Hi Roz
I feel like a naughty school girl,the first time i thought what an earth have I said,because I do not swear normally,I was upset by the whole thing,and thought,have i offended someone.
The second one ,was saying H-e-l-l.Tom told me how to get round it,but you have to question ,who would find it offensive
Glad you seem more upbeat…[Read more]

Hi Everybody

Slim was changed to Oxycontin in hospital,when we asked why,told it was better because it worked longer up to 12 hours,I think they said it was opium based,morphine mst worked faster,but the body gets use to the drug and becomes less effective leading to higher doses.
As for Tramadol Slim was taken off them again by hospital as…[Read more]

My heart goes out to you Angelina for all that you are going through. My husband (Stephen) is the mm person in our life.

We had a very lazy morning laying in bed until about 8 am and chatting. I told Stephen about your posting and we came to the same thought.

A memory book is a wonderful idea. I did one for my mother in law when Stephen's…[Read more]

Thank you Dai
Dai you are in the right,It does get me down,today was another hospital day,believe it or not we were only in there for one hour miracles do happen.

I think you are right care,s do get overwhelmed,many cannot express them selves,i must admit my spelling has got much better since I have been posting,but my grammar needs…[Read more]

Hi Roz

You hav not heard from me before,so when you posted again I thought if I replied you might think{who is eve]:-)
I came on this sight in February husband has mm.but do not think you are forgotten I read all your posting because i had to know what the future held,I have thought many times how you were getting on,so many people come on…[Read more]

Hi Wendy
Sorry to here you are in hospital,Raging diarrhoea not nice,but you are in the right place,if it was a infection they would most probably not like to have admitted you! fluids is the big one with diarrhoea,and being an impatient any test will be done earlier.It must be very hard to cope with living on your own,
Hope your well soon love eve

Hi Gill
Hope Stephen picks up soon,think about a good holiday in France when this over,that must take some of the pain away.When we go to Dover and watch the motor homes going on the ferries,I have pangs of jealousy knowing it is going to be some time before we manage France.

wishing you well Eve

Hi Angelina
I would not know how to advise you,but just had to let you know,my thoughts are with you,I think I would cling on to the fact he would not sign that form,I can see why it is important,to get your life in order,I can remember when Slim was in ITU i left him sleeping,came back 4 hours later he was so upset,he thought because i did not…[Read more]

Hi Bridget

Slims on Oxycontin 30m twice a day morning and evening,also liquid Oxycontin allowed as needed,but if he starts using it all the time doctor will up the pills.but not needed at the moment.

As you know Bridget Slims had a bit of a rough time and can take a lot of pain,the Oxcontin was given in hospital as before Slim was on…[Read more]

I am so sorry to read your post regarding your wife's death. We all take our blood for granted as a nothing and then,when we get into the world of blood problems, we start to realise just what can go wrong.

I do hope you are starting to come to terms with your loss and wish you well

Gill

I wish I had an answer Bridget. Stephen always seems to self medicate (ie takes more than he is prescribed) but it never takes the pain in his back away completely

I do hope that they find a cocktail of drugs to help.

Gill xxx

Hi Min

He will not let me stick anything up his bottom LOL he must be getting better his dignity is coming back,!!!!;-)
Seriously Min its a bit of a fight with Slim,he takes so much,just does not want to try any more,looks if its starting to work,should do drinks it out of bottle>:-(
As for weight gained some then had v&d and lost it.Sorry…[Read more]

Hi Pat and Jane
Min and jo ,s advice is good,just want to add it is important to drink a lot of fluid as you need to clear kidneys,to be honest your mum seems to be doing ever so well,it must be hard living on her own,if i am correct the nurse on this site can put your mum in touch with some one with same condition,ask Ellain ?

Might be worth…[Read more]

Dai
I have thought about it Dai,do you remember my old post[can I have a moan]that other eve ranted and raved,had high blood pressure,needed a g&t to calm down,everything was so inefficient,time wasted,and do not get me wrong Dai it still is,but it has become the norm,and I have got use to it,we still wait hours for tablets,we have appointments…[Read more]

Dai

Love the song ,it,s lovely,glad to here your feeling better after your poo problems:-) ,Its nice to wake up in the morning and read your post brings a smile to my face
Angelina.have been wondering what was happening with you and John,not a good time for you,glad things are improving,Slim and I laugh about him seeing long legs in riding…[Read more]

hi Gina
Hope you mums out and is on the mend,:-)

MOnday,Tuesday and Wednesday at doctors,no infection,but blood counts done,changed doctor in practice,feel someone is listening to me at last,
Slims gone from one extreme to another from D&V and general feeling ill and BP low.Now feels much better,but no bowel movements since Sunday,been dosing…[Read more]

Hi Dia

Wonder drug movicol!! Also tastes soo good. Keep taking the meds!!!

withlove sarah xx

Hi Min

All sounds horrid but also sounds as though the treatment is having some good effect,also sounds as though your hospital needs more capacity!! Things are not too good in the NHS very scary for mm patients but what is new.:-(

Hope all keeps improving for you both

Sarah xx