Dear Gaye & Bridget.
You could both do with a break(pun) and get some relief from the pain, Is you RT having any effect yet Bridget? and as for you Gaye well time to start thinking of getting in touch with Pals. There is no need for anyone to suffer silently. Wouldn't it be nice to have a Holby on your doorstep and one of those characters to…[Read more]

Hi Steph,
Sorry to hear your Nan is not in good health and may have mm too.
I think if you nan has other health problems then the mm may be the least of her problems, as her general health has to be reasonable to be able to withstand some of the more toxic drugs that are used to treat mm.
However never say never. Once she has had her…[Read more]

Hi folks
I have taken a photo and attached it to this post so you can see it. You apply online to this organisation or you can call up for it, it has lots of pages to record hospital visits side effects treatments etc its not a yearly one it will possibly last for several years its absolutely great, Available by donation. I personally…[Read more]

Hi Angie and welcome to our happy little group,
You have come to the right place for support of whatever kind you need.
It is indeed a complicated subject and I struggle to understand the blood side of it, but have learnt to describe the bad cells as fighting against the body then getting carried away with themselves.
It is all so…[Read more]

He was on 10x2mg for the 1st four days, His swollen legs and feet are a sign that something is not working, last time he was on thalidomide he was on massive doses in pulses and his kidneys cleared up overnight so hence the reason for the increase…
wouldn't you just know it that he has had swollen everything for about 7-9 days now and today…[Read more]

Ok now that Silent Witness is finished I can recommend The Big C
a comedy of sorts about a cancer sufferer. I missed the 1st one but laughed a lot at the second one. Some hard language, but not unnecassary, and usualy apropriate.
Think its channel 4 on Thurs
Min

Keith
Peters dropped to less than 80 at one point and they said as long as it was up to 50 he was ok, it was not till after his 2nd cycle that he was diagnosed with thrombosis, so they kept a really tight check on it as he was also on blood thinners. Good luck with your velcade, on 3 rd cycle it stopped working for Peter.

Hi Bridget
Pete rwas feeling absolutly dreadful the first week of Revlamid, throwing up runs, pains and tiredness. But it did allow him to sleep better.
He is now 14days in and he feels better but still tired. He has some problems with his kidneys but following a briliant clinic visit today, we saw a new Dr from Germany, who has worked in the…[Read more]

H Keith
Peter always found that his platelets had recovered in the 10 days off period, and on the one occasion that they did not he simply missed one injection of velcade, until they had recovered. Hopefully you will have made that recovery whilst you have had your rest.
Min

Gill
I do hope Stephens black eye is healing to a lovely greenish yellow by now. I was amused as last time Peter was on Dex he almost had a punch up with a queue jumper on a garage forecourt.
How is the Puppy settling in? still keeping you up at nights or now sleeping with her new brother.
also hope Stephen is coping with Velcade and look…[Read more]

Go SarahGo
Very brave decision, but I can understand why. Life is just too short.
You do cope, we had 18months with no wages and a bloody porshe to pay for. Its long since gone but it bled us dry for a long time. What I plan to do is make a list of groceries every week and send Peter for it as I am hopeless and just get carried away whenever I…[Read more]

Hi Jo
One of the consultants we saw a few weeks ago, was German who had just spent two years in America. He had some amazing thoughts on the subject and I think he will find working in the NHS for a few years quite a step back from what he is used to. If velcade works on you its wonderful, its so sad that mm sufferers have to try everything to…[Read more]

Thanks, its just sinking in Im going to have a life again….. have a lovely trip and don't forget the photo when you come back, have a lovely time with your new grandchild. And of course her parents.
Luv Min

Hi Keith,
You don't know how much you appreciate the NHS until you need it, but we have to improve or stay the poor man of Europe for cancer survival rates. There is no easy answer and change hurts, but if its better so be it.
Early diagnosis is the key and those people with MM often do not get this. Perhaps the private sector would be paid by…[Read more]

Due to all the fingers and toes crossed by the beautiful people on here, I have an appointment with HR on valentines day to discuss my redundancy package…………….yippee, I will be drawing my pension soon.
Luv Min

Hi Jo,
He was on a low dose of aciclivor following the breathlessness which turned out to be DVT so he takes half a tablet three times a day. Most days now his ankles and feet are swollen, cannot work out the cause, some days its worse than others but he does have water tablets to deal with it.
The sciatica is much better thanks, not gone…[Read more]

Thanks Bridget,
Actualy today he said he felt better than he has in ages. His reasoning being the velcade must be out of his system? In fact he remarked that he was feeling stronger, than he has since he started on velcade really did not do him any good. what little muscle tone he had gained before his relapse was lost whilst on…[Read more]

Gaye
There you go blazing the trail for the rest to follow. Peter was meant to have a second balloon kyphoplasty in Dec and two days before it had to be cancelled, because of his darned newly acquired thrombosis. He was absolutely gutted as the relief from the first op where two were done was brilliant for him. His D dymmer numbers are getting…[Read more]

Dear Bridget
Send your other half to the pub on Tuesdays so you can watch in peace and on a big screen. Peters clinic days are Tuesdays ,so egg and chips and the hand control are my idea of heaven on Tuesday evenings. Have been known to go to bed very early in order to watch undisturbed. Otherwise its Sunday morning while doing the ironing.
I…[Read more]

Gaye,
Im not a fan Im afraid, work in a Scenes of Crime office and hope it does not alarm anyone because unexplained deaths are sadly regular events…. Well actualy its burglaries and car crime. When I used to watch it with the previous main character it was so far from the truth I lost interest.
But I do love Holby have watched it…[Read more]