Hi Ted

It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.

Hope that…[Read more]

Hi Charlie and Mary

Aww bless you Mary I feel you are being overwhelmed by this cleaning lark !!
Yes I had. An African Grey Parrot and trust me they are dirty dusty birds and we have a dog, we coped as you two will, it's just same as keeping a new baby's feeding bottles sterile and clean.
As for Charlie's other room well I slept in another…[Read more]

Hi Tom x Tom (I'm a Thomas too but go by Dai),

I have seen that the symptoms are listed and a nurse mentioned a sheet last time… she asked me if I was given one and I said no… she said I would have one to take home but I never got it… I will ask for one next time I am in.

I don't think it is proper flu Tom, I don't have any of the…[Read more]

Hey Babs
Thanks for that but am a lot better thanks to the Anti B's and am now back at work.
Yes I wish I could have Just the good old fashioned Cold Lol.
Get one of those Onseie's bought they are very warm and that's what I want.

Hope your Soon Better Babs

Love Tom Onwards and Upwards xxxx

Hi Terry

I was told same all work is Ok bar an extraction, but am sure your dentist will know this make sure he knows what you are taking and what you have had done and leave it up to him to say Ok.

Happy Filling
Tom Onwards and Upwards

Slim
I have to say you are well and truly Spoilt well done you.
And Eve am not sure if I should tell Slim or just leave him to his own Imagination Lol.

Love from one Tender and cold footed MM sufferer awaiting massage 😉

Tom xx

Hi Dai

Am Sorry you have the Flu symptoms with your Zometa and no one made you aware of it, I can say that I was told what Might happen whn I was going to get my first one and was given a Sheet to take home and study with what migh or might not happen after Zometa inf.

Hope its not proper flu you have and don't know Dai.

Tom Onwards and…

Hi Terry
I have only just seen your post because I have been "out of things" for a while – chemo etc. getting ready for the second transplant having had the same rotten news as yourself. I don't blame you for being bitter but at least they found it early – mine seems to have becomr non secreter (not sure if that's exactly right)so the urine…[Read more]

Been their and done that Terry my old friend 😀

BUT Turned my sorry little ass round and now face it head on (not always with a smile though).

I get asked how I cope with the prospect of Dying ?? I say the same way I cope with Living, one day at a time, yes I was given "Notice" that I have a terminal illness, but that's just warning me…[Read more]

I had my 2nd infusion of Zometa last Tuesday, tagged on to my 2nd infusion of Bendamustine Cycle 4. I had similar side-effects to those described as fitting to "Zometa Flu' after the Ist infusion but nothing drastic and the side-effects disappeared after a few days. This time it has been different.

First off I have to say that I have no way…[Read more]

Hi Helen

Well well done on the good bits 😀 and am sure the bad bits will get better 😉 .

It is that Roller coaster that we all dread aint it.
As me ole Aunt used to say "Get some more Veg in ya itll mek ye better (as bloody if lolol)

Love Tom Onwards and Upwards xxx

Hi Paul

Welcome and well done, I also am 57 but I had all mine done in 2009.
You have done well with it am pleased to read, keep it up

Tom Onwards and Upwards

Hi Helen

Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.

They…[Read more]

Hello Tanya, I felt i had to answer your post as i have been there myself. My dad passed away in 1989 age 52 of cancer he was an alcoholic and wasnt very nice to my mum as we grew up,but he was my dad and I loved him. My mum then found out she had myeloma in 2009 and fought bravely for 2 and a half years. We were all with my mum at the end and I…[Read more]

Hi Terry

You are in the shock stage,Slim only got 6 months between 100 day BMB and the next one,your life turns up side down,we thought he might get 2 years,so yes it,s a bit of a bummer,Helen says it bites you in the bum,when you do not expect it,I call it a shark attack.

Slim worries about me,why???.you cannot change the future ,I want…[Read more]

HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon

love jo x

Hi Mary

No am sure you wouldn't want to "Shove" him in another room ha ha.
It will all work out am sure. give the dogs a good wipe when they come home 😀

Tom Onwards and Upwards xxx

Hi Maureen & Ian

Doing Better now been on Anti B's for 5 days now so think am ready for back to work Tem is Normal now and last nite so its gone 😀 ps its Vodka and lemonade Lol

Hi Jo

Am sure you didn't yours was bad I dint need hospital am pleased to say just a couple of extra days added to our week end and fixed.
My Tem was running…[Read more]

That's what we love to hear David "So far so good nothing out of the ordinary to report"
Lets keep it that way My Friend.Vasbyte

Tom Onwards and Upwards 😎