Hi Min
I am the same,if i do not eat Slim will not eat,hence the weight gain.
Three dogs seems like a good idea,eating waste and all that walking!!!!

Previously to this illness,i shopped once a week,now its every day,it is something that Slims taken over,spending more money and wasting a lot of time,but he enjoys something he has control…[Read more]

What the heck!! Enjoy what you can, when you can xxx

Interesting that it is all females posting on this topic I wonder if the men don't notice or bother about weight. I do hope so then Stephen won't notice how broad in the beam I have become:-)

I have no medical knowledge or training whatsoever but I cannot understand why a picc or hickman line is not fitted as a matter of course. Stephen (mm person) has had a line ever since needing regular bloods taken and medication put in. His current line is attached to his chest with 3 tubes coming out of it (no restriction to any daily task). One…[Read more]

Hi Eliz
I know it is unbelievable,nearly said some (miracles do happen) but thought better not.Called Slim in with bag of drugs in hand,saline drip first then Zomita,and while that was working,went over drugs with me,gave me blood results asked if any problems,even had a cup of tea!!!!!.that,s what i a service.
it took us both by surprise.eve

Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be…[Read more]

Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the…[Read more]

Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing…[Read more]

Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in…[Read more]

Here Here I was wondering if she is OK I too have tried to contact Bridget away from this site and got no response

Hope all is OK Gillx

Hi All

I have thought about what I posted and have realised that I am not actually "rude" (at least I don't think so) but maybe have become too honest.

When asked by the server in a multiple eatery where we had breakfasted during a long journey (the one where a chef is tiny) "how is your meal, everything OK?" Instead of my usual reply of…[Read more]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

So pleased you managed to get a decent quote I hope you have a great time.

Just to add for info that it is also worth looking at MIA and we found that we were insured by our general health insurance for travel. So do check any insurances you already have

Bon voyage Gill

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

I have only just caught up with your post of Amy. I have fond memories of listening to very talented tribute bands on various holidays. They always seemed to be having a fun time as well as entertaining the holiday makers. She sounds really good and I hope she is having a great time.

Fingers crossed that you get over to see her soon.

Love…[Read more]