is stable now. He's been fitted with a more permanant dialysis tube (sorry, I don't know what it's called). It will mean him going to hospital three times a week for dialysis. I also understand, but I may be wrong, that John has to have his Velcade injections on different days to his dialysis. I'm guessing it means he might be travelling to hospital most days, some weeks. (I'm fairly used to Myeloma terms but this kidney thingy is all new to me.)

I managed to see the doctor and told him how worried I was – I want John home, of course and he wants to come home but how will I manage with a full time job, John on crutches, a bad back etc etc?? He said I wasn't to worry and that a care package will be put together. So I feel better about that now.

The back is still giving me troubles but hopefully I'll get my appointment through soon, get it sorted and will be able to drive again and look after my dear John. I do have two very kind sons, two lovely daughter-in-laws and some nice friends – so I'm lucky there. I think I just had a little panic.

Thank you for being there for me Bridget, when you clearly have so much on your plate. There really are some remarkable people on this site and you're one of them.
Lynne

[LynnieParticipant]

Thank you so much for that John. I read Desiderata and it is a beautiful poem – I've printed it so that I can read it when I get a bit down. I had a little cry and then read some of your back posts and your jokes made me laugh so that was good. It sounds like you and your wife have had your share of worries too, so thank you for taking the time to reply.
Lynne

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