Hi Chris
Keep your han on that roll at least you dont need to put it in the fridge lol.

I had lost loads of weight pre SCT and was still shocked to see it still falling off after SCT but I can confirm it comes back with a vengance LOl
Keep well Chris, not long now

Tom "Onwards and Upwards" x

Hi Pat

Am sorry to read your a bit off it girl but its the norm :-/ its MM for you.

Now I remember getting a grean ring around my neck from my "Gold 😛 ) neckless but that was after I went swimming with it in the sea lol, but I have never heard of silver doing anything with treatment ?

Am sure you know am now treatment free 😎 but…[Read more]

Hi Vicki and Colin

Well its a bit rough aint it and we are all sorry to hear that BUT it has to be done and its just a wait and wait now am afraid, when the rough bit gets to Colin am sure Like me he will sleep through most of it I hope.

This SC things not a fast fix and to be fair Colin and yourself will be knackered for a fair few months…[Read more]

Hi Kerry My sister and I are doing a coffee morning/raffle/tombola on the 1st of December, my sister has booke the etherow lounge in the town hall in Ashton under Lyne. We are trying to make it bigger this year as it will be a year since mum passed. We have got lots of little prizes,the stuff for the drinks and people making cakes etc.
But my…[Read more]

Hi Vicki and Colin

Just checking in to see how you both are ?? and Vicki you must rest and get your strenth up cos your work will start more when Colin is Home.

Lots of Love from one "Onwards and Upwards" to anothe Couple of "Onwards and Upwarders" xxxxx

Hi Chris

Well its working and I hope you dont get the "Trots" but am sure you will he he.
My trots dint just stop when I left hospital so be warned.

The sleep is good for you I spent 5 days asleep and some time woke up to find a not from Elaine saying she had been Lol

Keep it Going Chris not long now.

Tom "Onwards and upwards"…

Hi Tina

Well I feel for you, I had all mine done Xmas 2009, that xmas and new year was a wipe out for me missed it all as I like you was being sick, couldnt eat and felt too weak to move some days. (and thats only what i can remember) as for the sickie thing I stayed on Anti Sick Pills for MONTHS to keep that at bay. and the food we aorked…[Read more]

Hi Tina

I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.

It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]

Hi Everyone
Well I feel less stressed out just reading these posting,so may be that is the answer come on here and talk about it,because the people who reply are all in the same boat,and if they are not,some time in the future they will be.So we help each other.

David I loved the bit about your grandson,same as one of are grandsons,he wants…[Read more]

Hey Folks and as David Said Good reply's 😀 I am like most of you on here yep got it but dont want it, fight it but would rather have a rest every now and then and thats what am having now a Rest before my next treatment needs to kick in but as am still in remission am not expecting it too soon8-) but will I be upset sad and angry when it kicks…[Read more]

Hi Sarah and Henry

I have suffered lord knows how many chest infections since finding out I have got MM so its an MM thing but I have been told not to bother with the Dr to phone our ward up and ger advice and or pop in, the kept me once and put me on a drip and sent me home other times its just Anti B's with a come back if temp gets too high,…[Read more]

Hi Vicki and colin

All Looking Good now and do you know the one that says "Onwards and Upwards is very happy for you two take it on board also so then we can have more "Onwards and Upwards" folk 😀 its not done yet you tow but its Looking good so keep it up and it wont be long now, stay well and bug free.

Love to you both.

Tom One…[Read more]

Hi Sue and Michael

I am so sorry to read that its not working for you two and of course your family and friends.

You all have put up a great fight with this Myeloma,am sure Michael will be made comfortable and be pain free, Yes you both could have been told better that the treatment had stopped working but please dont dwell on it as you…[Read more]

Dear Sue, i am so sorry that you were told the way you were. my mum passed last november and we were told there was nothing more they could do and we asked how long, they couldnt say but did say imminent. mum went home and had palliative care there and she was glad that she got her wish. She passed very peacefully.
I am so sorry you are facing…[Read more]

Hi Marlene

This is just to say hello and welcome.

I cannot help with your questions,but I am sure someone will come on and give you some answers,may I ask how long was your husbands remission and what arm of the trials he was on.?????est of Luck Eve

Hi Sue
You are right it could have been approached in a different way,people say when you have news that shocks you,you only hear what your mind will accept.So may be no matter which way it was put,it would have had the same effect,

I do not think any one can give a person a time limit,yes they can say,the treatment is no longer working,and no…[Read more]

Hi Sue,

I am so sorry that Michael has reached the end of effective treatments. It is pointless saying that he had a good run because regardless of the timescale he has now reached the end of his fight against MM.

It seems that by recommending your local hospital for palliative care your consultant has confirmed that Haematology can offer…[Read more]

Hi Sarah

I think Dai is right concerning the chest infections,when henry had the SCT he was given lots of tablets to stop different infections,I am not talking about normal antibiotics,in theory if Henry has been treated with antibiotics plus steroids,his chest should clear up,unless he has damage to his lungs.

You must trust your own…[Read more]

Just a 'Best Wishes' for as smooth a SCT as is possible and to reiterate Davids advice about post recovery.:-D

It's taken a long time to get here… now see it through and enjoy the results.8-)

Dai.

Hi Sarah,

I assume its your GP that you have been seeing… if so you need yo get Henry to your Haematology team. They will be far more knowledgeable about how MM and chest infections go together… even if it means going in far a far more powerful anti-biotic through an IV drip. 😎

The longer this goes on without the proper treatment,…[Read more]