Dear Gaye

Rest In Peace, I am so sorry I missed your Last Posting with not getting on here often.

You were and still will be an inspiration to me and I will miss your cheery Posts.

Love and Hugs to us all at this sad time ((())))

Dear Sarah

I am so sorry to read about Gordon, I send Our Condolences, Love and loads of Hugs.

Like most of us on here we dont know each other only through the airwaves, but i for one think of every one of you be it Carer/family member or MM sufferer as My Friend and with that in mind its hard to know they are Ill and suffering with this…[Read more]

Morning Ted

Not a problem re the reply 😀

Yep we are all sorry to have this darned MM and its strange I have gone through a Stem Cell Transplant (december 09) and to look at me I dont have a thing wrong with me I look fit I look healthy and the only treatment I am having is a Zometa Infusion once every four weeks:-S but I know I have got…[Read more]

Oh Min you must want to shake him till his teeth rattle !! I am sure he knows you are looking out for him but I bet its a case of trying to remain in control when he feels out of his depth . I hope you can talk some sense into him when he is feeling a little better To be honest your post has made me feel a little guilty I am not very good at…[Read more]

Hi Susannah it really does seem unfair that Michael can only have Bendamustine as part of a trial . I have been tol it is one possibility for my next treatment , no trial , I am under UCH London. This postcode lottery for medication makes me so angry and the extra stress it brings we could all do without . I hope Michael is feeling a little better…[Read more]

Hi Pauline,

I appreciate how difficult Monday must have been for you, especially as it came from left field without reason or warning. I don't know your husband so I cannot pass judgement or offer a rationale for his behaviour… but I do know where he is coming from? and I believe I know where he is going.

You want to live each day to the…[Read more]

Hi Susannah
I do not know any thing about Bendamustine trials only MX1 trials,I can only go on information I have.This is were Gaya would be very helpful,she fought hard for frontline drugs.
It is postcode lottery,you would think having roughly 3000 patients diagnosed with mm per year they would be trying to sign them all up for trials,because…[Read more]

Hello Dia

I too am old enough to remember 2/6 half a crown that was my pocket money;-)

as for getting confused I am always making journeys up and down stairs forgetting what I went up for going out in the car getting to the end of the road and turning back having forgotten some:-P thing again I think its call senior moments
Love Jo

Hi Gill and Stephen

I am so sorry Stephen is still not feeling so well lets hope he is soon up and walking like he did sfter the first SCT
GOOD lUCK
Regards jO

hi min

dont beat yourself up about your caring skills i dont think peter would be hear if it wasnt for you and your care so chin up and look after yourself

Love Jo

i also cried she was so brave and tried so hard an inspiration to us all Rest in Peace Gaye
Love Jo

Hi Min,
You are making me laugh,I know it is not nice,but you know I have been there before,I made up my mind next time it happens I will refuse to take him home.I liked the grassing up bit:-)wicked
I have told Slim I refuse to go though all that again,I felt so guilty I blamed myself for not calling an ambulance sooner.He does not remember much…[Read more]

Hi Min
As you know Slims on clinical trials,and must admit some good some bad has come out of it.I do not think it is wholly for are well being.
First you have to ask yourself does the consultant feel so strongly that this medication is the best he can give: the answer should be yes
Second Is the consultant just interested in advancing his own…[Read more]

Sally i am glad your dad is going to be starting treatment, its always such a relief as you just want them to be better again.
Please let us know how everything goes and keep us posted.
Take care
Gina xx

Thank you ladies its much appreciated that you are thinking of my mum. I have been on and replied to Gayes post, i didnt really want to put anything as i know how upset everyone was upset on hearing about Gaye passing away, just has i was i think it hits us hard and brings it home on how awful this disease is and how quick it takes hold.

Mum at…[Read more]

Hi All
We find are senile moments very funny at times,were does the day go,looking foe keys can take up time,My husband refuses to go in my handbag,he claims he could loose his hand in there,the more we try to be more methodical,the worse it gets how many pairs of reading glasses get lost!!!.then add this Myeloma to the mixture with all these…[Read more]

Hi Gina
I was just thinking the same as Jill how are things going with your mum
love Eve

Hi Sally I am glad to hear your dad has begun treatment , fingers crossed he will begin to feel a bit better soon . He will probably still be tired when he is on treatment but he will learn to pace himself . Great that you have been in contact with social services and I am sure they will be a great help The Macmillan nurses are brilliant and very…[Read more]

Yes here… seemingly every night.

Dai.:-P

Regarding the holiday… although it is only 8 days back home in Wales with family it is quickly taking on a significance beyond its stature… with 2 brothers and 2 sisters and their spouses deciding to make it a really chilled out get together. Janet and I are really looking forward to the break and now that my leg is decreasing I am driving…[Read more]