brocho replied to the topic New and confused in the forum Under 50s 14 years, 7 months ago
Hi Eve not sure what your question is , Gary has qa sister who has just been diagnosed with mm. love Bridget x
eve replied to the topic New and confused in the forum Under 50s 14 years, 7 months ago
hi Everyone
Can some one tell me what has Gary O Brien??????? Eve
tom replied to the topic Is there anyone here from South Wales/poss link between prostate cancer & MM? in the forum Treatment 14 years, 7 months ago
Hi Helen and John
Gosh what a job they made of the BMB, I have been very Lucky with the Nurses and Dr that did mine, ye I knew I had it but could drive home and even went to work the morning after my first one :-0 yep it hurt but hey ho it has to be done 😀
And gong back to the shaver I had to get one when I had my Transplant so I did not…[Read more]
gina45 replied to the topic Grief in the forum End of Life and Grief 14 years, 7 months ago
Hi Chrissie, i am so so sorry for your loss. I lost my mum on the 30th november 2011 to this awful disease that takes no prisoners. My family was with mum at the end at her home where she wanted to be. I tell myself that i am just pleased that we got mum home where she wanted to be and at the end she went peacefully. mum didnt want to be the way…[Read more]
tom replied to the topic A very merry dex – mas! in the forum Treatment 14 years, 7 months ago
Hi Mari and Steve
You are more than welcome and am pleased Steve is better.
I know how Steve feels liking the beer but it does bloat you up with the treatment and I found Vodka was better for me or the odd bottle 😀 of red workes for me also.
I do my Vodka with Lemonade but only a little bot of lemonade 😀 and a good glas of vodka…[Read more]
tom replied to the topic Exercise and supplements. What do you think? in the forum General 14 years, 7 months ago
Hi Heather
Great to read you are More positive again.
As for exersice I love a walk and bought myself a new Bike (i know i spoil myself:-D ) and my Dr said it was Ok as long as I dint do mountain climbing with it lol.
Take care and Keep fit
Love Tom "Onwards and Upwards" xxx
tom replied to the topic REMISSION. in the forum General 14 years, 7 months ago
Hi Eve and Slim
Well as you know I am in remission and only have Zometa every four weeks, but thats not to say I am back to my normal self (even if i knew what normal is/was)
Had SCT in Dec 09 Back to work May 2010 and still working (well clocking on lol)
I had to get some sleepy Tabs to help me to have a half decent nights sleep and…[Read more]
tom replied to the topic Grief in the forum End of Life and Grief 14 years, 7 months ago
Hi Chrissie
Iam so sorry to hear about David its such a shame to lose some one to this Bloody MM.
Please dont beat yourself up over wether you should or should not have started the treatment as you know David was a fighter and wanted to do his best to beat it.
Love and Hugs
Tom xxxx
eve replied to the topic Grief in the forum End of Life and Grief 14 years, 7 months ago
Hi Chrissie
I am so sorry for your loss,I am also awake in the early hours wondering what the future holds,we never know what to do for the best, you just try to do your best and try to remain positive.
People who have been through the same thing will reply to you,and try to help you get through this awful time,just try to remain positive,and…[Read more]
eve replied to the topic REMISSION. in the forum General 14 years, 7 months ago
Thank you everyone for your good wishers and advice on SCT.
Still waiting on letter from Kings.!!!
Slim stopped Chemo a week before Christmas and has not been well since,it started on Christmas day,and has gradually got worst,on his last blood test on the 28th his kidney level functions were just starting to rise,so more blood test this…[Read more]
DaiCro replied to the topic Another farewell… in the forum End of Life and Grief 14 years, 7 months ago
Thank you one and all,
Yvonne didn't suffer at the end… it seems a nice and peaceful way to go in my eyes and I would like to think that I will slip away like that. I know Yvonne knew the possibilities and I know she had started her goodbyes a good while ago.
It's not earth shattering or tragic… just very sad for all those who knew and…[Read more]
tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 7 months ago
Hi Kay
Aww Bless If its not one thing its another 🙁 Gout is pretty painful or so am told? heres me thinking you could only get gout in your Big Toe :-S yep am a numpty of the first order:-/
Hope The Tabs work untill all bloods are checked.
Love and cyber hugs
Tom xxxx
kaychappers replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 7 months ago
Oh well saw Rheumatologist. He does not think it is arthritis. Did loads of blood tests. Maybe gout!!!!! oh great on top of MM I have pain in every joint of my body now. Prescribed co codomol for pain until blood tests back. Dont want me to have anti inflamatories because may cause kidney problems. Saw that Bonefos can cause joint pain. Maybe…[Read more]
kaychappers replied to the topic Newly diagnosed and unable to swallow Thalidamide Capsules in the forum Treatment 14 years, 7 months ago
Hi Mandy. Your poor friend. Firstly to find out she has Myeloma and then having difficulty in swallowing the medication which is ment to help her. I think Anne's suggestion of contacting Ellen on the Myeloma infoline is a way forward. Your friend's problem must have come up before. Wishing you both all the best. Kay x
tom replied to the topic headaches in the forum Side-effects 14 years, 7 months ago
Hi Sarah and Henry
Sorry but I have never suffered headaches, I hope Henry soon gets them sorted.
Tom "Onwards and Upwards" xxxx
tom replied to the topic A very merry dex – mas! in the forum Treatment 14 years, 7 months ago
Hi Mari and Steve
Well am pleased that Steve could drink on the combination of drugs and to be honest I never asked if I could :-0 Just thought if I shouldn't then they would have told me he he so it was out with the Vodka and red wine 😎 and here I sit in remission so it dint do me any harm 😎
Hope Steve's ear is soon better and back on…[Read more]
tom replied to the topic Is there anyone here from South Wales/poss link between prostate cancer & MM? in the forum Treatment 14 years, 7 months ago
Hi Helen and John
I have never heard of the link between them both, just popped in to wish you both well.
Tom "Onwards and Upwards" xxxx
tom replied to the topic The Holiday Is Over in the forum Treatment 14 years, 7 months ago
Hi Bridget
And al tell you you done more than me i am not sure where our washing machine is lol.
I know that whatever this MM throws at you you will thrash it
Lost of hugs and Love ((())
Tom "Onwards and Upwards" xxxxxx
tom replied to the topic Velacade in the forum Treatment 14 years, 7 months ago
Hi Nicola,Micky and the "Dick Head"
Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)
Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]
tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 7 months ago
Hi Kay
What a roller coaster for you 🙁 and isn't it great to be told you have rheumatoid arthritis 😀 well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck 😀
Love Tom "Onwards and Upwards" xxx