What a Bummer!!!

I am so sorry to hear your news. I think it must be worse when you feel well. Stephen got about 18 months and felt brilliant when back ache started and he got told OOPs it's back. I am not sure about the exact time as I was the headless chicken that managed to hide my headlessness from everybody but collapsed into myself. Janet…[Read more]

Hi Jean

Yes Slim had been ill for more than 6 months,In a lot of pain,wanting to be sick,not eating,doctor put it down to tablets.Slims problem is he has a high pain threshold and an attitude a little bit of pain never hurt anybody.
I came across as a screaming banshie with attitude,not good when you know something is seriously wrong and…[Read more]

Hi Jean

I know its hard,but if Frank will not make his feelings known to doctor,you have to accept it is his life his choice.He wants to go on holiday!!If bone damage is there 14 days will not make any difference,If he starts wanting to be sick,then calcium is getting into blood stream its called hypercalciumer ,spelling might not be right but…[Read more]

thank you!!! wish i could remember jokes love them to bits but usless at delivery!!

sarah xx 😀

Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hee Hee:-D 😀

Thats the trouble with e mails and texting I press send then re read the text/ e mail and regret it:-(

sarah xx

Dear Jean

Men find illness so difficult to cope with being sick , gordon is on GCSF plus epo to boost his bone marrow, i have to remember all the dates times for the meds, gordon ignores it and gets then cross when i inject him, he has had a wake up call this weekend, as he has spent the last two nights in hospital with a chest infection and…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Kay if you click on which ever of the discussion forum headings that you want to start a new thread under and then scroll down to the bottom you should see an option to start discussion. EG click onto discussion forums click into treatment scroll right down to the bottom of the page and click on start discussion Regards Gill

I am not sure if Stephen heard his chemo nurse correctly (I shouldn't let him out on his own:-| )

He remembered to ask about platelets and pp levels and was told that his platelets were up from 40 to 70 and should be 140 and his pp level was 70 which sounds high. He also got told that his bp was fine. mm or not that man is always so laid back…[Read more]

Hi Sandra

My husband was diagnosed in 2008 He has had one auto SCT and is now needing a second. Fortunately when he was harvested he managed to produce enough stem cells for 2 autos.

One of the first questions he was asked when first diagnosed was how many siblings he had. Answer none. We had no idea at the time why the question was asked…[Read more]

HI Jean

I am a new be to this site and also to mm,my partner is on his 29 day of cdt.He has had pain in his right side for a long time,he originally thought he had broken ribs.When it was first diagnosed the damage to the large bones were in shoulder blades and skull plus spine,these showed on skeleton exray and mri scan. ct scan has not been…[Read more]

Hi Gill

I don,t do breakfast in bed cause so much i do is wrong! It is so tricky being a 'carer' i guess it is what we sign up to with our marrige vows, many years ago now, i also feel the idiot who married the pain that got ill!!

with best wishes sarah

Hi Amanda

I agree with Liz and Jo try Macmillian Service you can find them through your GP and or the local hospice. Myeloma uk are also brilliant, good luck your mum is lucky to have a caring family.

Best wishes Sarah

Hi Amanda

I think it is great that your mum does not need treatment yet. My husband was diagnosed in 2008 and was treated straight away because his mm was so virulent (sp?).

He is still here. He is 55 and is hoping that he gets "another year" 5 to 7 years would be wonderful for us

For every day we get I am grateful to some god or other…[Read more]

Hi

I travel every year in motor home making are way through France then Spain and on to Portugal 'we have needed a doctor once in France and a dentist no problems just paid are 20euro,s and then paid for tablets.In Spain you can take your repeat prescription in to chemist and you can get it over counter we do this all the time as doctor,s are…[Read more]

Thanks for the tip about the health insurance Jean. We are hoping we will still be covered by our exisiting long term insurance policy. It was annoying to pay for MIA and then find we were already covered. Talk about over egging the pudding. Never mind it did mean peace of mind.

By the time Stephen's Velcade stint is drawing to the end Anya…[Read more]

Hi Gaye
I know i am fairly new on here and my partner Slim is only on his 23 day of ctd,I do not understand why everone seems to be on different pain relieve.I am concerned how much Slim takes although hospital is very pleased with progress he was taken off tramadol put on 10 mil of morphine a day plus paracetamol 500.This controls the pain to…[Read more]