LynneWaters

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Viewing 15 posts - 1 through 15 (of 20 total)
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  • #107724

    Lynnie
    Participant

    Dear Gill and Tom – I'm glad I helped. My John was also very laid back but the last year in particular he did get the grumps sometimes. I'm sure it was the medication but also frustration, tiredness and the uncertainty of it all. Near the end he told me he wasn't afraid of dying but was not ready to leave me and others in the family that he loved. Just love your Stephen as much as you can Gill. My love to you both. xx

    Dear Dai – I had a little cry when I read that your heart skips a beat when your Janet comes into the room. That's so wonderful and that's just how John loved me. I miss him and miss being loved like that. I do understand when you say that there is a world that has been denied Janet during the last few years but I'm sure she would not have missed one minute with you whether you are Mk 1 or 2. That's how I felt with John. I'd rather he hadn't been ill but it did give us the opportunity to grow closer. A closeness that a lot of other couples cannot even dream of and I'm thankful for that. Janet will most certainly move on but will cherish what you two had forever. You have a way with words Dai. My love to you both. xx

    Dear Mavis – thank you also for your kind words. I certainly do have some wonderful memories and looking through a pile of photos this evening I see my John young, healthy, tall (he lost a lot of height over the last few years) and smiling. That's how I'll try and remember him. Love, Lynne xx

    #107720

    Lynnie
    Participant

    Oh thank you so much Eve, Eliz and Sarah, your kind messages are so helpful.

    I do have two caring sons, their wives, two beautiful granddaughters (another on the way) and some good friends …. but, of course, I can't expect them to be here all the time, after all they have their own lives.

    I went for an extremely long walk today. I have blisters on my feet and forgot to put sun cream on, so my face looks like a salami! John would have scolded me! So I was sitting here feeling a bit sorry for myself. Your posts are most welcome.

    Wishing you all strength and love to face the future.

    Lynne xxx

    #107715

    Lynnie
    Participant

    Dear Tom, Jean and Dai
    Thank you all so much for your kind and wise words of comfort. I shall bear them in mind during the coming weeks.
    Even though John had been ill for such a long time, it was still a shock when he passed away – strange really.
    All I can say to anybody caring for someone with this terrible disease is ….. cherish each and every moment you have together; talk together; forgive any odd moods; remember the good times; laugh as much as you can; hug lots; tell each other of your love; but don't be afraid to cry together …. because you're going to need all these memories later on. One more thing – try not to feel guilty thinking you could have done this or you shouldn't have thought that …. it's a hard road, we can only do our best.
    Lynne xxx

    #98795

    Lynnie
    Participant

    Dear Bridget
    I was very sorry to read your last post. It's not fair that you, who has given so much time, help and comfort to others, should be told this news. Just to say that I very much hope that they find something else for you to try and to send my best wishes and love.
    Lynne xx

    #107353

    Lynnie
    Participant

    Hello Gina
    I also have been following your posts and would like to add my condolences. My thoughts are with you and your family at this sad time.
    Lynne x

    #109968

    Lynnie
    Participant

    Hello Tom
    I just wanted to say how very lovely it was of you to answer each one of us. I don't often write on here but do read everyone's threads regularly and your smiley face and bright outlook on life always brings a smile to my face. That's just what we all need. Thank you.
    Best wishes, Lynne

    #109964

    Lynnie
    Participant

    Hello All
    My name is Lynne, I'm 57 and I'm a carer for my husband John who is 64 and has Kappa Light Chain Myeloma (originally thought to be non secretory). We live in Whitstable, Kent and John is treated in Kent & Canterbury Hospital by Dr Lindsey. John's myeloma destroyed his kidneys last November and he's been on dialysis 3 times a week since then. He's currently on Revlamid and Dex and has recently had two lots of radiotherapy for pain in ribs and shoulder. Not been a good year but hey ho. We've recently become grandparents to a second granddaughter … two bright lights in our life – ain't kids just grand!!
    Best wishes, Lynne

    #109519

    Lynnie
    Participant

    Hello there Roz

    I think Michael's garden is lovely – well done! It's the ideal place to speak to him.

    Lynne x

    #90956

    Lynnie
    Participant

    Dear Sarah
    Just read your very sad news today and wanted to let you know that even though I don't often 'talk' on this forum – I do read and take an interest. You are all wonderful, caring people. My thoughts are with you Sarah, at this sad time.
    Lynne x

    #105834

    Lynnie
    Participant

    Dear Min
    Oh that sounds wonderful and why shouldn't you do some things for yourself for a change. I'll certainly be looking to do the same thing when our mortgage is paid. So good luck with that and I hope you get accepted.

    Lynne x

    #89396

    Lynnie
    Participant

    Dear Roz

    Will be thinking of you and your girls on Friday and hoping that all goes as smoothly as possible. I'm here for you, along with your other friends, whenever you need to talk.
    God Bless you.

    Lynne x

    #89360

    Lynnie
    Participant

    Dear Roz

    I've just logged in for the first time since before Christmas and was so so sad to see that you have lost your darling Michael. You have been so brave and I'm sending you my love and thinking of you at this sad time.

    I'm not entirely sure about donations but I think the funeral directors will also offer to arrange donations to be sent to Myeloma UK if you wish them to … or you can send them yourself.

    By the way – it's a lovely photo of you and Michael.

    Keep in touch with us.

    Lynne x

    #89193

    Lynnie
    Participant

    Thinking and praying for Michael and you, Roz.

    Love

    Lynne x

    #105810

    Lynnie
    Participant

    Thank you so much Bridget and Gill – John phoned earlier today to say that they are taking a biopsy via his sternum next Monday. It's not viable through his hip as he's recently had a hip replacement. I think he's a bit worried about it. I must admit it does sound gruesome – do you know of anyone whose had this done?

    I haven't seen John since Tuesday evening because of the weather and roads but might try and catch a bus later today.

    I hope you are both keeping as warm as possible. I'm getting fed up with the snow now.

    Take care

    Lynne xx

    #105812

    Lynnie
    Participant

    Hello Roz

    I'm sorry you are feeling so lonely. Is there anyone you can phone for a chat? I'm also sorry to hear that Michael's arm is still very bad. What antibiotic is he on? My John was on Teikoplanin intraveniously for a couple of years on and off but mostly on, for osteomyelitis in his leg which was terribly infected. They finally got the infection under control but I don't think it helped his kidneys.

    I've been home alone since yesterday lunch time because of the weather and haven't seen John since Tuesday evening which is nothing like you have endured, and I'm already going round the bend.

    Hang on in there Roz – you've been so strong so far. Alot of people care for you and Michael and are wishing things will improve for you both.

    Thinking of you.

    Lynne x

Viewing 15 posts - 1 through 15 (of 20 total)