Well Dia
lifes a bitch:-( I am so sorry about the short remmission I will be praying for you in the hope your results are right In America they are using carfilzomid a lot I have been reading James Berensons blog and he has great hopes for this drug.:-) It will be a long haul but I would definately go for it you have nothing to lose
A GREAT…[Read more]

Hi Bridget & Eve,

Thanks for your support… I have just arrived home from the hospital and a meeting with my consultant. She came down from her office, grabbed my file (big, bulging, with an easy to recognise tattered cover) and found an office. There she went through all the provisos and qualifiers for me to enter the 'Aspire'…[Read more]

Hi Dai

So sorry to hear your news.All your hopes built up then crashing down again,this is what we felt when Slim was on CTD one minute on are way to remission with kappa light chains at 10,bone marrow taken for trials only to be told when we saw consultant,that he was shocked to find it had gone up to 80% in bones although kappa light chains…[Read more]

Oh Dai it really does seem unfair that your hard won remission was so short! It sounds as if your excellent doctors are really on the ball thoughwhich helps to take the sting out of it a bit though . I will cross everything for you to get the Carfilmozib on the trial Hang in there Dai your strength and wonderfully positive nature will get you…[Read more]

Hi Michelle

Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.

Sending Hugs and Love

Tom ((())) xxxx

Hi Gina

I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)

I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]

Hi Micky and Nicola

Its Good to have a name for your Dad 😀

I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎

As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎

Catcha Lata say Hi to Micky for me 😀

Love…[Read more]

Hi Bridget,

The holiday's finished and you are back at work… fighting MM and surviving with all bells and whistles sounding… so here's to Bendamustine becoming your best-pal-at-work. With your courage and tenacity and Ben's ability to inhibit you have an excellent chance at knocking MM back. 😎

Please keep in touch and let us know how…[Read more]

Hi Nicola

Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂

Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]

Thankyou all for your replies and kind words I really dont know what I would do without all my lovely cyber friends lots of love Bridget xx

Hi Helen and welcome I am glad you felt able to post on here to get some support , there are so many lovely people on here who may be able to help. Sorry I am not aware of links between myeloma and prostrate cancer though. Your fiance has certainly been through the mill and I am sure the future must seem very bleak at the moment but hopefully he…[Read more]

Hi Nicola it must be a reief for you that your dad has managed to go to the loo Hopefully as the build up clears his depression will ease Its hard to imagine how awful constipation can make you feel , my bowels stopped working for several weeks before I was diagnosed although I was lucky not to have a painful blockage With you by his side I am…[Read more]

Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D

What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]

Hi May

And a warm welcome to the group. Sorry to hear about your Mum.

Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]

Hi David how right you are when you say it puts things in perspective people are just amazing in giving to others when no-one would blame them for concentrating on themselves. A huge loss not only to her family but to so many others love Bridget x

Hi May I am glad you got up courage to post I am sure you will find it easier to cope with support on here. As I am sure you have realised myeloma is a very individual illness and we all react differently to the treatments so its hard to compare one person with another . Try not to get too down that the treatments your mum has had so far havent…[Read more]

oH Bridget

you are being so brave I hope this works for you I am keeping everything crosssed that it works you deserve a really long break from it all I hope the back ache is just a muscle problem and nothing else after all you have been lying around too much:-D and taking it easy ''What just two loads of washing'' is that all

Love and big…[Read more]

Thanks Everyone
For all your support,It is such good news,which has taken a long time to get to this point,but it is lovely to be here,sound a bit stupid,but at times just could not see the light at the end of the tunnel,so its good,good and even better.;-) 😎 🙂

I cannot help thinking about some people who are not posting like Sharon who…[Read more]