Well this drug is certainly taking it's toll. Stephen has had very little in the way of side effects gregarding tummy problems this far. After reading other's posts regarding Velcade he felt very lucky.

This has now changed dramaticaly. His new best friends are the loo bowl and a bucket. 1 item for each end!! he does not even seem to be able…[Read more]

I am so sorry for your loss. I just wanted you to know that my thoughts are with you Gill xx

Warning Shirley!!! PooPees (no folks I meant to spell puppies that way) are a pain. Ours is gorgeous but Oh what hard work. We were spoilt with her honory sister (now 2) Clean as a whistle.

Mind you she is a complete sweetheart and we wouldn't swap her Hmmm for a clean one maybe 😉

Dear Mark I am sorry that your dad has got mm It is still quite an unusual cancer, but our GP said that although she was used to seeing it (huge doctor's practice) she was seeing younger and younger people with mm and your dad is still quite young.

There is a great deal of research going into mm at the moment so let's all hope that it will help…[Read more]

Hi David , very impressive xray you old show off:-)

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

Hi Gill

LOL needed that,eve

Dear Gaye and bridget

I missed the last episode of the Killing i thought it a great production so annoyed i missed it, something to do with football, I love the swedish wallender as well Look forward to the episode in the autumn.

Gaye,I do hope you get some relief from your pain soon, with all the pain relief today something must work for…[Read more]

Thanks again to all for your replies. Stephen will be in Kings later this year for a second SCT but never has to go there at the moment. Maybe we can get a printout regarding pp etc from the hospital he attends regularly thanks for the iformation Mari

Hi Tracey So sorry you had to join us but a huge welcome Hope all goes well for you Gill

I think that Myeloma is still quite an unusual cancer (trust my husband to get something unusual) but when we first saw the head of haematology at King's College Hospital he said that mm was considered to be "quite a sexy subject for research at the moment"

I take it that means there is a great deal of research being done so maybe it will come…[Read more]

Hi Perkymite

At least you have a good chance of not being infertile LOL,Perkymite what a lovely nam on wards and upwards 😛

Hi Keith Stephen (husband mm person) is on Velcade at the moment. He is hoping to go for a second SCT later this year. He get's very, very tired on the Velcade and of course the Dex that goes with it is not a pleasent experience.

Stephen's taste has certainly suffered and the only thing he can get some idea of flavour with is spicy food, curry…[Read more]

Thank you so much Jean for reminding me of this great, funny trio (fascinating Aida) I don't think they are together now, but are doing a reunion soon. Their cheap flights song has to be one that makes everybody laugh.

C'mon Ryanair answer that one:-) Gill xx

hello Mark

My partner has tumour on spine plus damage to spine.Stared straight away after test on Myeloma X1 Trials.He was given ctd side for test.Intensive pathway decided now on 36 day,has good days and bad just go with the flow.

Mark you will be having a big learning curve with this illness.We asked short medium or long term and was told…[Read more]

HI Gill
Your posting has just burst the dam that has been cracking for a long time.eve

Shirley, I blubbed tonight over our Georgia's just giving idea and now I ma blubbing over your good news. I am so pleased for you what a great celebration you and your family must be having and Yes your story will give hope to others.

Love from Gill xx

Hi Ozzy

1 month before you see your consultant must seem ages away but may seem nearer if you have some targets. Can you phone your consultant and ask when you can start back at work and introducing some "naughty" foods into your diet? I remember my (mm) husband getting quite excited when I first allowed hin to come to Tescos with me after his…[Read more]