As well as the fact that we still have snow after 14days which is driving us mad. Today the cause of Peters breathlessness was revealed,
Following a clinic visit we saw the consultant who did bloods followed by a scan and xrays which showed up as a blood clot in each leg behind his knee.
That was the 1st kick in the slats followed by the news…[Read more]

Hi Stuart,
Big thank you for the new web site.
I am finding the discussion forum, very slow to load,compared to the old one and the last new one: both on an apple mac and windows xp. Am I the only one experiencing this slow loading of any page on here?
Used to be able to click and see, now there is a considerable delay after click!
Min

I love it Gaye so much so I have ha to steel your photo for my facebook !
Just wish that was the kind of snow we had, It is now over a week of daily snow and freezing temperatures.
WE are sick of it. Driving is a nightmare. Walking is exhausting. The central heating is on 24hrs, Where is the Global Warming?
Min

Roz,
Peter does not talk much to me about his mm, and having been off work for 18months he was pretty much reliant on me for any conversation.
His boss came round on 2 or three occasions in all that time and he chatted to him, then his boss got bowel cancer and started on Chemo etc.
There conversations now are weekly, comparing treatments…[Read more]

Here is the photo of our snow
Thanks for that advice David . Don't have time to read papers these days but can surf e bay and have ordered 2 pairs one for each of us.
Just learned that I can apply for redundancy so will finally find time to read the Papers if I get accepted woopee do
Min

The powders peter was given sound like the ones Bridgest speaks of and they are called PRO-CAL. Peter used them when he lost over 4 stone in weight. Only on prescription and really are tasteless.
Your dietician nutritionist or Macmillan nurse can decide if they are suitable for you. In the mean while tuck into Bacon and Eggs, and all those things…[Read more]

Well you sound really Perky—–get it. Keep it up and you will be home before you know it.
David, love your choice of music to get those cells seated, but need some soothing music to let them rest once they find there way home. Not so much of the rock as serenades. Don't want them jumping off ship
Don't you think…[Read more]

Peters started his second cycle of velcade yesterday, and today he is breathless so its obviously the velcade thats causing it. But not unbearable. However he is back to using his stick as a result to rest on as he cannot walk far again.
Update on the tank…. he is using it to chase the cats who are terrified of it. But as a passtime it…[Read more]

Hi Norman
Firstly, look up on this site http://www.myeloma.org.uk/intro-to-myeloma/myeloma-news/ News about zometa.
A biphosphonate that my husband has been on for 18months now. He has a drip in the day unit every 6 weeks and it takes about 30minutes, following which he usualy feels as if it helps with his bone pain. His consultant has several…[Read more]

Hi David
Your five star accommodation sounds just like the one Peter would have had if they had not sent him home after 3 days!!!! to do his isolation. It was a lovely room with en suite tv, even a games console in the drawer. Plus his own fridge.
The day has arrived and all the waiting is over. bit like waiting to get married !!!!! It will…[Read more]

Roz,
Im so sorry for all that you and Michael have and are going through. It makes me angry to hear of them not keeping you informed. In this day and age its a perfectly normal expectation.
I cant see any reason why the consultant cant ring you, or you ring him. Its not the ideal situation but its better than sitting waiting and worrying.
a…[Read more]

You know what John, while I was doing some research and ordering one for Christmas,on the internet. He went out and bought one himself. It is darn clever fires bullets and sounds like a real tank. (look up heng long tiger tank) Now I have another one coming so will have to play with him… read into that what you wish!
ON a serious note this is…[Read more]

Wow Bridget
Your team are certainly on the button, Its great to hear your news, What would the surgical remedy be? did they tell you.
I dont know what damage you have, but I do know how with 5 vertibra crushed Peter is in constant pain.
It went away for a while after his 1st kyphoplasty but the pain returned 6months later. did not know then…[Read more]

Roz
Just a thought, have you both considered getting a second opinion? A few of the people on here have had experience of Dr's who are not up to the job! That is not to take anything away from the excelent ones we now have but Dai's treatment in Wales is a prime example of one.Peters problems with his kidney Dr another.
One wonders if a second…[Read more]

Hi Roz
Im so pleased your back I was getting worried about you and Michael:-S
Lots can happen between now and Christmas, and they usually let people come home for a few days over christmas from hospital, so keep your fingers crossed and I will cross my toes for you;-)
We will be staying at home for the holiday as peter has Velcade on xmas eve…[Read more]

Hi Jackie,
My husband was diagnosed in Aug last year. At that time he had dreadfull pain, could not climb the stairs, lie in bed, or do much of anything due to the pain.
It may take a little while fo them to find the drug that works best on his pain. Peter for instance found that oramorph gave him indigestion. He has the same pain medication as…[Read more]

Hee Hee John
Before mm Peter knew how to do as he was told but since then he has become dextankerous… Dex has a lot to ansa for. But today he is feeling really good found a new bottle of stuff called Ferogobin b12 its for iron production and he started taking those q10 something or other tablets for his cramps and for the 1st time in over a…[Read more]

Hi Elizabeth,
Peter had Baloon kyphplasty done on 3 of his lower vertebra in December last year, He had immediate relief from the pain, and gained about an inch in height. He went from taking mega doses of morphine to taking 2 paracetamol. There are several reasons for them not being able to give you back height
1 The length of time from…[Read more]