Hi Dai and Janet

Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D

If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.

I hope you get the treatment you like and am…[Read more]

It will be a tough few days, but for me the waiting is the worst. Once you know what is happening at least you can start to deal with it. HB is haemoglobin which makes the red blood cells which carry oxygen around the body. It fell and I was exhausted. My consultant said 'it proves to me you cannot make healthy blood and we have to start…[Read more]

Hi Everyone

Its now 2012,time goes so slowly when your young,but as the years pass they seem to fly,so my word has to be

YEARLY I know it leaves RLY

But it seemed to fit into the new year. Eve

Hi Nicola

Glad to hear your dad is improving. You are a super daughter and he must be so proud of you. Please try and look after yourself too although I know it´s really hard when life is so difficult and busy.
Best Wishes
Carol

Hi everyone. Just wanted to let you know I saw my consultant Monday and it all looked grim. She said my SCT was a disappointment. My last 3 PP results were 16, 18 and 22. Good news was she believed my bone/joint pain was rheumatoid arthritis and she wanted to get that under control as I am in so much pain, but she did not have the results of the…[Read more]

Hi Dai I do wish you all the very best. When I was speaking to my consultant on Monday she was telling me about a new trial (did not take in the name) and she was so excited about it. It gave me hope that if I did need it I was more than happy to try it. Do let us know what you are randomised too. Kay x

Hi Amelie I had my SCT in September and my PP has risen for the last 3 blood tests, but my consultant said she is not worried due to my HB rising consistently. When I had to have treatment it was because I became anaemic and that is what they will look for rather than rising PP. Myeloma is so so different for everybody. I do wish you both all the…[Read more]

Hi Dai

Just been looking at a site about the trials,sounds very interesting you better hurry up with that 24 hr bottle,as I got the impression that it,s only 700 per country.
Those big bottles get heavy,cannot tell you how many Slim has filled plus they are heavy to carry any distance,so as well as the brown bag it pays to use a couple of…[Read more]

Hi to you both im glad you are both doing ok, i am getting there slowly. The pics i have of mum around the house are ones where she is smiling and happy. I know it will take time and its still hard, but i have to be strong for my family. A fright night is where we stay overnight in a well in our case a very old town hall to see if its haunted lol.…[Read more]

Hi David

Just watched the video,it does bring home about lack of wards for seriously ill teenagers,as you know,my grandson who has CP spends a lot of time in hospitals,last time because he is now 16,he was put on an adult ward,one side an old man coughing phlegm all night,and on the other side,a man making the most fowl smells,with my daughter…[Read more]

Hi Sarah

Just looking in ,could not help with headaches ,but hope the consultant helped on the last visit.Eve

Hi Amelie

Am sure you know I had a successfull sct in December 2009 and am still in remission 😀

But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]

Dai My Condolences to you and Yvonne's family at this sad Time.

I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.

Hope you are keeping well and Take care.

Tom x

Dai i am so sorry to hear your news,its always so sad to lose someone.
My thoughts are with Yvonnes family at this sad time.
Ian my husband, his brother died of an aneurysm in 2009( the year mum was diagnosed with myeloma). I do remember my mum saying at least i have seen my children grow up(Anthony was 0n 39 with 3 children under 5) You know…[Read more]

Hi Amelie,

I officially relapsed 10 months into my SCT remission and 12 weeks into my Velcade remission… and both times I 'knew'… although to be fair I gave this latter a 50/50 chance. Yes there were niggles but then again there are always niggles. For me it was more my 'Goodbut' principle… i.e. I felt good… but knew that I should…[Read more]

Paul, Jo, Terry, Mari & Amelie…

Thank you for your support. As usual, now that I know what I have to do I feel better equipped to deal with the disappointment and move on with as much fire and grace as I can muster.

This is a great board and I love it and all who frequent it muchly. 🙂

Dai.

Hi Gina
What is a fright night ????

Glad to see you are getting on with your lives,it,s hard but it is what your mum would have wished,remember you have good memories there,and that is important,i found the worst thing in the early years was wanting to pick up the phone to tell my mum some news,that,s what I found hard.

But life goes on,and…[Read more]

Hi Nicola good to hear your dad is home again and having a break from treatment Sometimes a short break is just the thing to get your strength back ready to fight the next round . I laughed out loud at your dads name for myeloma so tell him thanks from me for making my day ! Enjoy the time doing ordinary things together, the eating sounds good,…[Read more]

Hi Graham

good Luck for Thursdayay 😀

As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday

Tom "Onwards and…[Read more]