hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

HI Dia

I agree with eve we need the music, no angels for you yet a while!!

sarahxx

thank you dai i so wish i had your way with words must be the celt in you!

best wishes sarah ( very english very stiff upper lip unfourtunly) ( cant spell had to much wine)

xx

Hi Ali

welcome, i remember so well the shock of gordons diagnosis 9 years ago, after two sct he is still going strong, well not so strong but here and doing most things he loves to do. i hope guy improves as i am sure he will, look after youself and stay positive.

best wishes

sarah xx

Sct is a stem cell transplant which may well be a…[Read more]

Hi Dai
I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)

dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]

Hi Everyone,
21 days and Slim has come home,All 9st 8lbs of him,walking on two sticks.but its wonderful ,sleeping a lot food intake has improved also.back to hospital Friday will find out about chemo.
Just so glad to have him home.
A friend came round to help me clean house as 12 to 14 hour day in hospital finished me off,another friend took…[Read more]

OK I must have something very wrong here. Stephen has been having Velcade through his PICC line and has had very bad (and I mean bad) diarrhoea. His Specialist asked for a sample but was very surprised and thought it was nothing to do with the velcade. Gill (or confused from Orpington)

Hi Lorraine

Off load all you like. I cannot help with advice on the revlemid as husband Stephen (mm) has not yet been on it, but it looks like it could be on the cards.

Do keep us posted as to how you are doing Gill XXX

I am so sorry that Kevin has gone. I just want you to know that I am thinking of you. Gill xxx

Dear Tina

I am so sorry for your loss. I am sure that it is of little help at the moment but please know that I, like everyone else on this site, am thinking of you.

Gill xxx

PHEW I have not been on for a while and am reading posts from newest backwards. I thought I read that you HAVE got bowel cancer.

So pleased everything is fine love from Gillxx

Hi Sally

Welcome to the site. I am sure that you will get a great deal of information and support from everybody on here. It is my husband who is the mm person, and I have found a great deal of support and information on here. Good luck

Gill

I cannot imagine what you put in your post to cause offense as I have not been on here for a while, but I think it would take a great deal to offend us lot. After all the greatest offense is getting this b**tard disease!!!

I am so glad that Slim seems to be on the mend. Fingers crossed that he keeps on improving.

Gillxx

Hi david

So pleased for you and your family, you are about 6 weeks ahead of gordon who is still having epo and gcsf to stimulate the bone marrow. Enjoy!! I agree with Tom where are those bikes with lovey comfy seats!

All the best

sarah

Dear tina

I have just come on line and read your very sad news of Patrick, I can only imagine what you and your family are going through.My very best wishes to you at this difficult time.

With love

Sarah

Thank you ever one for all your kind thought ,min I do not know what I would have done without all your help,you do tend to forget that people on this
sight have been in your position.
min you gave me hope,Slim is starting to recover its the first day in 21 days that I am not in the hospital by 8-30 am.I am amazed how quickly he has turned…[Read more]

Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]

Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]

Hi to you all

Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]