Hi Bridget

It will be worth it in the end,I had mine done just as Slim was diagnosed,had been arranged earlier and felt,I had to go ahead with it.
Believe it or not it kept me sane,I was so busy with kitchen and bathroom ,and Slim being admitted I did not have time to feel sorry for myself,saved a lot of money not buying gin lol.
After Slims…[Read more]

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hi alister

my husband has had 2 sct transplants at Kings College hospital in london, not to keen on the trasplant unit but much better than the 1st time round in 2002. Ge is/was under Dr Schey and he is also under our local hospital on the south coast which is a god send!!

Godd luck and hope you make the choice to suit yuo all, I would…[Read more]

Hi Min

So sorry to read your last post as the other replies have said it looks like bad times then …better times:-D Gordon went ontp thalidomide in 2002 after his 1st sct.which worked really well no problems no side effects, he then relapsed in 2008 and then went onto other drugs

I heard a slightly differrent version to Joe as to how…[Read more]

Hi Angelina

Yes I can relate to your post,not as bad but very frighting,Slim has had a few bad times,being an ex marine he has seen and been in many bad situations,but these nightmares he tells me are so frighting,had about 4 in itu,panic attacks they said ,but when we talked about them,they were nightmares.Must admit at time my thoughts were…[Read more]

Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Minnie tell Peter that I'm so sorry that things have turned out this way for him.
He was always my favourite brother and I will always love him deeply….
Andrew

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi Bridget

So glad you had a lovley visitor, the Macs are wonderful and know so much about everything cancer related, if they dont know they find out. Hope the new regime helps, GPS are completley hopeless on pain relief I know as I used to work with them! Gordon and I go straight to the local hospital now never bother with the GP!! Have no…[Read more]

Hi Min
I am so sorry to read your last post, what a dreadful disease mm is it is like living on a tight rope just waiting for the next nasty! At least Peter is feeling well always a good sign:-D

I have just given Gordon yet another GCSF! He also fells fairly well his blood results say different!

I do hope the next treatment helps Peter…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hi Ruth

I feel you need some proffesional help with your questions, is there a specalist nurse or someone at the hospital who could help. The staff at myeloma uk are also very good at answering questions.

Hope you find some answers!!

best wishes

sarah

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Hi Min

How true!!! I so agree with all youhave written i only wish i had your way with words. I too have a house of dust and windows that look uncared for but if gordon says shall we do this or that i now never say no, time is so presious. Weeds are flowers in the wrong place and how come your amaryllis is in bloom??? i am still waiting, i so…[Read more]

Hi Liz

I totally agree with all that has said before, our local hospital is always so godd and helpful.Min mentioned GCSF wich Gordon is still on following his SCT in november, it it still causing bone pain the thigh bones breast bone and ribs seem to be the worst affected, hope this helps.

best wishes sarah xx

Hi Gaye

I do hope the drs can sort out your pain soon, every day with pain is a day too many. gordon was told as dai was that his pain was controlable and most of the time it has been. good luck and hopefully you can keep us posted with your progress

With love

sarah xx

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve