Hello Gaye

Although I don´t know you may I say a personal "Thank You" for sharing your decision. I think many of us will understand very well your thinking process – for me I know that there will come a time when it will seem more natural to go rather than stay.

I wish you peace and loving support throughout the coming days and I am sure…[Read more]

Thank you all again,
Mum has now had the chest drain and they have sent the sample off so hopefully we will soon have our results. She is happier now that she has had it done and i know we have a long way ahead of us .But i am thinking positive again and hoping things will go well xx

Gaye, i am always inspired by the people on here that are going through this horrendous disease. I wish that i could talk you into giving it more time but then again i am not going through it, my mum is and she has more or less said the same.
I will be thinking of you and i hope that you are comfortable and well looked after.
I want to thank you…[Read more]

Great news from you Gill and Stephen,

I truly hope that this freedom from pins, needles and their associated attachments is combined with freedom from MM and a meaningful remission.

The best of luck with the blood-works.

Dai.

My Lovely Gaye,

You were a great strength to me when I first came to this site and you remain a great strength to me now.

I can do no more than accept your decision, as much as I would like it to be different… but I know that that would be wrong, just because I find it so hard to think of a world without you in it.

I am sure that the…[Read more]

Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve

Hi Gina

Sorry about your mum,Its not knowing when to make that call,thats the hardest thing,don,t we get conflicting info,telling you to see your doctor!!!! I have been told that if Slim is ill i have to take him to hospital as they can tell within half an hour if he has an infection,and the first couple of hours are crucial !!!
Anyway I hope…[Read more]

Hi Gill and Stephen
Keeping my fingers crossed for you,it must be a horribly waiting game for you both,plans on hold until you find out,but France beckons.:-)
it is lovely to have some good news,and i hope by the end of this month,you will be over the moon,and making plans.

Slim is in limbo at the moment,with ctd stopped and conflicting…[Read more]

Hi
So sorry your mum is so poorly and you are all under such a strain. I was in a similar position to your mum last year and have to admit I felt not only low but a real burden on my long suffering husband. As soon as the antibiotics etc. kicked and I started to feel a bit more positive I saw the relief on his face and realised that this is…[Read more]

Hi Gina your poor mum is really having a tough time lately it doesnt seem fair. I hope they get the answers they need from the tests very soon and they can then give her the treatment she needs. She is bound to feel down but hopefully her mood will pick up soon , she seems like a very strong minded lady and I cant imagine she will stay down for…[Read more]

Hi Pam i am so sorry to hear your dad has passed away , i am glad that he felt no pain, but will be thinking of you at this sad time
Gina xxxx

Hi Susannah, im sorry Michael is in hospital, my mum ended up in there weeks back with an infection. Hopefully they will be able to sort it out. At least he is in safe hands.Please let us know how he is doing and keep us updated, i will be thinking of you both
Take care
Gina xx

Wow what great photos it would have been such a shame if they had remained unseen you are so very talented!!Thankyou for sharing them with us and I am sure the exhibition will be a huge success best wishes Bridget x

We now know what the breathlessness is,mum has fluid on one of her lungs.she is in hospital on the mau, they are doing an injection to get a sample of the fluid to see what it is and also an ultrasound of her chest. So its now a waiting game again.
Thank you for your support it is most appreciated
Gina xx

Hello Dia

glad you got your scan if they had done it sooner you would now be further down the road How about a picture of you modelling your sox(very sexy) every picture tells a tale! I hope you have a really good holiday go away and try and forget everything for a week just enjoy your family8-)

Love Jo x;-)

Hi Mary

glad to hear from you I hope you have a good time in Ireland I am sure you will weep a few tears on the way because it will bring back fond memorys
GOODLUCK with the sky dive my daughter also did one in New Zealand she said it was the most terrifying then the most exciting thing she had ever done

Love Jo

Hi Dai
I hope you had word with the tech who did the scan!!!
Janet this is a message for you if they only give you to pairs of stockings go out and buy more,if you have something the size of a bottles when washed put them on bottles to dry,trick i learn,t,if you want to save money have a swear box handy,because you will be .>:-(.
On a serious…[Read more]

Hi Gina sorry to hear your mum is still poorly but its amazing sometimes the difference a few days can make Paraproteins are coming down nicely and this should continue even if they halve the Velcade. I too thought anti-inflammatories were not good for us. Good luck and hope your mum feels better this week love Bridget x

Hi Pam so sorry to hear your dad has passed away . A peaceful end is all we want best wishes Bridget