Hi
As I understand it as explained by my husbands consultant. Revlamid is a drug that you stay on if it works on you. It is not a drug you stop per sae simply because it has worked. It is also a maintenance therapy and as long as it is beneficial your husband will remain on it perhaps in lower doses or in company with another medication like…[Read more]

Hi Bridget
I got it wrong, Peter finished his 2nd packet yesterday so now on a week off, Hospital next week for a new packet! Still feeling good.
LuvMin

Sandra
You are allowed to moan all you want. The sensitive teeth thing was something Peter had with velcade and still cant manage a drink out of the fridge.
I don't know that water is the absolute advise, as I watched a programme that showed that as long as its liquids that will do.(NOT ALCOHOL LOL) Get some sensitive toothpaste and don't wash…[Read more]

Hi Ron, My husband has had Baloon Kyphoplasty done on two vertebra and only delay to getting the other two is the fact he is on blood thinners.
The surgeon made it very clear it would not be done for cosmetic reasons only to alleviate pain. However if by suffering from kyphosis she is unable to raise her head to see dangers ahead for instance…[Read more]

Hi Nigel,
You cannot have velcade until your bloods have been tested for a variety of things. You are therefore pretty much tied to the hospital as its twice a week for 3 weeks at a time. Then 1 week off meds to recover from the previous 3 weeks
Min

Hi Sarah,
Well I have now had 6 days of not getting up for work, I have the pension form to get to the Pension People tomorrow(not yet filled in) I have done my sums a lot of times to see how poor I will be until the OAP pension kicks in. I am spending far too much time on this computer, but still have sciatica so cant do much else. My plan is…[Read more]

Dear Bridget,
I know what you mean Peter is just a few weeks ahead of you and on the same lowered dose, he too was all haywire etc when he started the 2nd packet, but in addition he has the worst diarrhoea. Being kept under control with more pills! This has been the case since he started the course.
On the plus side this week he has turned…[Read more]

Hi Eve try http://www.insurancewith.com
Got a quote down from several thousand to just under two hundred.(quid) Im just waiting for my husband being fit to travel due to neutropenia or I would be lying in the sun now.
It is raining and It is cold enough to freeze the *** here in the north east today. If he doesn't hurry up and pick up Im going to…[Read more]

DAI
I am so sorry to hear of the loss of your faithful friend, [i]He was never just a dog.[/i] And he looks a handsome chap.
I have had to do the same with my 1st collie and labrador and the sense of loss is overwhelming. Not being greeted in the morning and when you come home leaves a massive hole to be filled. This is why I have 3 dogs!…[Read more]

Hi The fingers worked, I am now officially free and unemployed. I have a massive hangover after going out last night to celebrate with colleagues but thanks folks for the crossed fingers. I don't have a letter yet to confirm this as my employers could not organise a **ss up in a brewery! But I do have a healthy bank balance.
Im sure they will get…[Read more]

I agree with Bridget,wholeheartedly in the meanwhile the most natural form of diuretics is fruit of the variety that includes oranges and lemons plus grapefruit.
I used to buy dandelion tea bag too as they are a natural diuretic too. The kidneys filtration system is blocked up, causing the filters to stop working at full tilt. drinking copious…[Read more]

Hi Edo
Well where do I start, Im pleased you found your way to the discussion forum and sorry to hear about your Dad, sounds like he is a tough old man, who is going through the mill right now. Velcade dex and Thalidomide are a real toxic combination and I am not surprised he is tired.
I have no advise to offer on rectal bleeding other than my…[Read more]

Having read all those poems and understood them as being me!
I realize must get a grip with the one desire in my life.
For years I have wanted a pair of 'in line skates' every time I see them I want them, but my age has prevented me either buying them (not to mention the fear of a broken ankle) or telling anyone that that is what I want
But…[Read more]

What a bi**h Keith,
Dont you just love the powers that be. Lobby your MP, what have you got to lose. Get your fighting spirit going, Do it on a Dex day and get rid of all the anger the dex brings.
Im a newly liberated from work woman and sort of missing it already. Working in the law you are tied to regulations that dont make sense.
Min

Pleased to hear from you Roz.
One day at a time, get thru today and tomorrow will come.
Non of us know what tomorrow will bring and its just as well.
Best Wishes
Min

Hi Andy,and welcome to the mm club,
This is such an individual disease that the advise has to be there is not a one size fits all answer. My husband had an sct which technically is classed as a failure as he relapsed within 5 months. But that is not to say I would not recommend it. He went for an 'early one' and one wonders if he had waited until…[Read more]

Hi Bridget
Im back to earth with the washing and shopping etc.
When Peter finished his 1st course, his neutrophils were low so the Dr gave him a lower dose rather than take him off it.
He has now had 5 days with no swollen ankles ( think now I know more that in fact this is due to the zometa)
Who am I to know but hopefully its the…[Read more]

Hi Clarabell,
From experience of my husband having the same treatment I think that you will find your dad is going to be 'measured up' so to speak. For that you don't need to attend.
They will look at the scans and mark his body with a sort of 'tattoo (it washes away in time)
He will be given a further appointment where they will use the tattoo…[Read more]