Hi Gina thank you so much for keeping us up to date on how mums keeping , she has been in my thoughts a lot lately and its good to hear she is back on treatment . I think getting out and about is a great idea for lifting your mums spirits , I know when the longer I am stuck indoors when poorly the worse I feel . Hopefully there are still a few…[Read more]

Hi Mal and Bruce good to hear things are going well Bruce hopefully it wont be long before you are home again You both hve such a positive outlook on things I am sure it will help you get through the rough bits . Mal I hope you try and get some rest too its often much harder watching someone you love going through tough times and even just…[Read more]

Hi David
Yes it does touch your heart,I could take you some were in this country, very much the same,my grandson goes to a school in Valance school in Westerham in West Kent.A school for profoundly special needs children the only one in Kent

When you go in there are a mass of wheelchairs with smiling children in them,some can operate a switch…[Read more]

Dear Scott
I know,I put weight on all the meals Slim asked for and could not eat,don,t like waste so the dog and I got fat,and Slim got thinner and shorter,
As for drinking, YES guilty,but realised from old,it does not help so try my best to moderate it.( a bottle a day) LOL:-P only kidding but i do understand.:-S
When I was . 30 I had a life…[Read more]

Same here Eve

Thats the best way to be we always say think positive.
Im sure he will be fine.
Gina xx

Hi Mal and Bruce,
I hope everything goes well with the stem cell treatment.not well up on it mum hasnt had stem cell.
But it sounds like things are going well. please keep us posted
Take care
Gina xx

Hi Min,

My heart is lifted and cheered by your news. I am so glad that you have found something to look forward to… I am sure that the days will be filled with exciting things to do and the time spent with Tony will do you the power of good. 🙂

I loved your photo of Peter and Tony and I thought at the time that if Tony's hair turned…[Read more]

Hi Everyone
Sometimes you just do not believe what can happen in such a short space of time,I do not know which is worse,1 year or 15 years,It,s never ever going to go away.I suppose we have to draw strength from any remissions and as you say sue,there are good times,
It has made me appreciate Slim more,as for bringing us close,we got married…[Read more]

Hi Everybody
Nice to hear everyone getting out and about:-)
Jean the pneumonia jab is good ,once in a lifetime but will not protect you from every type:-(
Glad to hear your enjoying Spain,and Ted enjoy your holiday to Cornwall.
Love Eve

Hi Sue good to hear your day wasnt too bad even if it was tiring( it always is!) Interesting news about the new trials I will keep my eyes and ears open too Incidentally my consultant feels that not being able to measure paraproteins should not prevent us from taking part in trialsas I had been told before , they can only measure any activity…[Read more]

Hi Craig
How did you manage to get sod through the senses ,you cannot say h-e-l-l with out getting your hand slapped on here:-P lol
good for you ,about getting help,don,t forget some people never ever draw there pension on here,work for a life time,and never get to collect.So take everything you can,I got messed up by pension people who lost…[Read more]

Hi Min
So glad you are looking forward to the holiday,There is lots to do there,the only thing I found was just keeping myself covered up,except in pool or in hotel,need light clothes,taxi,s can be a bit of a rip off,negotiate before you get in.Good place to buy gold.Have a wonderful time.
Do not forget to tell us all about it when you get back.:-) eve

Hi Eve and Helen,

I find it hard but still, I offer a weak and conditional congratulations to you both.

The conditions are due to the fact that I sincerely wish that MM had never crossed your paths… that when your illness was finally diagnosed that it was almost anything but MM… in hindsight that is what I wished for myself at your…[Read more]

Hi Mari
How are things going for Steve and yourself ,its all a bit of wait and see,not a nice position to be in,but it just might be a blip
Hope Steve is keeping fit on the bike,long rides might take his mind off things.As Deb say,s retail therapy is a good thing shops are full of lovely things,might be worth your while to take your mind off…[Read more]

Good Morning Every One
Susannah thank you for information and yes i will be interested on your husbands progress,it,s a good thing for us to know about new trials,and it has to be helpful to you to be able to talk about it openly so I am looking forward to see how things are going,about the Dex on MYeloma X1 trial the dose was reduced on Slim to…[Read more]

Hi Min and Mavis thankyou both .To be honest I am quite relieved I dont have to wait any longer to begin treatment , the doctor I saw today said he was just going to go ahead rather than waiting for funding approval , good man ! Iwill have to be very vigilant about getting myself to the hospital if I get an infection sooner rather than later ,…[Read more]